Connect
Fecal Microbiota Transplant (FMT)
I have been researching this procedure and the success occurring with C Diff and now some success with curing ulcerative colitis.
My 43 year old son has severe recurring kidney stones ( lithrotripsy every 8-10 weeks) and he had medullary sponge kidney and ulcerative colitis, both of which can cause kidney stones.
Our hope is that if the FMT cured his ulcerative colitis, and IF that was the cause of his kidney stones he may be cured. Does anyone have any experience please?
Like
Helpful
HugInterested in more discussions like this? Go to the Inflammatory Bowel Disease (IBD) Support Group.
Connect
So many people--angels, really--helped us when she was so sick. I can only hope to help someone else. <3
-
Like -
Helpful -
Hug
1 ReactionI read about fecal transplants a few months ago. Then within a few days of reading about it I watched a documentary on it. How fascinating! That said, I recall mentioning it to a few people who thought that I was kidding or crazy. I must admit it seemed so odd that someone would even think to do this. Does anyone else agree with me about this procedure? Please pardon this next pun but I’m not poo pooing it in any way. I’m just saying who was sitting around one day thinking: “ hmmm maybe I can transplant some fecal matter from a health person into a sick person and the health poo will take over the whole colon and or other parts of the excrement system and it will work and make things healthy again? In a way I think it’s genius. But honestly, can’t you see how many people may thinks your crazy?
I wonder how many other cures may exist in this type of thinking outside the box?
I’m so happy for all of you who have dared to go there and I too am looking forward to reading more about the successes!
@sandyjr I had the FMT on Feb 28 of this year. I got symptoms of CDiff on Thanksgiving Day of 2018. I was put on Flagyl which failed and 2-3 rounds of Vancomycin. Dificid was not affordable but the FMT was free. So bizarre.. Medicare. Anyway, I have many health problems. I’m on disability due to a combo of issues. I have Crohns Disease and due to that complicating matters and my recurrent C Diff, my doc recommended it. I had trouble getting my bowels back to normal for awhile but I think that’s to be expected. At least for me due to Crohns. I did not have C Diff issues afterwards. I would recommend it! I have had many colonoscopies so this was not any different than that and a colonoscopy is no big deal. You are asleep. My doc gave me Imodium right after the FMT but when I got home I leaked a little. Looking back, he wondered if he should have given it to me before. I live in a town of 100,000 in Texas so I was thrilled he could do it and had done it before!! I hope you get well soon!!!
@stuckonu I think we have all questioned the science behind the FMT but it’s genius when you consider the microbiome of the gut. Crazy. It’s gross to think about but I just had to get passed that.
Has anyone with Crohn's had a fecal transplant with positive results? Any information would be appreciated.
it saved my daughter's life--she had recurring C. Difficile that was persistent and she was only 12. Very scary and debilitating. FMT process is easy and I found it safe. Mayo Clinic is a safe place for it, but it is being done all over now. At the time we were pioneers. It is a simple and immediate fix for C. diff. I'm forever grateful.
-
Like -
Helpful -
Hug
2 Reactions@sandyjr I just reread your post and saw that you have Crohns. My doc said that he hoped I would benefit from the FMT for Crohns as well. It would be hard to know since I had C Diff too, but he said he was aware that it is being tested for that purpose and he is optimistic that maybe it will he really helpful for Crohns!!!
Anyone had Fecal Microbiota Transplant (FMT) for C Difficile? I dont know where to open this topic, not cancer, should I do it or not, 5 bouts of c diff in 2021, 3 hospital stays, 1 c diff now, vancomycin for 6 months, off it for 2 weeks, that's when I got c diff again, now, what the hell to do, I'm 75 and terrified
-
Like -
Helpful -
Hug
2 ReactionsWelcome @chatticathi. You have been through a lot and I can imagine you've had enough and are scared.
I moved your question to the Digestive Health group where members are talking about c difficile and fecal microbiota transplant (FMT). Members like @sandyabbey @pines @nettecook @concernedmtnmom and @wendyw can share their experiences with FMT.
In this expert blog "C. Difficile Care at Mayo Clinic" https://connect.mayoclinic.org/blog/gastroenterology-and-gi-surgery/newsfeed-post/c-difficile-care-at-mayo-clinic/ Dr. Pardi, gastroenterologist, says patients with two or more recurrences, are considered high risk and, treatment may include:
- Prolonged courses of antibiotics
- A fecal microbiota transplant that restores healthy intestinal bacteria by placing another healthy person's (donor) stool in your colon, using a scope or tube. Research has shown fecal microbiota transplant for C. diff has a success rate higher than 90 percent.
- An intravenous infusion of an antibody called bezlotoxumab may be helpful in certain situations.
Is your doctor suggesting FMT for you?
-
Like -
Helpful -
Hug
2 ReactionsYesterday he said no, he doesn't even know who does it ,I'm in Tampa, Fl, tomorrow I start another antibiotic, I forget the name ,it starts Clin,I don't have it here with me, 10 pills, $5M, expensive, hello insurance, and I'll still be on vancomycin for another week, just got off it after 6 months vicious cycle