1. < Stroke & Cerebrovascular Diseases
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Cerebral amyloid angiopathy

Posted by montanapets @montanapets, Dec 14, 2011

I was having an MRI to work up onset of headaches, 3 wks. duration and this was seen on the MRI. I'm an RN and scared out of my mind that I'm going to have a stroke. I'm not reading anything online that sounds like anyone can do anything. Is there any reason to go to Mayo? Might I still live a long life? Is there any chance the MRI was read incorrectly? I'm having a hard time here with all this.

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nanatessie | @nanatessie | Sep 8, 2020
In reply to @colleenyoung "@nicolehf, I'm so sorry to hear about your Dad and your loss. I can understand your..." + (show)
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@nicolehf, I'm so sorry to hear about your Dad and your loss.

I can understand your concerns about the hereditary nature of dementia and cerebral amyloid angiopathy. Sometimes there is a genetic risk factor, but not in all cases. As you said, you can't live in fear, but you can equip yourself with knowledge. It is possible to find out your Dad's exact diagnosis? If you knew that there is a genetic risk factor, would you live your life differently?

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I have a question about amyloid angiopathy. I have been having a bad headache for the last few days and then on monday I had an incident. I was driving home which was only about 3 miles and in a neighborhood that I've lived in for 30 years. I was driving down the street heading for the street to turn and i couldn't figure out where to turn. I knew the street should be there but I couldn't figure where it was or even what the name was. Is it possible this could be caused by this disease-bleeding in the brain?

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sistertwo | @sistertwo | Sep 8, 2020

I am no expert, but it sure sounds like it to me. My mother also had a problems judging distances. Get a lot of rest and the best of healing to you.

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shedwina | @shedwina | Sep 13, 2020

I was diagnosed in 2010 wit Afib. I was put on an adult aspirin once daily. Then in January2015 I had a brain hemmorage stroke and was diagnosed with cerebral amyloid Angiopathy. I can no longer take any blood thinners of any kind, leaving me in quite a tight spot. I am 67 years old. I understand your concerns and I too have been considering seeing someone at Mayo who is very familiar with CAA.

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Colleen Young, Connect Director | @colleenyoung | Sep 14, 2020
In reply to @nanatessie "I have a question about amyloid angiopathy. I have been having a bad headache for the..." + (show)
Profile picture for nanatessie @nanatessie

I have a question about amyloid angiopathy. I have been having a bad headache for the last few days and then on monday I had an incident. I was driving home which was only about 3 miles and in a neighborhood that I've lived in for 30 years. I was driving down the street heading for the street to turn and i couldn't figure out where to turn. I knew the street should be there but I couldn't figure where it was or even what the name was. Is it possible this could be caused by this disease-bleeding in the brain?

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@nanatessie, I wanted to follow-up with your concerning symptoms of disorientation and memory. Did you consult your doctor? Any news?

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nanatessie | @nanatessie | Sep 17, 2020
In reply to @colleenyoung "@nanatessie, I wanted to follow-up with your concerning symptoms of disorientation and memory. Did you consult..." + (show)
Profile picture for Colleen Young, Connect Director @colleenyoung

@nanatessie, I wanted to follow-up with your concerning symptoms of disorientation and memory. Did you consult your doctor? Any news?

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Thank you for checking. I did not check with the doctor because I wanted to see if it happens again. So far it hasn't. I keep having headaches so I'll probably call them next week

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nanatessie | @nanatessie | Sep 17, 2020
In reply to @shedwina "I was diagnosed in 2010 wit Afib. I was put on an adult aspirin once daily...." + (show)
Profile picture for shedwina @shedwina

I was diagnosed in 2010 wit Afib. I was put on an adult aspirin once daily. Then in January2015 I had a brain hemmorage stroke and was diagnosed with cerebral amyloid Angiopathy. I can no longer take any blood thinners of any kind, leaving me in quite a tight spot. I am 67 years old. I understand your concerns and I too have been considering seeing someone at Mayo who is very familiar with CAA.

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I also have been diagnosed with caa and am also on coumadin-blood thinner. Because I had a valve replacement in 2000, I don't have the option of coming of the blood thinner. They keep telling me because of this, it's going to get worse. But I have no choice. I am 69 yrs old. I'm sorry you're going through this

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michaeleta | @michaeleta | Mar 3, 2021

can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?

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oldkarl | @oldkarl | Mar 3, 2021
In reply to @michaeleta "can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?" + (show)
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can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?

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@michaeleta I hope it can be caused by some violent force. It would make me sad to think there was nothing but my Gelsolin and encephalopathy to cause this stuff.

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Scott, Volunteer Mentor | @IndianaScott | Mar 3, 2021
In reply to @michaeleta "can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?" + (show)
Profile picture for michaeleta @michaeleta

can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?

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Hello @michaeleta I am not any kind of medical practitioner, but in all the reading I have done the cause of cerebral amyloid angiopathy is not known at this time. I can say I have never read any journal articles saying the cause is blunt force of any kind. Rather it seems the culprit may be the depositing of abnormal amyloid protein.

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Amanda Roe | @amandajro | Mar 3, 2021
In reply to @michaeleta "can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?" + (show)
Profile picture for michaeleta @michaeleta

can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?

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Hello @michaeleta and welcome to Mayo Clinic Connect. Based on your post, I wanted to share a previous conversation that you might find helpful on this topic.

-Cerebral Amyloid Angiopathy:
https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/
You will notice that I consolidated your two posts into just this one in this group.

Can you share a little more about your history and if this is a diagnosis or if you are trying to identify based on symptoms?

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