Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@billie3

you can get a good description/explanation of the new Echolight technology/device that uses ultrasound rather than radiation (like the DEXA machines use) by typing (in a google search box)- will the new ultrasound device replace DEXA bone density testing Once there you can read an article from Apr 2021 by Dr. Susan E. Brown. might also find this article on her Website- betterbones.com

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Thanks, I'm going to look into it. My doctors are all at the local Cleveland Clinic, and, as with Mayo and other top institutions, it tends to stay with state-of-the-art equipment.

This is ditto-ing mentors and others in these threads who lobby for people to try to get affiliated with a medical facility, associated with a medical school or otherwise with a 'depth on the bench team and research-commitment.

It was by sheer accident that I needed to find a new PCP last September. Called CC on Friday, had an appointment the following Monday with a doctor three friends now go to as well. From the time of the first call to annual routine mammo to Uh-Ohh bad news, biopsy and lumpectomy was less than 5 weeks. That was the only thing that was a great relief. If I'd had to interview a surgeons, Radiologists, oncologists, etc., this would have been a much harder path.

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I found a website about osteopenia interesting. The site was started by an academic who found herself dealing with bone density loss and approachef it like ant other research project. The site is free and she says that she and others have in fact slowed down or reversed bone loss. She suggests starting with the page addressing causes of loss of bone and work through the information on what seems to work to reverse or slow that down. As always, don't accept everything as a permanent truth since science is still working on how to do this, but it's a good overview. And she mentions some things that are frequently over looked like proton pump inhibitors which several studies link to bone loss. The website URL is below:

osteopenia3.com

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@callalloo

I found a website about osteopenia interesting. The site was started by an academic who found herself dealing with bone density loss and approachef it like ant other research project. The site is free and she says that she and others have in fact slowed down or reversed bone loss. She suggests starting with the page addressing causes of loss of bone and work through the information on what seems to work to reverse or slow that down. As always, don't accept everything as a permanent truth since science is still working on how to do this, but it's a good overview. And she mentions some things that are frequently over looked like proton pump inhibitors which several studies link to bone loss. The website URL is below:

osteopenia3.com

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Following that author for years now. Site is full of ideas and good advice.

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@jmanj

Following that author for years now. Site is full of ideas and good advice.

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Oh, good. I actually spoke with her yesterday and she dealt with both osteoporosis, which she swears she and others have revversed, and breast cancer. She's very nice and happy to share what worked for her and others.

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@callalloo

This is exactly my concern! I have mild osteopenia, which I`m determined to do everything that I can to prevent progressing to osteoporosis, and maybe roll back to low osteopenia. So I've been reading about the various drugs for osteoporosis in case I have to decide on one someday.

But the big issue for me is that a DEXA scan gives very limited information. And the old bisphosphonates don't result in new healthy non-brittle bone being deposited. So what test(s) will yield real, valid measures of healthy, replicating bone? Since there's a lot more to the bone story than just thickness. Or, worse, just a picture of it.

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@artscaping

My dear @rashida, I will admit to you that I am considering stopping Prolia after 1 year which will be up in May. I am having some of the same reactions I had with Boniva and other bisphosphonates even though Prolia is not a bisphosphonate. Both my PCP and I are keeping an eye out for new information. She is researching Evista and I am researching Evenity. I read just last week that Evenity can now be taken for two years. Remember that Evenity does both jobs.......creates new bone and then protects it from being destroyed. If that is true, and we are just guessing, then you could do two years of Evenity ........then another what you call relay drug......then back to Evenity .......etc. etc.

I will see if there is anything more in the literature. If you find something mentioned about that possibility with Evenity, please post me here on Connect. I get so discouraged with the limited options available to those of us who are extremely sensitive to so many of the osteoporosis medications.

Other than that......get ready to enjoy springtime. Let's stay in touch.
May you have peace and contentment.
Chris

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Is anyone taking this as a supplement? Is it comparable to the ingredient in Bio-Sil? I would also appreciate info on which, if any, form(s) of strontium people are finding useful in bone health or protection.

I spoke with a woman yesterday who has a non-commercial website on reversing bone loss without pharmaceuticals and insists she reversed hers. She's now 86 and doesn't have osteoporosis so the analytical part of my brain wants to see if I can stop at mild osteopenia.
Or even improve bone. Have any of you done this without drugs? Thanks in advance...

Orthosilicic Acid Accelerates Bone Formation in Human Osteoblast-Like Cells Through the PI3K-Akt-mTOR Pathway
https://pubmed.ncbi.nlm.nih.gov/30421162/

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Yep, it is. It has that comparison grid so people can quickly see how the drugs differ. I'm really hoping to never need any of them but am keeping an eye on the choices.

A friend of my parents had to have extensive spine and hip surgery some years back and was in her late 80s. I remember that she had to see several consultants before winning an appeal for insurance coverage for it. But the thing that I remember most is that the surgeons had to first assure themselves that she was still able to grow bone. She was, they dud the surgery, it was successful, and she was walking paim-free after being unable to walk much at all.

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@callalloo

Yep, it is. It has that comparison grid so people can quickly see how the drugs differ. I'm really hoping to never need any of them but am keeping an eye on the choices.

A friend of my parents had to have extensive spine and hip surgery some years back and was in her late 80s. I remember that she had to see several consultants before winning an appeal for insurance coverage for it. But the thing that I remember most is that the surgeons had to first assure themselves that she was still able to grow bone. She was, they dud the surgery, it was successful, and she was walking paim-free after being unable to walk much at all.

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@callalloo - Awesome! Where does she live?

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@rashida

@callalloo - Awesome! Where does she live?

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She's passed on but was living in Californis. Unless you're talking about the osteopenia website, in which the owner lives in New York State and is fun to talk with, pleased to get the phone call and knows a lot. Including what she used when she had breast cancer some years back and the surgeon found no cancer despite a positive biopsy. I hasten to add that there are such things as false positive biopsies, but she said the surgeon said that biopsy was valid. Who knows, right? Pathologists frequently find evidence of cancers that begun and seem to just die off before reaching some critical mass. My mom's professor in med school lectured about examples of what used to be spontaneous healing as an example of how strong the human body if given the right environment.

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