1. < Osteoporosis & Bone Health

Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

rashida | @rashida | Apr 10, 2022
In reply to @callalloo "Yep, it is. It has that comparison grid so people can quickly see how the drugs..." + (show)
@callalloo

Yep, it is. It has that comparison grid so people can quickly see how the drugs differ. I'm really hoping to never need any of them but am keeping an eye on the choices.

A friend of my parents had to have extensive spine and hip surgery some years back and was in her late 80s. I remember that she had to see several consultants before winning an appeal for insurance coverage for it. But the thing that I remember most is that the surgeons had to first assure themselves that she was still able to grow bone. She was, they dud the surgery, it was successful, and she was walking paim-free after being unable to walk much at all.

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@callalloo the chart does not show Evenity which @artscaping has been researching, though …

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rashida | @rashida | Apr 10, 2022
In reply to @callalloo "She's passed on but was living in Californis. Unless you're talking about the osteopenia website, in..." + (show)
@callalloo

She's passed on but was living in Californis. Unless you're talking about the osteopenia website, in which the owner lives in New York State and is fun to talk with, pleased to get the phone call and knows a lot. Including what she used when she had breast cancer some years back and the surgeon found no cancer despite a positive biopsy. I hasten to add that there are such things as false positive biopsies, but she said the surgeon said that biopsy was valid. Who knows, right? Pathologists frequently find evidence of cancers that begun and seem to just die off before reaching some critical mass. My mom's professor in med school lectured about examples of what used to be spontaneous healing as an example of how strong the human body if given the right environment.

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@callalloo - I live in Toronto.

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rashida | @rashida | Apr 11, 2022

@artscaping - the list doesn’t mention Evenity and the other drug you have been researching, though.

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rashida | @rashida | Apr 11, 2022
In reply to @artscaping "Thanks so very much @rashida. Very helpful. Chris" + (show)
@artscaping

Thanks so very much @rashida. Very helpful.
Chris

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@artscaping - the list doesn’t mention Evenity though, which you have been researching.

Here’s another article on Prolia that a friend sent me..
https://www.rxlist.com/prolia-side-effects-drug-center.htm

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callalloo | @callalloo | Apr 12, 2022
In reply to @rashida "@callalloo the chart does not show Evenity which @artscaping has been researching, though …" + (show)
@rashida

@callalloo the chart does not show Evenity which @artscaping has been researching, though …

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I missed that. Maybe because Evenity is a new drug?

A friend in Oregon called to tell me her mother's suffering multiple compressin fractures of the vertebrae. Someone on Mayo Connect mentioned Dr. Susan Ott in Seattle whose expertise is osteoporosis. Ott also teaches about it at the Univ. of Wash. I mentioned her and my friend's going to take her mother there for a consultation.

What concerns me is athat all of the female relatives on her mother's side, in earlier decades, suffered severe osteoporosis. Her mother's never even had a DEXA scan despite bone loss being a clear possible issue. Now she's in her late 70 and might have fewer treatment options but I hope I'm wrong about that.

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windyshores | @windyshores | Apr 13, 2022
In reply to @annevan "Hi, I am new to this. I am a 78 year old female, exercice, walk, eat..." + (show)
@annevan

Hi, I am new to this. I am a 78 year old female, exercice, walk, eat well, etc. The latest bone density test show another détérioration of Minus 3.8 I have heard of so many problems with bisphosphonates and Prolia that I have been reluctant to take any. Dont want to play with fire either. Am now going to see a specialiste and want to prepare. I welcome any positive comments.
Thank you Annevan

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@annevan are you considering bone-growing drugs like Tymlos, Forteo or Evenity? Your DEXA score might mean insurance could cover, and both Tymlos and Forteo companies have patient assist programs. I chose Tymlo because the dose is adjustable, and I started with a low dose and moved up. It is easy to be afraid of side effects, but as a person with several spinal fractures, I am more afraid of fractures than side effects= even despite many med sensitivities.

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bee1950 | @bee1950 | Apr 13, 2022
In reply to @annevan "Hi, I am new to this. I am a 78 year old female, exercice, walk, eat..." + (show)
@annevan

Hi, I am new to this. I am a 78 year old female, exercice, walk, eat well, etc. The latest bone density test show another détérioration of Minus 3.8 I have heard of so many problems with bisphosphonates and Prolia that I have been reluctant to take any. Dont want to play with fire either. Am now going to see a specialiste and want to prepare. I welcome any positive comments.
Thank you Annevan

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I started Forteo about 6 weeks ago & qualified for patient assistance thru Lilly Cares. I have had no particular side effects—Forteo was suggested to me about 17 yrs ago! I was 55 & neither of my female docs were aware of it. My last bone density was so poor that I decided to finally try Forteo. I took the biphosphonates from early 50s for about 10 yrs. I am very active but still bad bones! I hope you can make the best decision for you. Take care.

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annevan | @annevan | Apr 13, 2022
In reply to @windyshores "@Annevan are you considering bone-growing drugs like Tymlos, Forteo or Evenity? Your DEXA score might mean..." + (show)
@windyshores

@annevan are you considering bone-growing drugs like Tymlos, Forteo or Evenity? Your DEXA score might mean insurance could cover, and both Tymlos and Forteo companies have patient assist programs. I chose Tymlo because the dose is adjustable, and I started with a low dose and moved up. It is easy to be afraid of side effects, but as a person with several spinal fractures, I am more afraid of fractures than side effects= even despite many med sensitivities.

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Thank you for your advice. In my case, what mystifies me is that I have NO problems, not bending forward, no pain. I do strong exercices, never broke a thing inspite of some falls. But the numbers are cary. I have taken note of the drugs you mention, and will discuss it with the spécialiste I am seeing soon

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hlp123 | @hlp123 | Apr 13, 2022
In reply to @colleenyoung "Hi @angelas, I'm glad you found this active discussion thread. I moved your previous message about..." + (show)
@colleenyoung

Hi @angelas, I'm glad you found this active discussion thread. I moved your previous message about your BMD scan and starting treatments here too.

Did your doctor discuss non-medical approaches to managing osteoporosis at all?

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Can you give me directions for "taging" someone. I don't want to miss any posts about how to treat Osteoporosis naturally. Thank you so very much !!
I really appreciate all of the information I now have access to !!!
I am very grateful for this help !

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