Lost my ability to sleep and other serious issues

Posted by hello123yes @hello123yes, Feb 5, 2022

Hi everyone,

Here’s my story in hopes that someone can help me.

Prior to Nov 25 I was taking Lions Manes mushroom and on the 25th I smoked marijuana which gave me a panic attack. Now I believe I developed Central Sensitization syndrome (due to lions mane increasing NGF which can lead to CSS under the right circumstances) due to this because that night of the panic attack I was wide awake and up all night. Now it’s like my body and mind won’t shut off. There’s too much activity in my nervous system.

Since that night I haven’t been able to sleep more than 1-2 hours per night even with a benzo. The past week I haven’t slept at all. I’ve been to the hospital and they couldn’t help me. It’s like my brain won’t shut off and there’s too much activity in it. It physically feels like I’m drinking coffee hourly which I’m not. This has all been happening for over 2 months after supplementing with Lions Mane and then having marijuana.

I’m not sure if the Lions Mane mushroom daily for 2 weeks then taking marijuana that one day had an adverse reaction with each other or not, but ever since the morning after I haven’t been the same sleep wise among other issues. The other issues I’ve been experiencing are internal vibrations for the past month, twitches in my neck, legs, and hands, diahrrea every day, sore legs, and disorientation. The internal vibrations worry me that I may have a neurological disorder. I have an appointment with a neurologist in two weeks. The main issue is I’m not sleeping at all, it’s like I’ve lost that ability.

I feel somehow the Lions Mane and marijuana could had given me brain damage because after Nov 25 I haven’t been the same person. I don’t know how or if this is true but my life has been turned upside with all my symptoms.

Does anyone know whether I might have a serious issue or how I can further look into why it appears I’ve lost my ability to sleep?

Interested in more discussions like this? Go to the Sleep Health Support Group.

Colleen Young, Connect Director | @colleenyoung | Mar 12, 2022

In reply to @cila "Yes I did and they tell to call to make appt. Thanks!" + (show)

Hi @cila,
The link that @johnbishop provided also lists the phone numbers to call for each Mayo Clinic location, as well as tips and frequently asked questions about requesting an appointment at Mayo Clinic. You can either self-refer or have your physician make a referral.

It sounds like you’ve already called several times, but are not getting the response you're hoping for. Other members share their tips in this discussion.
- Can't get an appointment: Any tips on what to do? https://connect.mayoclinic.org/discussion/cant-get-an-appointment/

Mayo Clinic has more requests for appointments than available openings in some departments. Have you been told that Sleep Medicine is unable to accept new patients at this time? Are you already a patient in Pulmonology for MAC and Brochiectactsis? Which location have you been calling?

In order to not take this discussion to far off-topic, please send me a message using this form https://connect.mayoclinic.org/contact-a-community-moderator/

cmd | @cmd | Apr 24, 2022

I so sorry for you. I haven’t been able to sleep since Sept. 2021 without taking a hard core drug to knock me out.
Hope you find your answer.

cmd | @cmd | Apr 24, 2022

I’m*

John, Volunteer Mentor | @johnbishop | Apr 24, 2022

In reply to @cmd "I so sorry for you. I haven’t been able to sleep since Sept. 2021 without taking..." + (show)

Welcome @cmd, Sorry to hear you are also a member of the trouble sleeping club. The Sleep Foundation has some tips that may be helpful — What To Do When You Can’t Sleep: https://www.sleepfoundation.org/insomnia/treatment/what-do-when-you-cant-sleep. Have you tried any or some of the tips that are listed?

cmd | @cmd | Apr 24, 2022

In reply to @johnbishop "Welcome @cmd, Sorry to hear you are also a member of the trouble sleeping club. The..." + (show)

Yes and nothing worked.
I have been unable to sleep since Sept/Oct 2021 post Covid. If I don’t take a sleeping pill or medication I don’t sleep at all ever. Have you ever heard of someone who doesn’t sleep?
Thanks for reaching out, I’m very very desperate.
😴 Carolyn

John, Volunteer Mentor | @johnbishop | Apr 24, 2022

In reply to @cmd "Yes and nothing worked. I have been unable to sleep since Sept/Oct 2021 post Covid. If..." + (show)

Carolyn, Since you mentioned the sleep problems began Sept/Oct 2021 post COVID, I was wondering if you might consider posting your question again in the following discussion to see if other members have had similar problems sleeping?

Any tips to help recovery for a COVID Long-Hauler?: https://connect.mayoclinic.org/discussion/long-hauler/

I also found an article on the topic that might shed some light on the problem.
-- Sleep Dysfunction in COVID-19 Patients: Prevalence, Risk Factors, Mechanisms, and Management: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8618512/

cmd | @cmd | Apr 25, 2022

In reply to @johnbishop "Carolyn, Since you mentioned the sleep problems began Sept/Oct 2021 post COVID, I was wondering if..." + (show)

Where do I post the question? Or start a conversation?

cmd | @cmd | Apr 25, 2022

In reply to @cmd "Where do I post the question? Or start a conversation?" + (show)

I’ve read that article before it appears that is geared toward those who were in hospital. It appears my sleep-wake cycle is damaged to what extend not sure. Was trying for sleep study, but you have to sleep for it to be valid. I remain very desperate but do appreciate you reaching out.

John, Volunteer Mentor | @johnbishop | Apr 25, 2022

In reply to @cmd "I’ve read that article before it appears that is geared toward those who were in hospital...." + (show)

I did see a couple of other post COVID insomnia articles but didn't want to overload you with links. I saw some reference links on the NHS COVID Recovery site (https://www.yourcovidrecovery.nhs.uk/your-wellbeing/sleeping-well/) that might be useful.

-- Insomnia info & self assessment - https://www.nhs.uk/conditions/insomnia/
-- Sleep and tiredness - https://www.nhs.uk/live-well/sleep-and-tiredness/
-- Trouble sleeping?: https://www.nhs.uk/every-mind-matters/mental-health-issues/sleep/

You mentioned trying to get into a sleep study. Have you discussed the issue with a sleep medicine doctor to see if they may have some suggestions?