1. < Brain & Nervous System

Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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loveofdogs | @loveofdogs | Mar 25, 2022
In reply to @sheeva888 "Has anyone with internal tremors been diagnosed with or researched Stiff Person Syndrome? I get internal..." + (show)
@sheeva888

Has anyone with internal tremors been diagnosed with or researched Stiff Person Syndrome? I get internal tremors often and this is what I have.

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Hi! I have internal tremors too. How long have u had them? Did the dr give u anything to stop them?

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1 reply
sheeva888 | @sheeva888 | Mar 25, 2022
In reply to @loveofdogs "Hi! I have internal tremors too. How long have u had them? Did the dr give..." + (show)
@loveofdogs

Hi! I have internal tremors too. How long have u had them? Did the dr give u anything to stop them?

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I take Diazepam, Gabapentin, medical marijuana and IVIg every 5 weeks (3 days each time). Were you diagnosed with Stiff Person Syndrome?

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2 replies
Mentor
Rachel, Volunteer Mentor | @rwinney | Mar 27, 2022
In reply to @hockeyguy13 "No, things almost seem worse." + (show)
@hockeyguy13

No, things almost seem worse.

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@hockeyguy13 In what ways are you trying to help yourself during this rough patch? Do you speak with a counselor?

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1 reply
hockeyguy13 | @hockeyguy13 | Mar 27, 2022
In reply to @rwinney "@hockeyguy13 In what ways are you trying to help yourself during this rough patch? Do you..." + (show)
@rwinney

@hockeyguy13 In what ways are you trying to help yourself during this rough patch? Do you speak with a counselor?

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I’ve just try to keep busy, but it’s hard. Feels like I’m stuck in the same day. Not seeing a counselor right now.

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1 reply
loveofdogs | @loveofdogs | Mar 27, 2022
In reply to @sheeva888 "I take Diazepam, Gabapentin, medical marijuana and IVIg every 5 weeks (3 days each time). Were..." + (show)
@sheeva888

I take Diazepam, Gabapentin, medical marijuana and IVIg every 5 weeks (3 days each time). Were you diagnosed with Stiff Person Syndrome?

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Hi Sheba,
My gastroenterologist said it was anxiety! I think anytime these drs don’t know they say it’s anxiety. What is Stiff Person Syndrome?

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1 reply
sheeva888 | @sheeva888 | Mar 27, 2022
In reply to @loveofdogs "Hi Sheba, My gastroenterologist said it was anxiety! I think anytime these drs don’t know they..." + (show)
@loveofdogs

Hi Sheba,
My gastroenterologist said it was anxiety! I think anytime these drs don’t know they say it’s anxiety. What is Stiff Person Syndrome?

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It is a very rare neuroautoimune syndrome that causes muscle spasms. It is very disabling but is different in each patient. I know that internal tremors are very common with SPS. There is a lot of anxiety that comes along with a diagnosis of SPS, so perhaps your doctor is not completely off.

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andrews65 | @andrews65 | Mar 28, 2022
In reply to @rwinney "@andrews65 Hi there. It must be frustrating to feel such intenseness. Do you use any techniques..." + (show)
@rwinney

@andrews65 Hi there. It must be frustrating to feel such intenseness. Do you use any techniques to calm your mind and body during the episodes?

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I try but it doesn’t do any good. The shocks in my head is horrible. Everyday all day long. I can’t take it. It drives me nuts.

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Mar 28, 2022
In reply to @andrews65 "I try but it doesn’t do any good. The shocks in my head is horrible. Everyday..." + (show)
@andrews65

I try but it doesn’t do any good. The shocks in my head is horrible. Everyday all day long. I can’t take it. It drives me nuts.

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@andrews65 Ugh, after 2 years I can see how it would drive you nuts, I'm so sorry. How has your neurologist treated your internal vibrations? Do you take nerve medication and has it helped any?

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hannah27486 | @hannah27486 | Apr 9, 2022
In reply to @crankyunicorn68 "I have been experiencing tremors, internal vibrations, trouble walking and talking. I've got to get a..." + (show)
@crankyunicorn68

I have been experiencing tremors, internal vibrations, trouble walking and talking. I've got to get a second opinion because my neurologist doesn't think it's anything to worry about. I have RA, Fibro, MCTD, and other things. I'm thinking MS because I have never heard of the other diseases cause this trouble. Any ideas?

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Hi did you ever find an answer to your symptoms? I could be B12 deficiency.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Apr 9, 2022
In reply to @hockeyguy13 "I’ve just try to keep busy, but it’s hard. Feels like I’m stuck in the same..." + (show)
@hockeyguy13

I’ve just try to keep busy, but it’s hard. Feels like I’m stuck in the same day. Not seeing a counselor right now.

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@hockeyguy13 Hey there, what's new? I understand the fact that having symptoms is hard, and what it's like to feel stuck in the same day. Heck, I just told my husband the other day that some days I feel like I'm treading water in the deep end.

I don't recall if you mentioned work. I know you mentioned working out, but do you have a job, are you able to work? I allowed myself to be in that stuck space for a while, but ultimately realized that I was the only one who get myself out of the negative cycle. It takes continual work to pull yourself out of the deep end. It's ok to tread water for a little, but you can't stay there forever...too much good life out there to grab. What are you doing that is fun or positive for distraction? What joy have you found lately?

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