Triple Negative Breast Cancer: What treatments are you having?

Posted by thielmann1 @thielmann1, Dec 9, 2021

I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?

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@leolion811

Yes I had 4 weeks of rads including 5 boosts. This time I will have 5 weeks of rads with no boosts. The tentative timeframe will be in September. I pray that your cancer doesn’t come back 🙏🏼 I hate cancer 😡

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Cancer is a very wily opponent indeed. There is the philosophical view that I took that, had I died at a younger age if something else, I'd have dodged it but that doesn't help me much ;-). For what it's worth, and I have a good track record with this stuff, I believe you'll come through this just fine. Tired, but fine. Prayers up for all of us and the people who love us.

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@auntieoakley

I can only tell you what my experiences were with chemo that had these same side effects. There was not the effective drugs for nausea that they have now. So that was a bigger problem. The constipation became a huge problem and continued for years after my initial chemo. If you can stomach it, whole grain oatmeal every day will help this, it might or might not be enough. I now mix up whole grain rolled oats and milk and kefir, add some blueberries and a touch of honey, I refrigerate over night and eat cold in the morning.
You can ask your oncology doctor for a consult with a nutritionist specializing in oncology if there is one in your area. They will have more tips and tricks for you to use. How are you feeling after your first treatment?

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How much Kefir do you add? Picking up a few items at the store today, the Miralax is not working for me.

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@leolion811

How much Kefir do you add? Picking up a few items at the store today, the Miralax is not working for me.

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I mix in half kefir and half milk to where it looks a little soupy. Then add whatever you like. I add a handful of walnuts for texture. I freeze blueberries whole when they are in season then use a handful of those. I use berry flavored kefir to pump up the flavor.
My husband uses pecans and raisins and a bit of real maple syrup. He also microwaves his to a warm temp in the morning, I eat mine cold. This has made a tremendous difference for us in feeling better and avoiding the build up and then very painful emptying.
I still drink miralax at half dose every single night as an added precaution.
When is your next treatment?

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@auntieoakley

I mix in half kefir and half milk to where it looks a little soupy. Then add whatever you like. I add a handful of walnuts for texture. I freeze blueberries whole when they are in season then use a handful of those. I use berry flavored kefir to pump up the flavor.
My husband uses pecans and raisins and a bit of real maple syrup. He also microwaves his to a warm temp in the morning, I eat mine cold. This has made a tremendous difference for us in feeling better and avoiding the build up and then very painful emptying.
I still drink miralax at half dose every single night as an added precaution.
When is your next treatment?

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Thanks for your update. I didn’t know what flavor to buy for the Kefir so I bought plain. Oh well. Once I add the oats, blueberries, touch of honey, almonds and milk, it should be good. Also picked up some flaxseed, date bites, diced pears, Colace too. I also bought Fig Newtons but I forgot prunes. I plan on putting it all together tonite and eat it in the morning and I will let you know! Thank you ☺️ My next treatment is next Tuesday.

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@leolion811

Thanks for your update. I didn’t know what flavor to buy for the Kefir so I bought plain. Oh well. Once I add the oats, blueberries, touch of honey, almonds and milk, it should be good. Also picked up some flaxseed, date bites, diced pears, Colace too. I also bought Fig Newtons but I forgot prunes. I plan on putting it all together tonite and eat it in the morning and I will let you know! Thank you ☺️ My next treatment is next Tuesday.

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I will be thinking about you, let me know how it goes.

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@auntieoakley

I will be thinking about you, let me know how it goes.

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I sure will 😊

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@auntieoakley

I mix in half kefir and half milk to where it looks a little soupy. Then add whatever you like. I add a handful of walnuts for texture. I freeze blueberries whole when they are in season then use a handful of those. I use berry flavored kefir to pump up the flavor.
My husband uses pecans and raisins and a bit of real maple syrup. He also microwaves his to a warm temp in the morning, I eat mine cold. This has made a tremendous difference for us in feeling better and avoiding the build up and then very painful emptying.
I still drink miralax at half dose every single night as an added precaution.
When is your next treatment?

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I just had 1/2 of the oatmeal mixture that I made last nite. It sure was a lot to eat. Hopefully it will stay tasty to finish later! Very filling and tasty 😋 I don’t have a lot of appetite this morning and I feel like I am coming down with a head cold 😢 Thank you 😊 ( I hope I can go 💩)

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@leolion811

I just had 1/2 of the oatmeal mixture that I made last nite. It sure was a lot to eat. Hopefully it will stay tasty to finish later! Very filling and tasty 😋 I don’t have a lot of appetite this morning and I feel like I am coming down with a head cold 😢 Thank you 😊 ( I hope I can go 💩)

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I am glad you liked your oatmeal. I have been thinking about you.
How are you doing?

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I was recently diagnosed TNBC. Mayo’s standard was Taxol/Carboplatin/Pembrolizumab 1xweek fir 12 weeks,
then Adriamycin/Cytoxan/Pemrolizumab 1X every 3 weeks x 4 times. So another 12 weeks.
60% chance of complete pathological result (meaning cancer is gone.)
Wait 4-6 weeks and do surgery.
Radiation just depended on if lymph nodes or size of tumor (over 5cm is yes)

I decided to join a I Spy 2 clinical study. Which delays starting chemo as they take another biopsy and send it to the study group to get recommended chemo/Immuno combo. Takes two weeks. The waiting is a mental game.
Please keep in mind everyone’s situation is different and BC seems very complicated in the variety of treatment options.

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@sharonemma

I was recently diagnosed TNBC. Mayo’s standard was Taxol/Carboplatin/Pembrolizumab 1xweek fir 12 weeks,
then Adriamycin/Cytoxan/Pemrolizumab 1X every 3 weeks x 4 times. So another 12 weeks.
60% chance of complete pathological result (meaning cancer is gone.)
Wait 4-6 weeks and do surgery.
Radiation just depended on if lymph nodes or size of tumor (over 5cm is yes)

I decided to join a I Spy 2 clinical study. Which delays starting chemo as they take another biopsy and send it to the study group to get recommended chemo/Immuno combo. Takes two weeks. The waiting is a mental game.
Please keep in mind everyone’s situation is different and BC seems very complicated in the variety of treatment options.

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I cannot tell you how happy I am that you joined this trial! Your bravery will help you, and the women who will stand on your shoulders in the future. Thank You❣️
We are all so different, of course our cancers are all different as well, glad the research is finally catching up to this. You are so wise, and thank you for posting this.
I agree the waiting is always a mental game, the longest days of my life have been spent this way.
What are you doing to keep your mind from spinning? How far into the two week wait are you?

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