Migraine headache: What helps you cope?

Posted by mahmoood2003 @mahmoood2003, Dec 10, 2019

I had one patient had sever migraine attack for more than 5 years, become worse last year making all investigation , blood test all negative.
Nowdays migraine more when eating bread, corn, some food. I tried most pain killers no benifit

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@mikaylar

None of them worked for me.
Mikayla

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I'm so sorry to hear this. Have others? Do you get migraines often?

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@gcranor

Does UBRELVY have a injection (maybe once a month)!

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I have no idea.

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@merpreb

I have no idea.

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I am interested in prevention and help if there is a breakthrough without taking pain meds

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@merpreb

I'm so sorry to hear this. Have others? Do you get migraines often?

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Mine is a daily persistent headache every day/all day for 2 yrs/8 months. I also have minor migraines with aura. Treating at Jefferson Headache Center in Philly for years. They can't figure it out. Does anyone else have NDPH?
Mikayla

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@mikaylar

Mine is a daily persistent headache every day/all day for 2 yrs/8 months. I also have minor migraines with aura. Treating at Jefferson Headache Center in Philly for years. They can't figure it out. Does anyone else have NDPH?
Mikayla

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Oh, mine are bad but not every day. I began getting migraines everyday for a medicine that was horrible. Now I'm off of it.

I'm sure that you have done a lot of research. Migraines and headaches are poorly understood but there have been several possible reasons. It seems that NDPH can last a minimum of 3 months and it looks like you have surpassed that!

WHat is the clinic doing for you? Have you learned any controls yet that you can share?

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@merpreb

Oh, mine are bad but not every day. I began getting migraines everyday for a medicine that was horrible. Now I'm off of it.

I'm sure that you have done a lot of research. Migraines and headaches are poorly understood but there have been several possible reasons. It seems that NDPH can last a minimum of 3 months and it looks like you have surpassed that!

WHat is the clinic doing for you? Have you learned any controls yet that you can share?

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@kjs1964 Acupuncture does help with migraines, I go to one for years for chronic pain etc. I have not had migraines but I know of a lot of patients who go to the clinic are very thankful for the relief they receive and drug free.

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Hello to all who are searching for migraine answers and relief. I feel your struggles and want nothing more than to help in any way I can.

Although, I very much want to provide you the name of a wonder drug, shot or procedure that helped me, I can not. Ultimately, they all failed. I may seem like a broken record by offering self-help tools that worked for me, and yes it was all obtained by going to Mayo's Pain Rehab Center and working very hard for 3 weeks. I realize how fortunate I was to have had the experience, and realize that not everyone is able to have the opportunity of going to a pain rehab center, nor can they handle the rigorous program. This is why I mentor, to be able to offer my experience and tools from the program to those who want options beyond medication, after they experience the merry-go-round of failed attempts of searching for a fix or cure. I certainly had to learn that way too.

For those who have found help with meds, procedures, shots...I am extremely happy for you. For others, I provide you what has worked for my migraines. Since following a disciplined schedule and lifestyle change, I have reduced my migraines to occasion happenings and have the tools to manage them effectively. I am in control of my pain, not the other way around. It's a never ending job, and I never said it was easy, but worth every bit of effort.

Here are a few tips you may find helpful for self-management of migraines.

- Omit pain behaviors which is anything you do, say, or think that reminds you of pain. This accesses your pain pathways and tells your brain you have pain. The goal is to down play your pain and not give it more life.

- Get in the daily habit of practicing diaphragmatic breathing so that it becomes natural and not just used when you need it for symptoms. This way it will be easier when you are in a migraine flare and really need it to calm your sensors, nerves and muscles.

- Understand and apply mindfulness. The brain creates pain therefore it has the ability to quell pain. Be present, be in the moment, focus, concentrate.

- Meditation. Relaxation from head to toe. Learn how to loosen your jaw, drop your shoulders, open your hands. Find your quiet space, but practice so it becomes habit and use it wherever, whenever.

- Omit or reduce stressors by practicing stress management and learning ways to reduce tension, anxiety and distress.

- Proper nutrition (avoiding trigger foods)

- Practicing good sleep hygiene allows the brain and body to regenerate.

- 5 P's – Pause, Process, Perspective, Patience, Plan.

- Positive self-talk, know that you have gotten through hard times and migraines before and you will get through them again.

- Graded exposure to triggers.

- Positive distraction to take your mind away from symptoms

Even if you start by incorporating one tool at a time and slowly adding another, to build your tool box. Lifestyle changes are huge. Once I found my power and knew I could be in control, not the doctors, not the medication, it was a game-changer for me, and my family.

Please let me know if you have any questions. I'm happy to help.

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@mikaylar

None of them worked for me.
Mikayla

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@mikaylar Me neither, Mikayla.

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@merpreb

I did find it, Rachel but since I'm on Medicare it's a 3 tier medication. Maybe it will drop in another year or so. Thank you for the link!

What do you do for them?

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I found incredible discounts on GoodRX.com, just put in the med name on the front page and it will show your local costs at local pharmacies. How about a $1,000 to $100.00. You do not have too sign up for anything, just print out the rates and go.

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@pwgrimes

I found incredible discounts on GoodRX.com, just put in the med name on the front page and it will show your local costs at local pharmacies. How about a $1,000 to $100.00. You do not have too sign up for anything, just print out the rates and go.

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Thank you so much @pwgrimes, I will definitely give this a shot!

Merry

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