Living with Neuropathy - Welcome to the group

Hi Beth - I had PN before chemo, and was already taking Gabapentin. The chemo made my PN worse, but only temporarily I’m glad to say. We increased my Gabapentin a little during that time, though I was already taking 3 a day. It sure helped with the night sweats and chills, and I feel it helped get my numbness and tingling back to pre-chemo levels. It took a few weeks to start working consistently though. I’ve yet to try a vibrator for numb feet.

The vibration on feet felt good but I found no real benefit personally.

Upcoming webinar from the Foundation for Peripheral Neuropathy...

FPN Webinar: Living Well with Peripheral Neuropathy: Q&A with Dr. Shanna Patterson
Thu, Apr 28, 2022 2:00 PM - 3:00 PM CDT

The Foundation for Peripheral Neuropathy (FPN) welcomes Dr. Shanna Patterson once again for a special webinar to answer YOUR questions on Living Well with Peripheral Neuropathy. Please join us for some first-hand answers to your questions from an expert on treatments, diet, exercise, mental health and other aspects of living with peripheral neuropathy.

Dr. Shanna Patterson, M.D., FPN’s Patient Education Advisor, is Assistant Professor of Neurology at Mount Sinai West in New York City.

Register for the webinar: https://register.gotowebinar.com/register/7607998562795615499

Do you need to register to view the questions and answers? I am interested in the end stages of PN. Both my father and sister lost the ability to feed themselves and the ability to speak.

Have you tried Kratom? It has knocked down my pain from a 10 to a 3. Taken correctly it’s amazing and comes from the coffee family. There’s a lot of bad info out there because the Big Pharmacy folks don’t want people to stop taking their drugs. You can get more information on Kratom from the National Kratom Foundation. Is safe, non addictive and it has no side affects. My physician suggested this and I will always be thankful it’s saved my life.

@lecowing - The Living Well with Peripheral Neuropathy: Q&A with Dr. Shanna Patterson webinar will eventually end up on their website but if you want to participate in the live Q&A session and ask any questions you may have via a chat window, you need to register and they will send you a link that you so that you can join the live session.

You also might want to look through the following websites to learn more about neuropathy, the symptoms, treatments, prognosis and outlook.
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Resource Library - Foundatiion for Peripheral Neuropathy: https://www.foundationforpn.org/resource-library/

Interesting but really no discussion of the end stages of PN.

I think the end stages really depend on the diagnosis and which nerves are affected. I have no medical background or training but have done a lot of research on my own condition after my neurologist basically said there are no treatments for numbness just let us know if it gets worse.

This basically sums it up... "Is neuropathy life threatening?
Symptoms can range from mild to disabling and are rarely life-threatening. The symptoms depend on the type of nerve fibers affected and the type and severity of damage. Symptoms may develop over days, weeks, or years."
--- Peripheral Neuropathy Fact Sheet: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Peripheral-Neuropathy-Fact-Sheet

In an ncbi.nim.nih article it says lowering triglycerides slows the progression. And also supplement ALA was the only supplement show to help.. the number of the article was PMC4239691

Terrible pain keeps me from sleeping. Is there anyway one with a pacemaker can have treatments for neurophy.