Lichen Sclerosus: Any other women dealing with this disease?

I’ve had this for several months. I was diagnosed my gynecologist. I started using intravaginal estradiol cream to help with atrophy and vaginitis. Still having issues but the itching has improved.

Jump to this post

Lichen sclerosis ant women dealing with this ?

Jump to this post

Hello. I am a 54, almost 55 year old woman. about two months ago i was referred to a gyn office from my pcp for what was suspected to be recurring UTI's. i had a really bad one last thanksgiving in the ER. i was fine for about a month and a half then i was still having symptoms and it was confirms and no antibiotic worked not even bactrim. When i went to the Gyn's office i would have chosen to see a gyn. i saw a nurse practioner but she was nice and i felt she was knowledgeable and very thourough. she did a exam then said i had Vulver Lichen SClerosus. i had her repeat it as i had never heard of it before. she handed me handouts on it basicly decribing what it was and how to treat it. i read most of it but i guess not all of it. i was told it was a skin condition, autoimmune and it happens to women who have hypothyroidism like myself. she gave me a prescription for a estrogen cream, i think it was called estrogial and a ointment but said only use it twice a week. but the following morning after using it i would only itch more. the other night it was not so much itchy but just felt uncomfortable kinda painful. i did what i normally do i post on on of my facebook groups. i had one person say be careful cause she had a friend who thought she had psorias and she found out she had vulver cancer! what? i never even heard of vulver cancer. then i did a search and i saw there is a percentage although small that this can turn into vulver cancer. my anxiety was in overdrive. other people said did you have a biopsy and when i said no i message the nurse practioner all freaked out. she messaged me back saying she was sorry i was so worried and said somone would be calling me about giving me a appointment with one of the actual doctors. the did call me yesterday morning and offered me a appointment for monday morning fairly early. i was greatful to get in so quick. but im so stressed. im worried what their gonna say, if they will give me a biopsy or what they will put me on to treat. i read most people are given steroid cream the estrogen cream i think was the wrong thing and only made me worse. does anyone here have it? should i be worried? lately i have been using cereve there which helps a little with the itching. some discharge (brownish- redish discharge small sometimes) id really like to talk to someone. i also have other health problems and im just scared. i have hyperplasia with most likely autoimmune gastritis as well as having my gallbladder out so i cant eat much either an other health issues. so i have two things that have a small things that have a small chance of turning into cancer so yeah my anxiety is in overdrive. anyone who can talk to me would mean s much. thank you.

Jump to this post

Hello. I am a 54, almost 55 year old woman. about two months ago i was referred to a gyn office from my pcp for what was suspected to be recurring UTI's. i had a really bad one last thanksgiving in the ER. i was fine for about a month and a half then i was still having symptoms and it was confirms and no antibiotic worked not even bactrim. When i went to the Gyn's office i would have chosen to see a gyn. i saw a nurse practioner but she was nice and i felt she was knowledgeable and very thourough. she did a exam then said i had Vulver Lichen SClerosus. i had her repeat it as i had never heard of it before. she handed me handouts on it basicly decribing what it was and how to treat it. i read most of it but i guess not all of it. i was told it was a skin condition, autoimmune and it happens to women who have hypothyroidism like myself. she gave me a prescription for a estrogen cream, i think it was called estrogial and a ointment but said only use it twice a week. but the following morning after using it i would only itch more. the other night it was not so much itchy but just felt uncomfortable kinda painful. i did what i normally do i post on on of my facebook groups. i had one person say be careful cause she had a friend who thought she had psorias and she found out she had vulver cancer! what? i never even heard of vulver cancer. then i did a search and i saw there is a percentage although small that this can turn into vulver cancer. my anxiety was in overdrive. other people said did you have a biopsy and when i said no i message the nurse practioner all freaked out. she messaged me back saying she was sorry i was so worried and said somone would be calling me about giving me a appointment with one of the actual doctors. the did call me yesterday morning and offered me a appointment for monday morning fairly early. i was greatful to get in so quick. but im so stressed. im worried what their gonna say, if they will give me a biopsy or what they will put me on to treat. i read most people are given steroid cream the estrogen cream i think was the wrong thing and only made me worse. does anyone here have it? should i be worried? lately i have been using cereve there which helps a little with the itching. some discharge (brownish- redish discharge small sometimes) id really like to talk to someone. i also have other health problems and im just scared. i have hyperplasia with most likely autoimmune gastritis as well as having my gallbladder out so i cant eat much either an other health issues. so i have two things that have a small things that have a small chance of turning into cancer so yeah my anxiety is in overdrive. anyone who can talk to me would mean s much. thank you.

Jump to this post

The treatment for lichen sclerosis is a cortisone cream or ointment; often clobetasol. It is not cancer.

Jump to this post

Although should not leave lichen sclerosis untreated. Can lead to vulvar cancer and can progress and cause much discomfort.

Jump to this post

Hello. I am a 54, almost 55 year old woman. about two months ago i was referred to a gyn office from my pcp for what was suspected to be recurring UTI's. i had a really bad one last thanksgiving in the ER. i was fine for about a month and a half then i was still having symptoms and it was confirms and no antibiotic worked not even bactrim. When i went to the Gyn's office i would have chosen to see a gyn. i saw a nurse practioner but she was nice and i felt she was knowledgeable and very thourough. she did a exam then said i had Vulver Lichen SClerosus. i had her repeat it as i had never heard of it before. she handed me handouts on it basicly decribing what it was and how to treat it. i read most of it but i guess not all of it. i was told it was a skin condition, autoimmune and it happens to women who have hypothyroidism like myself. she gave me a prescription for a estrogen cream, i think it was called estrogial and a ointment but said only use it twice a week. but the following morning after using it i would only itch more. the other night it was not so much itchy but just felt uncomfortable kinda painful. i did what i normally do i post on on of my facebook groups. i had one person say be careful cause she had a friend who thought she had psorias and she found out she had vulver cancer! what? i never even heard of vulver cancer. then i did a search and i saw there is a percentage although small that this can turn into vulver cancer. my anxiety was in overdrive. other people said did you have a biopsy and when i said no i message the nurse practioner all freaked out. she messaged me back saying she was sorry i was so worried and said somone would be calling me about giving me a appointment with one of the actual doctors. the did call me yesterday morning and offered me a appointment for monday morning fairly early. i was greatful to get in so quick. but im so stressed. im worried what their gonna say, if they will give me a biopsy or what they will put me on to treat. i read most people are given steroid cream the estrogen cream i think was the wrong thing and only made me worse. does anyone here have it? should i be worried? lately i have been using cereve there which helps a little with the itching. some discharge (brownish- redish discharge small sometimes) id really like to talk to someone. i also have other health problems and im just scared. i have hyperplasia with most likely autoimmune gastritis as well as having my gallbladder out so i cant eat much either an other health issues. so i have two things that have a small things that have a small chance of turning into cancer so yeah my anxiety is in overdrive. anyone who can talk to me would mean s much. thank you.

Jump to this post

I know I use clob and the estrogen cream only made it worse. On my way to gyn now I'm also having bloody discharge. Hoping it's just a bad uti.

Jump to this post

The treatment for lichen sclerosis is a cortisone cream or ointment; often clobetasol. It is not cancer.

Jump to this post