Connect
Bronchiectasis what are the stages and symptoms
I was diagnosed with bronchiectasis about the time that Covid hit the US and the pulmonologist are overworked, so I have lots of unanswered questions. I also am taking Bisoprolol Fumarate 2.5 mg (a beta blocker) for heart issues. This is the 3rd cardiac med that has been prescribed in hopes of finding something that works with heart and does not interact with pulmonary meds.
Is there away to shorten the time of treatment?
1. Will I have to spend 3 hours 2 X a day for the rest of my life with nebulizer treatments, smart vest, gargles and nasal washes?
2. Is there anyway to shorten the time of nebulizer. (I have been prescribed (a) Levalbuterol which I can not use because it makes breathing more difficult (b) Sodium Chloride 7% (c) Budesonide all by nebulizer.
I use Aerobika and Smart Vest at intervals during nebulizer treatment.
Like
Helpful
HugInterested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Connect
Last year I attended this conference and learned so much. I recommend it, but note that the time is European. I watched the taped version. I’ve copied the link below.
I am delighted to let you know that we are running another Bronchiectasis Patient Conference with a focus on treatment and self-management on Sunday 27 March from 10:00-16:00 CET (09:00-15:00 GMT). The event is free and you can explore the programme, speakers and register at https://europeanlung.org/en/get-involved/events/bronchiectasis-patient-conference-2022/
-
Like -
Helpful -
Hug
2 ReactionsSorry, took so long to get back. But I do want to share that the Pari Vios with the LC sprint cup has cut nebulizing time in half and doubled the amount of sputum (along with airway clearance). I've tried the Aerobika attached a couple of times, and found it not worth the time savings. Aerobika and a yoga "bridge" to follow and lungs clear pretty fast. Since ya'll have been talking about once a day 7% saline, I have switched to once a day. It has definately helped my work day (don't have to wake up so early). About once a week, I add the second nebulizer treatment. So far , so good. Always thankful for good advice. Hope to add to the "experience pool" whenever I can.
I have asthma with a recurring mucus component and I take NAC. All of my sources have dried up (out of stock). I read that because this supplement is so popular that the US government is cracking down on it and looks for regulate. I hear that Amazon has pulled it altogether. Frustrating as it helps me a lot. My other source says “out of stock” on everything.
I have had Bronchiectasis MAC for two years now. I have been nebulizing with 7% saline and budsonide
.3% two times midmorning and nite. And exercises to get sputum clearance. Last nite right after dinner I felt like coughing and I was surprised that I was expelling quite a bit of blood. Even expelling some from my nose. After awhile it subsided and I did my evening nebulizing and went to bed after 3 hrs. When I woke up this morning I did have some blood/mucus and much less to just bits of blood.
This happened when I first was diagnosed. At that time my pulmonologist wasn't too worried and put me on the nebulizing that I currently do. Has anyone experienced blood when trying to remove sputum? So far I seem to control my MAC with the routine that I do. Hal
Sorry Hal have had it too.when there is a bleed I stop treatment for awhile.I use 3% instead. A couple of tablespoons is tolerable. Good luck. Rita
Sue ,I am interested in your discussion on Pari. I am doing fine with Aerobika and my nebulizer,but what do you think of me switching to Pari. Reminder,had bleeding occurrences in the past and have switched back to 3%. Rita
Thanks Ritapearl for your comment. I am switching to 3% at nite. Still 7% in the morning. Today coughing has some blood then way less as I nebulized. Sort of a mystery as to when it show up in such an intense way, then goes away. Soon Ill see my Doc and perhaps he can explain. My experience is telling me that acid reflux has a big part of our condition. Wishing you well
Hal
Well, things do change! My daughter convinced me to try the Philips Innospire Go, and I am hooked. It takes me from 4-5 minutes to (silently) inhale my saline. A charge lasts nearly a month, and I can easily take it anywhere with me. Old Green is sitting sadly on his shelf. The mist from the Innospire is so fast & fine that I no longer need the Aerobika to bring up mucus. I will hand on to it as a backup, but anticipate the Innospire working for my grands as well.
Sue
-
Like -
Helpful -
Hug
2 ReactionsI am a newcomer to this Blog. I have been diagnosed with Bronchiectasis about 10 years ago. I have since changed to another Pulmonologist who has prescribed an Inhaler with Flovent HFA 220mcg twice daily. While using this I have had many flare-ups. I have finally asked the doctor to change to a "drive Power Neb Ultra" using Albutrol Sulfate Inhalation Solution 0.083% 2.5mg. I also have a MAC colony at the bottom of my lungs and have had Pseudomonas. The nubulizer is incredibly loud, I use it once a day and cough several times while using it. Is saline solution better to use? Is there a better practice to try? I am still coughing quite a bit. I have had a ClariFix procedure in my nasal passages which was supposed to stop my nasal drainage which has always been extensive since birth. This procedure has helped to eliminate the drainage but I am coughing quite a bit at night also get spells during the day. ANY RECOMMENDATIONS???? Thank You!!!
Welcome, @duchessl. Allow me to tag a few members, like @sueinmn @ritapearl @raney @thumperguy @rits, who may have some recommendations for you and experiences to share.