Thankyou for this information , I will bring it up with my neurologist , as my GP. Does not know much about this condition . Another thing if you could help me please , I’m interested to know if or when. People with neuropathy affecting the feet , eg , numbness Consider to stop driving , would it be up to the patient or can the neurologist Stop you driving . They are quite happy with me driving at the moment , but if I feel the need I will install hand controls to the car ( not looking forward to that ). Do you know where I can get more info on this please . Susan
John, I'm new here. 62 y/o F. Dx Nov.2019 with PN hands, toes/feet leg stiffness. I have had the whole gambit, MRI's, etc. Extreme burning in upper arms, on gaba 600mg x4/day, neurotriptiline 40ng x 2/day. I'm now experiencing numbness/heaviness upper thighs. Just saw 2nd neuro, put thru battery of usual tests. Concerned about my upper thighs. Anyone else going thru similar? I'm in Ontario Canada. Had to retire after 30+ years in Healthcare. Not sure what to exoect next.
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Since 2012. Pain meds are really the only way to help with such pain. It's all over my body also from 4 back surgeries and a disc that broke and is sticking inside my spinal cord but hasn't broken through to the spinal fluid yet. ✝ With God I keep walking even after being paralyzed from the waste down. God is a miracle waiting for you to ask. Bless you all in such Pain!!!! ❤
I’m dealing with it as a parent of a 50 yr old chef. Diagnosed 5months ago after a 11step fall crushing his clavicle. Now on Gabopentin, 900 mg and two depression meds. He now goes without eating for days and sleeps 3/4s of a day. He works 5-6 hours a day and then collapses. Is this common? I’m concerned he might fall asleep at the wheel
I’m dealing with it as a parent of a 50 yr old chef. Diagnosed 5months ago after a 11step fall crushing his clavicle. Now on Gabopentin, 900 mg and two depression meds. He now goes without eating for days and sleeps 3/4s of a day. He works 5-6 hours a day and then collapses. Is this common? I’m concerned he might fall asleep at the wheel
One of the tips the article mentions is taking the medication at bedtime. When does your husband take the medications? Has your husband discussed the symptoms with his doctor?
Mine started 14 months after left hip replaced first dizzy high heart rate that kind of went away they a month later feet started burning stabbing pain. Hip was OK first 4 months now it hurts when I sit. Chronic pain that i don't think is related to tendons.
I am not sure where to find the correct group but I have something called TSHDS Antibody. My neuropathy is caused by immune mediated. Has this been written about this kind, I am new to this sight so I am not sure what this is or how It happened to me ?
I am not sure where to find the correct group but I have something called TSHDS Antibody. My neuropathy is caused by immune mediated. Has this been written about this kind, I am new to this sight so I am not sure what this is or how It happened to me ?
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
I have sensory , motor and autonomic neuropathy . I had a fall in June 2021. Can anyone comment on symptoms. I have numbness in feet and up my legs, in hands and arms and have issues with dry mouth and eyes. Anyone else experiencing these issues ?
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@steeldove posted a link to the manufacturer of the hand controls and may have some suggestions for you. Here is a link to the post - https://connect.mayoclinic.org/comment/157046/
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1 ReactionJohn, I'm new here. 62 y/o F. Dx Nov.2019 with PN hands, toes/feet leg stiffness. I have had the whole gambit, MRI's, etc. Extreme burning in upper arms, on gaba 600mg x4/day, neurotriptiline 40ng x 2/day. I'm now experiencing numbness/heaviness upper thighs. Just saw 2nd neuro, put thru battery of usual tests. Concerned about my upper thighs. Anyone else going thru similar? I'm in Ontario Canada. Had to retire after 30+ years in Healthcare. Not sure what to exoect next.
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Hug
1 ReactionSince 2012. Pain meds are really the only way to help with such pain. It's all over my body also from 4 back surgeries and a disc that broke and is sticking inside my spinal cord but hasn't broken through to the spinal fluid yet. ✝ With God I keep walking even after being paralyzed from the waste down. God is a miracle waiting for you to ask. Bless you all in such Pain!!!! ❤
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Helpful -
Hug
3 ReactionsI’m dealing with it as a parent of a 50 yr old chef. Diagnosed 5months ago after a 11step fall crushing his clavicle. Now on Gabopentin, 900 mg and two depression meds. He now goes without eating for days and sleeps 3/4s of a day. He works 5-6 hours a day and then collapses. Is this common? I’m concerned he might fall asleep at the wheel
@vicjfaoro1 - I've read that fatigue can be one of the symptoms of taking antidepressant medication. Here's some information on the topic --- When Your Antidepressant Makes You Tired: https://www.verywellmind.com/fatigue-caused-by-antidepressant-1067353
One of the tips the article mentions is taking the medication at bedtime. When does your husband take the medications? Has your husband discussed the symptoms with his doctor?
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2 ReactionsMine started 14 months after left hip replaced first dizzy high heart rate that kind of went away they a month later feet started burning stabbing pain. Hip was OK first 4 months now it hurts when I sit. Chronic pain that i don't think is related to tendons.
I am not sure where to find the correct group but I have something called TSHDS Antibody. My neuropathy is caused by immune mediated. Has this been written about this kind, I am new to this sight so I am not sure what this is or how It happened to me ?
Hi @dkappel, I think this may be the discussion you were looking for ?
TS-HDS Antibody and Small Fiber Neuropathy: https://connect.mayoclinic.org/discussion/ts-hds-antibody-and-small-fiber-neuropathy/
Neuropathy Commons has a good explanation of all of the antibodies associated with neuropathy including TS-HDS — https://neuropathycommons.org/neuropathy/causes-neuropathy/autoantibodies-and-small-fiber-neuropathy
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1 Reaction11 months legs ,arms,face
I have sensory , motor and autonomic neuropathy . I had a fall in June 2021. Can anyone comment on symptoms. I have numbness in feet and up my legs, in hands and arms and have issues with dry mouth and eyes. Anyone else experiencing these issues ?
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