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Anyone had a successful experience w/ Mayo Pain Rehabilitation Center?

Posted by swimbikerun @swimbikerun, Mar 17, 2022

Just wondering if anyone has had success with the Mayo Pain Rehabilitation Center program? That seems to be the direction my dr's are moving in but there are aspects of it that give me pause. For instance, the idea of discontinuation of pain meds. The strongest meds I'm on is Tylenol so a focus on this would not be very beneficial for me.

If anyone can share their experiences positive or negative with the 3 week rehab program I would greatly appreciate it. Also, is Mayo the only/best option? It requires travel for me with 3 weeks of hotel/etc expenses so would nice if there were other options closer to home.

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chrisanon | @chrisanon | May 27 2:36pm
In reply to @rwinney "Good for you! Way to be your best advocate and look to make change. While I..." + (show)
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Good for you! Way to be your best advocate and look to make change. While I highly recommend going to the PRC and immersing yourself in the program with a medical team and peers, nothing compares to the experience in person, I get that it may not be attainable for some.

Even if you never get to the program, I believe doing what you're doing by opening yourself up to learning and knowledge is giving you a great advantage.

Understanding that "hurt doesn't equal harm", (in chronic cases) is a huge revelation and it sounds like you're doing a fantastic job of paying attention to the areas that you can grow and make changes in.

If you're interested, I can try to put my finger on what's called Family Day videos from the pain rehab program. These are recaps of each of the three weeks of classes that get shared with families of patients attending. They are full of excellent, valuable tools. Would you be interested in watching them?

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I would be very interested! Thank you for this post. I'm in for a long painful recovery from complex posterior surgical surgery (laminotomies and foraminotomies, etc.

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Rachel, Volunteer Mentor | @rwinney | May 28 6:14pm
In reply to @kmdenton33 "Yes! That is so kind of you! I would definitely be interested in that! :)" + (show)
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Yes! That is so kind of you! I would definitely be interested in that! 🙂

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Hi all @kmdenton33, @chrisanon, @stindell

As promised...

PRC Family Day video Week 1:

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Mentor
Rachel, Volunteer Mentor | @rwinney | Jun 7 9:46am

Hi there @stindell, how are things going for you this week?

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4corazon | @4corazon | Jun 8 5:23pm

I went through it but it was not the right thing for me. They tried to get me to do things that actually caused me more pain (pushing through different exercise). I have Myalgic Encephalomyalitis, similar to CFS but encompases a lot more, like PEM (Post Exertional Malaise) so we are taught NOT to push through, rather to PACE, which works better for me. I do still have to take pain meds sometimes.
People were nice, just not the best thing for me.

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