Anyone had a successful experience w/ Mayo Pain Rehabilitation Center?

Posted by swimbikerun @swimbikerun, Mar 17, 2022

Just wondering if anyone has had success with the Mayo Pain Rehabilitation Center program? That seems to be the direction my dr's are moving in but there are aspects of it that give me pause. For instance, the idea of discontinuation of pain meds. The strongest meds I'm on is Tylenol so a focus on this would not be very beneficial for me.

If anyone can share their experiences positive or negative with the 3 week rehab program I would greatly appreciate it. Also, is Mayo the only/best option? It requires travel for me with 3 weeks of hotel/etc expenses so would nice if there were other options closer to home.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Rachel, Volunteer Mentor | @rwinney | Mar 17, 2022

Hello @swimbikerun. Yes, I graduated Jacksonville's Pain Rehab Center (PRC) and have had success. It was the best thing I could have done for myself in learning how to live with a chronic pain syndrome. Mayo Clinic is world-renowned therefore I believe it is the best of the best and was the only option in my mind. I traveled and stayed in a hotel for 3 weeks. It was a big commitment, but one that I have no regrets making.

You may find this conversation helpful:

Questions About Mayo Clinic Pain Rehab -
- https://connect.mayoclinic.org/discussion/status-of-mayo-clinic-pain-rehab-program/

Discontinuing medication is one aspect of the pain rehab program. There is much more to rehabilitation, both physically and mentally, and Mayo does a phenomenal job covering all bases.
Here's info on PRC:
- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691

I noticed you had planned a trip to Jacksonville March 7th. May I ask if you have met with Mayo doctors? Are they who is moving you in the direction of pain rehab?

swimbikerun | @swimbikerun | Mar 18, 2022

In reply to @rwinney "Hello @swimbikerun. Yes, I graduated Jacksonville's Pain Rehab Center (PRC) and have had success. It was..." + (show)

Yes, it is Mayo doctors who are suggesting the pain rehab.

Rachel, Volunteer Mentor | @rwinney | Mar 18, 2022

In reply to @swimbikerun "Yes, it is Mayo doctors who are suggesting the pain rehab." + (show)

@swimbikerun May I ask what symptoms you struggle with?

skeleton | @skeleton | Mar 18, 2022

Thanks for sharing this. I can only take Tylenol without nausea and vomiting. I wish 24/7 healing on you.🙏🤗
Skeleton

swimbikerun | @swimbikerun | Mar 19, 2022

In reply to @rwinney "@swimbikerun May I ask what symptoms you struggle with?" + (show)

Pain in lower rib area that prevents activity. Have gone from someone who runs 1/2 marathons to someone who can’t walk 10 minutes without debilitating pain.

Rachel, Volunteer Mentor | @rwinney | Mar 19, 2022

In reply to @swimbikerun "Pain in lower rib area that prevents activity. Have gone from someone who runs 1/2 marathons..." + (show)

@swimbikerun I'm sorry, that sounds awful. I understand what it feels like to lose something important. With perseverance, hope and positive thinking, the goal is for you to run again. I believe you will!

Did the pain appear out of nowhere or can you, or doctors, pinpoint a cause or particular happening?

jgroudan | @jgroudan | Mar 20, 2022

In reply to @swimbikerun "Pain in lower rib area that prevents activity. Have gone from someone who runs 1/2 marathons..." + (show)

It sounds like you might be suffering from Abdominal Cutaneous Nerve Entrapment Syndrome (ACNES). I recommend you do the Carnett test (watch video on youtube) and find a pain management doctors who will give you trigger point shot(s) to that area. It that knocks out the pain (only temporary) you have ACNES. I had a terrible case last year. After nine months of suffering I was fortunate to find Dr Thomas Gillespie at St Joseph's Medical Center in Phoenix AZ who performed Robotic Laparoscopic Surgery cutting my T8, T9 and T10 nerves - lower right rib cage. I went home CURED that same afternoon. Now, just a distant memory. Dr Gillespie takes new patients. I was totally covered by Medicare.

kdpetti | @kdpetti | Mar 20, 2022

Yes yes ACNES!!!

Amanda Roe | @amandajro | Mar 23, 2022

Hello @swimbikerun. If you are interested in exploring ACNES further, I would invite you to join this existing discussion:

– ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome:
https://connect.mayoclinic.org/discussion/acnes-abdominal-cutaneous-nerve-entrapment-syndrome/
To come back to your original request regarding Pain Rehabilitation Center (PRC), what else would you like to ask about? Have you submitted an appointment request to attend the PRC program?

swimbikerun | @swimbikerun | Mar 23, 2022

In reply to @amandajro "Hello @swimbikerun. If you are interested in exploring ACNES further, I would invite you to join..." + (show)

Thanks @amandajro . Just recently recommended after a couple visits. Would really like to hear from others who have attended to get their perspective.