Hi Glen (@glenjunderwood),
I have read several accounts from other members where they experienced a different level of pain relief from the temporary implant and the permanent implant. I'm tagging a few members like @sbrown293 @martyk @marieh @pusher @scruffy1 @dogsma @chefmike2010 @lifetimepain @jimhd who have experience with spine stimulators, some of whom had the Nevro HF10.

While we wait for others to join in, here's a list of related discussions on Connect that you may wish to review and ask questions to specific members.
– Implantable neurostimulator for chronic pain https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/
– Has anyone one tried the HF10 Spinal Cord Stimulation Device?: https://connect.mayoclinic.org/discussion/hf-10-spinal-cord-stimulation-device-relieves-back-and-leg-pain/
– Spinal cord stimulation: Will Nevro help when Medtronic didn't? https://connect.mayoclinic.org/discussion/nevro/
– Has anyone had the Stimwave spine stimulator installed? https://connect.mayoclinic.org/discussion/has-anyone-any-had-the-stim-wave-installed/
– T.E.N.S. for spinal stenosis pain https://connect.mayoclinic.org/discussion/t-e-n-s-for-spinal-stenosis-pain/
- Anyone used Spinal Cord Stimulation for pudendal nerve entrapment? https://connect.mayoclinic.org/discussion/anyone-experienced-in-using-scs-for-chronic-painb/

Glen, it sounds like you are working with the company representative. How often do they adjust the settings? What options have they suggested?

I've been going to the Pain Clinic once a month to meet with my Dr. and Nevro Rep. , She has had me adjust my at home control every two days but so far no relief. My Dr. has suggested cauterizing an exposed nerve that he discovered after he had me undergo a CT scan a month and a half ago. He's also mentioned a series of shots that could help with the pain. I've got all the confidence in the world in these two professional personnel and keep praying for better results that I know will come eventually. Thank you for replying!

Glen, I had my Nevro implanted in November 2021 and have experienced the same situation as you have. They have tried multiple programs on me to no avail. I have met with the Nevro reps on multiple occasions to try and find the correct setting to get some relief. Like you, my trial worked wonderfully but with the permanent implant only a very slight relief. I am determined to make this work as I believe it will help bring relief to my legs and lower back. They tell me not to give up or be frustrated as they have so many programs to work with so I will keep at it.

Hi Glenn,
I had the DRG spinal cord stimulator implanted after a fairly successful trial. ABBOTT folks adjusted it for about 5 months, and I started to feel electricity running through me that made pain even worse. I never had a successful adjustment in spite of trying easily a half dozen times or more. I shut the darn thing off. Now I have an inactive stimulator and battery in me. Frankly, I rarely hear success stories about any kind of stimulator. I wish you well, and hope they find an adjustment that works for you. Lori

The same thing helped to me only in my cervical spine several years ago. My Nero stimulator was programmed, adjusted and reprogrammed dozens of times but I never got any relief from it.
Come to find out the leads had came off. My stimulator was removed a few years ago because I needed another surgery. My neurosurgeon wants to put in another neuro-stimulator for my neck but I’m afraid I’ll go through the same thing again.

I have a drg stimulator for abdominal nerve damage from undiagnosed mals. The trial was 75% pain free and after 4 months, I’m only getting 35-40% ( which is better than nothing) but I’m sad that the trial gave me false hopes.

I think it depends very much upon the procedure used to implant the device, to make it work like it did during the trial!
When my device was implanted, they woke me up from my anesthesia, to check on the proper electrode positioning. They moved the electrodes until i could confirm that I was free of pain. Once this was established, anesthesia was reapplied and the final surgical procedure was finished.
A week later, I started to work with the technician to establish the optimal adjustment of the handheld control unit.
This device allowed me to become a normal member of society again instead of a person who could hardly move because of all the pain.

A neurosurgeon recommended the Boston Scientific Spinal Cord Stimulator. My research is beginning to show, it is a good choice.

No for Metronic’s stimulator, for me it did not help.

I've had two facet injections, and an ablation (both with limited success. PT and subsequent exercise causes a significant increase in pain generated from a compressed L3 nerve. I have a iRelieve tens unit which has had very limited results; how similar are the results of a SCS, which I have already been cleared for as the nest step.
A problem for me is that my Pain management doctor wants to move forward, but my spinal surgeon wants to insert a rod, and screws, and advises against the SCC. (UGH disagreements). My PCP sides with the pain management doctor. (The spine surgeon has operated n my back in the past), A conundrum.