Bronchiectasis what are the stages and symptoms

Posted by raney @raney, Oct 18, 2021

I was diagnosed with bronchiectasis about the time that Covid hit the US and the pulmonologist are overworked, so I have lots of unanswered questions. I also am taking Bisoprolol Fumarate 2.5 mg (a beta blocker) for heart issues. This is the 3rd cardiac med that has been prescribed in hopes of finding something that works with heart and does not interact with pulmonary meds.
Is there away to shorten the time of treatment?
1. Will I have to spend 3 hours 2 X a day for the rest of my life with nebulizer treatments, smart vest, gargles and nasal washes?
2. Is there anyway to shorten the time of nebulizer. (I have been prescribed (a) Levalbuterol which I can not use because it makes breathing more difficult (b) Sodium Chloride 7% (c) Budesonide all by nebulizer.
I use Aerobika and Smart Vest at intervals during nebulizer treatment.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@baz10

Do you need a prescription for NAC?

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NAC is a supplement, so no prescription is required. However, that means it is not regulated by the FDA, so "buyer beware" - do not purchase by price alone, or from a random vendor. Look for one that is from a reputable manufacturer. I used to use Jarrow, no longer manufactured. Recently I have been using the NOW brand. Others here may have other suggestions.
Sue

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@sueinmn

That's a lot of questions! Let's start at the beginning with a welcome to Mayo Connect and to our group of extremely knowledgeable and helpful MAC & Bronchiectasis group members.

First, I too was on a beta blocker for heart rhythm issues, and had to stop it because it rendered my asthma meds ineffective. My PCP and her med specialist/pharm doc could not find any others that worked for me, so I just live with it.

Second, that's a lot of treatments for bronchiectasis unless you have other issues. Most of us neb and use either a Smart Vest or Aerobika. I'm not sure how many also do nasal washes & gargling - what was the explanation for needing these? My treatment is 7% saline + Aerobika once a day, unless in an exacerbation. Then it is twice a day + Duoneb (budosenide + albuterol.) Neb plus airway clearance takes less than 30 minutes, while I read email and the newspaper.

Can you tell us a little more about what led to your diagnosis (symptoms, tests, etc) and whether you have been tested for any infections in conjunction with the Bronchiectasis? Were you diagnosed with any other issues at the same time? You mentioned you do have a heart problem, but what about asthma, GERD, sinusitis, cough, shortness of breath...

Finally, are you seeing a pulmonologist who is experienced in treating bronchiectasis?

Once we know more about your symptoms and other conditions, I'm sure you will hear lots of suggestions. In the meantime, there is a lot of information available in this discussion that may help you in this journey.

Sue

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That's a lot of time and meds. About 3 yrs ago I lost 45 pound, was coughing up blood, etc. I was sent to get a lung scope and they found a bad infection that was resisting the antibiotic my MD had prescribed. The Pulmonologist settled on ciproflaxen and the infection cleared for about 3 weeks, but then returned. He then tried again and added another antibiotic by nebulizer and it was effective for another 3 week. The third try I thought I don't want to be doing this for the rest of my life, so I did a lot of research on the internet and found a site that researched using silver along with antibiotics and found they were much more effective. So, the last 3 day of the antibiotic I added 4 ml of colloidal silver to my nebulizer routine. and followe up one day every week with just the silver. 6 months later still no reinfections. I checked with the Pulmonologist and he said he hadn't herd of that, but as long as it worked keep it up.

It's now 3 1/2 yrs. later and I take 4 ml of Mesosilver 2 times a week by nebulizer and have had no more need for antibiotics. I also take 1 1/2 loratadine for my sinus drainage every day. Check with your doctor .There are many brands of colloidal silver, but I have tried at least 3 that didn't work for me.

Editor's Note:
– Colloidal silver: is it safe? https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/colloidal-silver/faq-20058061
According to Dr. Brent Bauer from Mayo Clinic says "Colloidal silver isn't considered safe or effective for any of the health claims manufacturers make. Silver has no known purpose in the body. Nor is it an essential mineral, as some sellers of silver products claim."

