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9 year old with daily headaches, memory loss, and vision changes
My 9 year old son is 3 months post COVID and has been having daily headaches, vision changes, and memory loss. It started with double vision Jan 26th and has progressed to daily headaches and memory loss. He’s been unable to attend school since Feb 9th. We’ve been to multiple doctors with no answers. Anyone else’s children experience anything similar post COVID?
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Welcome, @jwright4981. I've added your message to the Post-COVID Recovery & COVID-19 support group too (https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/).
I'm so sorry to hear that your son is going through this. It must be so confusing for him and heart-wrenching for him. While this expert blog post was written with adults in mind, I think the tips from Dr. Van might be helpful for you and your son:
- Early Care Tips for COVID Longhaulers https://connect.mayoclinic.org/blog/post-covid-recovery/newsfeed-post/early-care-tips-for-covid-longhaulers/
Do you find that he has good moments and then crashes? Do you have access to a specialty Post Covid Care Clinic?
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1 ReactionI know this is a very late response but I just came across this. I'm a 23 year old male and about 2 years ago I woke up and something was off with my vision and had bad brain fog. Being more specific, it felt like my eyes didn't work together properly. I tried vision therapy and prism lenses but those didn't help. I have recently been diagnosed with long haul covid and doctors believe that is causing my symptoms. Has anything helped your son, as it sounds very similar to me?
Same, your superior and/or inferior nerve was attacked by covid (or some other virus) causing vestibular issues. Did you do VNG tests and or visit ENT's?
Since you've been having this for 2 years, did you sense any improvement after the first year or no change since it all started?
Yes I have gotten done about every test out there. They stated that my VNG tests and everything else mostly look normal. Currently I haven’t really noticed any changes in my symptoms.
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1 ReactionFrom my experience (10+ Hospitals), ENTs will perform standard tests that will not properly diagnose you. They usually do not perform tests to check all canals within all the frequency ranges due to
1. Absence of proper equipment (or know-how)
2. Loss of potential revenue when referring to properly equipped clinics/hospitals
3. ENT's usually look for Bppv or menieres disease and fail to understand uncommon vestibular deficits
Do you remember every single test you did ? Do you have slight, severe or no imbalance with your vision issues?
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1 ReactionNo i don’t remember every test they did. And I don’t have imbalance issues either.
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1 ReactionTo eliminate any vestibular issues related to your vision, it is best to list all the tests taken. Like I said, ENT's will usually look for BPPV (approx. 90%+ of patients) and write you off as normal when in fact there could be uncommon vestibular deficits that are resulting in your vision issues.
Is the vision problem episodic or constant?
My vision problem is constant, it’s always there.
Since its constant, it is very likely it could be attributed to a vestibular disorder . You need to look into your paperwork or just request the following test as a start
1. vHIT test (not to be confused with the SPEM test which is a standard bppv test that ENT's use). They are very similar and both use goggles & an led light, however they are 100% different.
2. Do you remember if they put air or water in your ear? was this done? if not, this is called a calorics test
I remember they put air into my ears!