Chest and upper back pain with bronchiectasis and pseudomonas

@gbippy - This happened to me the last time I was on Ciprofloxacin. It was my "go to" medicine for infections last year and I was using it frequently. I had an exacerbation right after Thanksgiving so was on 875mgs 2xday for 14 days. That didn't kick it out so I went in the hospital and was on a stronger IV dose. I had foot and ankle pain and shooting pains that I thought could be neuropathy although I don't have much understanding of that disease. I finished up my meds mid-January and it took about 6 weeks before my feet returned to normal with no achiness or pain. I was very careful not to work out or do yoga or anything else that might compromise the tendons or ligaments because that is what these meds attack with their side effects. I hope that yours will go away soon as well. @lindam272

Here is a website that I was made aware of through the Cystic Fibrosis Foundation. https://pulmonary-performance.com/ Lots of good information here on exercises to help breathing, etc.

I have had the same pain and I control this bronchiectasis or MAC type pain with Tylenol and or Advil. I max out on the tylenol or advil. When the advil started causing GERD type symptoms I backed off on the advil and went back to tylenol and added some PRN prilosec for the GERD. At some point I need to go back on the antibiotics for MAC but am trying to avoid going back on them by using the hill rom vest and nebulizer. What do you find that is helping your lung discomfort? Minette

Hello - I found your comment very helpful. Can you tell me how to find Dr. Aksamit's frecent q and a? Is that on the Mayo website? I will do a google search as well. Thanks, Donna

Good morning! The recording is not yet available. When it is, I’ll post it.
Best,
Linda Esposito

Hi Linda, I am on Macroid for a UTI and get horrible shooting pain thru my legs and feet and especially toes. I also take two big meds for my Mac infection of 5 years. Best to you, Barb May

Hello Minette - Have you been checked lately for the status of your MAC infection? Normally, pain is minimal and/or intermittent with MAC and bronchiectasis. Increased pain may be an indication of increased infection, and neither Tylenol nor ibuprofen will treat it. If you ignore MAC too long, it can do truly devastating damage to your lungs.
When was the last time you had a complete workup - sputum culture with active colony count, and lung CT?
When you nebulize, are you using 7% saline? Some of us have had very good luck with that keeping our MAC infection at bay.
Sue

Sue, I have lately been coughing up white stringie globs do you have any idea what that may be? I sent the sputum in for culture. As usual it takes a while before we get it back. Growing cultures takes 3-12 weeks sometimes. Gloria

Pleurisy can be the pain u are getting. I do get back pain and I believe it is from the drugs I take. Some drs are not very smart just because they have a paper doesn't mean much.They give out awards now just because u participate Look at covid. You take 3 shots and still get the so called disease.

I can't say what the mucus might be - it could be infection related, a sign of an allergy, or a side effect of your medication. So glad they did a culture to give you an answer.
Sue