← Return to Anyone here dealing with peripheral neuropathy?

Discussion

Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 11 hours ago | Replies (2941)
Comment receiving replies
@ahenness

John, I'm new here. 62 y/o F. Dx Nov.2019 with PN hands, toes/feet leg stiffness. I have had the whole gambit, MRI's, etc. Extreme burning in upper arms, on gaba 600mg x4/day, neurotriptiline 40ng x 2/day. I'm now experiencing numbness/heaviness upper thighs. Just saw 2nd neuro, put thru battery of usual tests. Concerned about my upper thighs. Anyone else going thru similar? I'm in Ontario Canada. Had to retire after 30+ years in Healthcare. Not sure what to exoect next.

Jump to this post

Replies to "John, I'm new here. 62 y/o F. Dx Nov.2019 with PN hands, toes/feet leg stiffness. I..."
John, Volunteer Mentor | @johnbishop | Apr 24, 2022

Welcome @ahenness, Sorry I didn't see your post sooner. I see from your post in another discussion that you mentioned you are getting about 70% relief from the pain. I know you are not alone in not being sure what to expect next. As much as I read and try to learn about neuropathy I also have some of the same feelings.

I don't have the burning pain but do have the numbness. I posted my story in another discussion here -- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/

The Foundation for Peripheral Neuropathy has a lot of helpful information if you haven't already visited the site -- https://www.foundationforpn.org/living-well/lifestyle/

Have you made any lifestyle changes to see if they will help your neuropathy?

VIEW AND REPLY
cheytag | @cheytag | Jan 6, 2023

Hi…. Have you been tested for Small fiber neuropathy?

VIEW AND REPLY