Read more from NIH's National Center for Complementary and Integrative Medicine
– Colloidal Silver https://nccih.nih.gov/health/silver

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@sueinmn

NAC is a supplement, so no prescription is required. However, that means it is not regulated by the FDA, so "buyer beware" - do not purchase by price alone, or from a random vendor. Look for one that is from a reputable manufacturer. I used to use Jarrow, no longer manufactured. Recently I have been using the NOW brand. Others here may have other suggestions.
Sue

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Hello Sue. I am interested in taking this NAC supplement. What mg do you take, 600 or 1000? Thanks! Donna

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@dc1950

Hello Sue. I am interested in taking this NAC supplement. What mg do you take, 600 or 1000? Thanks! Donna

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I take N-acetyl-cysteine 600 mg twice a day. Be cautious - there is another NAC out there (N acetyl carnitine) that is not the same. I cleared it with my doc first to be sure it was OK. I was told by a pharmacist I trust not to take with glutathione - they are essentially the same after digestion.
Sue

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Thank you Sue. I will check. Glutathione is a supplement too right?

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@dc1950

Thank you Sue. I will check. Glutathione is a supplement too right?

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Yes it is.

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Hello @wadamw and welcome to Mayo Clinic Connect.

Colloidal silver has come up several times in the MAC group. When it comes to supplements and complementary medicine, I always refer to NIH's National Center for Complementary and Integrative Medicine to better understand the proven evidence. See this information:

– Colloidal Silver https://nccih.nih.gov/health/silver

The first section of the page states: What’s the Bottom Line?
How much do we know about colloidal silver?
There are no high quality studies on the health effects of taking colloidal silver, but we do have good evidence of its dangers.

What do we know about the effectiveness of colloidal silver?
Claims made about the health benefits of taking colloidal silver aren’t backed up by studies.

What do we know about the safety of colloidal silver?
The U.S. Food and Drug Administration (FDA) has said that colloidal silver isn’t safe or effective for treating any disease or condition.

According to Dr. Brent Bauer from Mayo Clinic says "Colloidal silver isn't considered safe or effective for any of the health claims manufacturers make. Silver has no known purpose in the body. Nor is it an essential mineral, as some sellers of silver products claim."
You can read more in this article:
– Colloidal silver: is it safe? https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/colloidal-silver/faq-20058061

Did you work with your doctor?

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@dc1950

Hello Sue. I am interested in taking this NAC supplement. What mg do you take, 600 or 1000? Thanks! Donna

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@dc1950
Not sure about anyone else, but I started off with 500 mg. When the mucus gets worse, I will take it twice daily and that seems to control a lot of the problems allowing me to be Vest free and nebulizer free for a time. I also take a quercetin supplent once daily as it is an anti-inflammatory. Hope you get some relief soon.

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@trixie1313

@dc1950
Not sure about anyone else, but I started off with 500 mg. When the mucus gets worse, I will take it twice daily and that seems to control a lot of the problems allowing me to be Vest free and nebulizer free for a time. I also take a quercetin supplent once daily as it is an anti-inflammatory. Hope you get some relief soon.

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Thanks for your reply!

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@amandajro

Hello @wadamw and welcome to Mayo Clinic Connect.

Colloidal silver has come up several times in the MAC group. When it comes to supplements and complementary medicine, I always refer to NIH's National Center for Complementary and Integrative Medicine to better understand the proven evidence. See this information:

– Colloidal Silver https://nccih.nih.gov/health/silver

The first section of the page states: What’s the Bottom Line?
How much do we know about colloidal silver?
There are no high quality studies on the health effects of taking colloidal silver, but we do have good evidence of its dangers.

What do we know about the effectiveness of colloidal silver?
Claims made about the health benefits of taking colloidal silver aren’t backed up by studies.

What do we know about the safety of colloidal silver?
The U.S. Food and Drug Administration (FDA) has said that colloidal silver isn’t safe or effective for treating any disease or condition.

According to Dr. Brent Bauer from Mayo Clinic says "Colloidal silver isn't considered safe or effective for any of the health claims manufacturers make. Silver has no known purpose in the body. Nor is it an essential mineral, as some sellers of silver products claim."
You can read more in this article:
– Colloidal silver: is it safe? https://www.mayoclinic.org/healthy-lifestyle/consumer-health/expert-answers/colloidal-silver/faq-20058061

Did you work with your doctor?

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I worked with my pulmonologist.

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