Klonopin taper - any suggestions?

Posted by dawgbone @dawgbone, Jul 31, 2017

I have been on some kind of benzo for almost 40 yrs. I am trying to taper from 1.5-2 mgs of klonopin daily . Began in mid may 2017 and my last cut was very small on 7-2-17 to get to 1mg. Honestly feels like i am dying. I also take trazodone 75 mgs and 4 drugs for high blood pressure. I have been researching gabapentin and seroquel to help with the withdrawal symptons. Please offer any suggestions or help. I am 69 yrs old and cant even leave my house to visit my kids and grands. Thank you for any help!

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Profile picture for laurine7 @laurine7

I am so sorry to hear of your absolutely terrifying experience while withdrawing from Klonopin. Many times I told my Dr. I was a happy, healthy, social person before stopping Lorazepam after taking at least 10 years. I was put on Klonopin to withdraw from Lorazepam 6MG. I am 9 months into the tapering from .5 to now 1/2 of .125. I cannot believe your Dr. had you withdraw so quickly. I still have tremors in my mouth and jaw but am so happy I have gotten this far. I have to say tho every morning I worry about what my body is going to do to me. Definitely my body turned against me. I lost my hair, went down to 106 pounds, my skin still hangs off my bones. One week ago all of a sudden my upper and lower gums were all swollen (not bleeding) and were receding. I won't belabor the side effects. I'm now a JUNKIE reading and researching Benzodiazepines and wish there was something I could do to get them off the market. I had never heard the word Benzodiazepine 10 months ago, I knew the word Lorazepam that's all. Many websites say you can have side effects for many, many years. Also, all have said you need a Psychiatrist not a GP to help with the withdrawal, although not all are really familiar with withdrawing from Benzodiazepines. I just do not know what to say, you are still suffering and it's a sin what has happened to you. Sounds like you are still having withdrawals, those are many of the symptoms. I cannot believe there is nothing out there that can help you. I will get back to you if I hear any successes with new trials. Keep up with connect.mayo, it is my new best friend. By the way you were not on a slow taper which research says is a must. Go on Line to Ashton Manual on Benzos.org. This will give you knowledge and hope. Laurine

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I’m sorry that anyone has had to experience this type of withdrawal.
I applaud anyone that has refused to let any drug or individual dictate what you are going to allow to rule your life.
NEVER give up on yourself!!!

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Profile picture for laurine7 @laurine7

I don't know why she told you she could lose her license if she prescribed Oxycodone, they give it to you after surgeries today. OxyContin is off the market, I believe. I am in California and Marijuana is not illegal. I can't believe she yelled at you, very unprofessional. Look up what you were prescribed on line. Read what is out there about her losing her license, print a copy and send it to her. The pharmaceutical company that marketed it to Doctors just lost a multi billion dollar lawsuit to all the families who were lost taking Oxycontin. What state do you live in? Can you get CBD OIL to rub on you anywhere. That has a really good track record and it is even recommended for dogs who have separation problems when their owners leave them alone at home. Good luck and keep the faith. The worst you have gotten through, getting off Oxy. sure a winner.

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Marijuana is illegal. The FEDERAL government has NOT legalized it. Perhaps California has special privilege and does not have to follow federal laws. I told people exactly what happened to me and the doctor that did this does not have good standing in the community or with other doctors. She has since quit and moved to parts unknown. She is a nut case.

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Profile picture for sears @sears

Perhaps Benzos should only be prescribed to seizure patients? Or doctors should follow the two week recommendation?

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Exactly, The Doctors are in control and I think after a few weeks they should let their patients know that it is very addictive and an idea of what you may go through withdrawing from. The cure for me was definitely worse than the disease.

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Profile picture for lindasmith1222 @lindasmith1222

Marijuana is illegal. The FEDERAL government has NOT legalized it. Perhaps California has special privilege and does not have to follow federal laws. I told people exactly what happened to me and the doctor that did this does not have good standing in the community or with other doctors. She has since quit and moved to parts unknown. She is a nut case.

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In many states Marijuana is legal. Google "Doctors prescribing Benzodiazepines" and " Doctors getting money from prescribing Benzodiazepines". An eye opener.

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Profile picture for mlmchem1 @mlmchem1

I had a similar experience after taking klonopin for 18 years. My doctor had me very slowly reduce the dose (0.5 mg every 3 weeks) but I had awful tremors, shaking and twitching movements anyway. At times the shaking was so violent that it made me fall out of bed. My husband would hold me down during the times when the shaking was at its worst. These shaking and jerky movements involved my entire body. Then I had my first, and only, panic attack. We were not prepared for any of this and felt lonely and very scared.. We went to the er one night but they heard about klonopin withdrawal, put me in bed in a hallway and ignored me. And no, they were not very busy. It was at 3a.m. and after 12 hours of these shaking and jerky movements and the panic attack I still have some tremors after 3 years and am on 2 meds to help control it. I had bad headaches and nausea too. I would still be taking the klonopin if I had known it would be like this. I'm sorry I took it at all. But for me, the outcome was not worth what resulted.

