Living with Neuropathy - Welcome to the group

Welcome @saki, Although I have neuropathy I don't have any experience with scalp neuropathy but did find some information on the topic.

"Can you get neuropathy on your scalp?
Structural changes in scalp epidermal and dermal nerve fibres were discovered in a skin biopsy, suggesting that small-fibre neuropathy associated with scalp pruritus may be a manifestation of the DM syndrome." --- Small-fibre neuropathy in a patient with dermatomyositis and severe scalp pruritus: https://pubmed.ncbi.nlm.nih.gov/27088428/

There are a couple of other sites that might be helpful for learning more and what treatments are available:
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/

It sounds like you don't feeling any pain or tingling in the scalp, is this correct? Did your doctor suggest or mention any treatments that might help?

Thank you for responding to my post. Sometimes my scalp is a little sore and itching but there is no actual pain, just a continual loss of hair. My dermatologist didn't offer any further information or suggest any treatment. I got the impression there was nothing to be done. I will check out the links you provided , any information would be helpful.

Are you seeing a neurologist?
He needs to assess you pain, movement, muscles and nerves. Have you had any imaging such as MRI or EMG. Are you taking any medications for this and is it helping?
Neuralgia is very painful and makes life very difficult…..I am sorry you have to go through this….

Hi Colleen,
My name is Brian, and have neuropathy. Due to several sports injuries, resulting in metal plates in left leg, right hip replacement, etc........My main source of exercise is swimming.
Since the chlorine in the pool dries out my feet so much, resulting is cuts, sores, ulcers......I have had to get 2 toes amputated on left foot. My podiatrist, dermatologist, and cardiologist all say there is nothing to prevent this, and to monitor daily, apply creams, and wear swim socks.
Up until my last amputation of 5 weeks ago, I have tried this approach, but now I am about ready to put away the goggles and start shopping for wheelchairs........not what I hope for my future

Hi @macirish, Welcome to Connect. It sounds like you've looked into all the alternatives so that you could keep swimming for exercise. I'm wondering if you have seen this article that mentions chlorine drying out the skin -- Why Do I Get Dry Skin After Swimming?
No amount of lotion seems to cure dry, itchy skin after swimming, especially in the winter months. What can you do?: https://www.triathlete.com/gear/swim/why-do-i-get-dry-skin-after-swimming/

Have you tried showing after you swim and using moisturizing, liquid body soap to remove the chlorine?

Hi John,
Thank you so much for responding. I have tried those remedies, with no real luck. My most serious issues are with the left foot, and that's the leg where I have numerous plates/screws due to a tib/fib fracture in 1995. I just had a Doppler done on my entire lower torso, and have excellent circulation throughout.
I am seeing my ortho doc (he did not perform tib/fib surgery) to discuss possible damage/infection from the trauma area .....Perhaps due to the length of time of the hardware in the leg??? I'm not even sure if that's possible. Still searching!!
Thank you

Thanks, yes I do see a neurologist who has done assessments and mri, and also medication that helps. So far the neuropathy is manageable. John provided me with links to a couple of websites on neuropathy that I found helpful, and I hope to learn more as time goes on.

Does anyone else have a time every night like 9 o'clock when pain starts in feet,legs and hips from neuropathy?

Hi Colleen, I am new here and would be grateful on information relating to feeling of pulses and tingling all over my body as well as burning sensation around the waist

Welcome @philipwest, The symptoms you are describing do sound like some type of condition that affects the peripheral nerves including peripheral neuropathy. Mayo Clinic has more information on the symptoms here - https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/symptoms-causes/syc-20352061

Have you discussed your symptoms with your doctor or been diagnosed with neuropathy?