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Menieres disease: Anyone had surgery or gentamicin injection?
I have menieres and laryngeal sensory neuropathy. My immunologist says they are related. I’ve just recovered from an episode of the latter and now my menieres has flared
Up. I’m on max dose of betahistine and the vertigo is currently debilitating. The tinnitus and hearing loss are getting worse too. Has anyone had surgery or gentamicin injection and if so was it successful?
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Roselyn - I had the gentamicin shots in my ear 3 years ago after 12 months of debilitating vertigo and increased hearing loss. Happy to report that the treatment completely eliminated the “spins” but also the hearing in that ear. I don’t regret the decision one bit. Feel free to DM me if you’d like more info on my experience. Hang in there - it’s difficult for sure!
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4 ReactionsYes yes I would like to know more about the gentamicin surgery in your ear. I found a doctor in Sarasota Florida that does this but unfortunately it is to far from Springfield mo .
They have the Silverstein institute.
Could I ask what doctor you found? Lucky you. Thank you Joann8
I have been recommended gentamicin injections in my right ear because of bad vertigo for years. I am not concerned about the procedure itself or loss of hearing which is very bad anyway.
I am very worried about the vertigo after the injections, how bad it is, how long it lasts as well as the loss of balance because at 80 I am afraid I may not be able to regain it. My balance currently is not great but I manage very well without a cane etc. I would really appreciate it If anyone could please advise me or tell me about their own personal experience post gentamicin especially how long it takes for full recovery. Thanks.
I spent several days at the Mayo Clinic about 8 years ago testing for Meniere’s. I was experiencing severe vertigo, tinnitus, ear fullness and hearing loss. They couldn’t come to any conclusion and asked me to come back in 6 months. I was very discouraged and tried other remedies to no avail. I then started having drop attacks and ended up in ER a couple of times for injuries. Finally went to the UT Southwestern Medical Center in Dallas, TX. They started with gentamicin injections that stopped the vertigo and drop attacks for 6 months. Because of the drop attacks they then performed the labyrinthectomy surgery. I am now symptom free - no vertigo or drop attacks. I use BICROS hearing aids and that works great. It was a terrible 8 year journey with Ménière’s disease. I’m so thankful for the ENT team at UT Southwestern for their persistence in working with me to find a solution. I have my life back - free at last!
In his late 70's my dad's vertigo from Meniere's became really disruptive. He had one eardrum surgically "destroyed". He had very little hearin in that ear. The vertigo stopped and never returned.