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I'm so sorry you had to go through this. I've been on Klonopin 2mg for 16 years and I want to get off of it. I recently went down to 1mg and would like to detox but I'm 53 and am in Menopause, have Chronic pain, and now suffering from severe Restless leg syndrome. Plus I'm going through a divorce. I know the longer one takes Benzos, the harder it is to get of them. When you got to .125 mg did you stop and how long were you at that strength? I know my psychiatrist won't taper me slowly with a compounding pharmacy. He's been a detox doctor and they detox with Phenobarbital and Clonidine and muscle relaxants. I've been in Rehab a few times and it's a course over a month.

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Profile picture for mlmchem1 @mlmchem1

I had a similar experience after taking klonopin for 18 years. My doctor had me very slowly reduce the dose (0.5 mg every 3 weeks) but I had awful tremors, shaking and twitching movements anyway. At times the shaking was so violent that it made me fall out of bed. My husband would hold me down during the times when the shaking was at its worst. These shaking and jerky movements involved my entire body. Then I had my first, and only, panic attack. We were not prepared for any of this and felt lonely and very scared.. We went to the er one night but they heard about klonopin withdrawal, put me in bed in a hallway and ignored me. And no, they were not very busy. It was at 3a.m. and after 12 hours of these shaking and jerky movements and the panic attack I still have some tremors after 3 years and am on 2 meds to help control it. I had bad headaches and nausea too. I would still be taking the klonopin if I had known it would be like this. I'm sorry I took it at all. But for me, the outcome was not worth what resulted.

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I'm very sorry to hear about your horrible experience. can I ask you at what dose did you start at when you began your detox?

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Profile picture for Evie @archermac15

I'm very sorry to hear about your horrible experience. can I ask you at what dose did you start at when you began your detox?

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After 18 years I was on 4-5mg per day. My doctor was not very happy about the fast detox but since I had just had 2 back surgeries in 5 weeks he knew I'd need pain meds for a couple of months. I had to get off the klonopin quickly.

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Profile picture for Jake @jakedduck1

@laurine7
“wish there was something I could do to get them off the market.”
I don’t understand why people are insistent on taking drugs off the market because they had bad experiences with them which is more often than not the person's own fault.
Not everyone has withdrawal problems. I withdrew off Klonopin with no problems. Although the medication wasn't helpful in controlling my seizures it is very helpful for many. Is it fair to want to deprive those patients who have fewer or no seizures?

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I agree, although the Doctors are in control of prescribing these drugs, and if you find one that is not getting a kick back from Pharma you are lucky. My case, the Dr was treating me for restless leg syndrome and I guess he thought I was having Seizures. GP Doctors are not schooled in these drugs and you need a Psychiatrist to be prescribing your treatment. How old were you and how long had your Dr prescribed Klonopin? I was Prescribed Lorazepam for almost 15 years and he never asked how I was doing, Just made sure I came to see him every month. He never treated me for RLS in the beginning only Migraines and neck problems. I definitely am culpable for my stupidity in not researching the drug. I had RLS SINCE MY EARLY 20's and all I could think of was "this is a God Sent" I can sleep now. Maybe we should be taking the Doctors off the market? Were you being treated by a Psychiatrist? You are the first person I have read about that had 0 problems when stopping them. Definitely makes a difference if you were prescribed for short term, which is what it is supposed to be for. Unfortunately, we trust our Doctors (blindly) and don't always read the warning from the Pharmacy given with the drugs. I always do now and only trust what I have researched. My friend is taking me to dinner tonight to CELEBRATE OFF BENZODIAZEPINES after almost 10 months of tapering. I'm even going to have a glass of wine, haven't had any coffee or wine for a long time. Am anxious to know what you were being prescribed Klonopin for, your age, and how long you were taking it. Would help many who are struggling. My best to you and your opinion matters.

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dawgbone,,,,,They had me on Gabapentin for 8 months, which was for tapering from Lorazepam and 3 other drugs. I tapered myself after asking my Doctor if it was ok, even tho she said it was safe, not to worry. I researched it and you have to taper from that as well, her reply, I was only taking 300MG. Three more drugs besides Klonopin and Gabapentin. I just read your message again and it is from 2017, I hope you are free from those horrible problems. They put me on Trazodone as well, thank God it made me feel terrible and I stopped it.

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