Hello @marymaurer

Mayo Connect does have a discussion about this eye disorder, here is the link, https://connect.mayoclinic.org/discussion/anyone-here-have-fuchs-dystrophy/?pg=2#comment-241146.

To find out what is being said about this disorder with others, please click on the link above and read about the experiences of others.

I also found some information on treatments and clinical trials at Mayo Clinic. Here is the link to that information,
https://www.mayoclinic.org/diseases-conditions/fuchs-dystrophy/doctors-departments/ddc-20352733
While we wait for others to respond, could you share how your husband's disorder was diagnosed? What kind of symptoms is he having and what type of tests were used to come up with this diagnosis?

@marymaurer You are looking to connect with members that have experience with Fuchs.

You will notice that I moved your question to a previous discussion @hopeful33250 may be a good resource for you. I did this so you could connect with members like @th1 @barbb @sundance6 @joyces @nla4625 @jaguar737 @dablues in a central location.

You mentioned that you husband is not receiving treatment, with the exception of eye drops. May I ask if your provider said that drops are the only treatment available?

I am using 3 drops of Muro 125 in the ‘better’ eye and 4 drops of Muro 125 in the ‘worse’ eye. Also in the worse eye I close it shut with Muro 125 cream to keep the edema in the eye from getting too painful. Hope this helps your husband. Marianne