Anyone had Fecal Microbiota Transplant (FMT) for C Difficile?

Posted by chatticathi @chatticathi, Feb 21, 2022

I dont know where to open this topic, not cancer, should I do it or not, 5 bouts of c diff in 2021, 3 hospital stays, 1 c diff now, vancomycin for 6 months, off it for 2 weeks, that's when I got c diff again, now, what the hell to do, I'm 75 and terrified

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Welcome @chatticathi. You have been through a lot and I can imagine you've had enough and are scared.
I moved your question to the Digestive Health group where members are talking about c difficile and fecal microbiota transplant (FMT). Members like @sandyabbey @pines @nettecook @concernedmtnmom and @wendyw can share their experiences with FMT.

In this expert blog "C. Difficile Care at Mayo Clinic" https://connect.mayoclinic.org/blog/gastroenterology-and-gi-surgery/newsfeed-post/c-difficile-care-at-mayo-clinic/ Dr. Pardi, gastroenterologist, says patients with two or more recurrences, are considered high risk and, treatment may include:
- Prolonged courses of antibiotics
- A fecal microbiota transplant that restores healthy intestinal bacteria by placing another healthy person's (donor) stool in your colon, using a scope or tube. Research has shown fecal microbiota transplant for C. diff has a success rate higher than 90 percent.
- An intravenous infusion of an antibody called bezlotoxumab may be helpful in certain situations.

Is your doctor suggesting FMT for you?

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@colleenyoung

Welcome @chatticathi. You have been through a lot and I can imagine you've had enough and are scared.
I moved your question to the Digestive Health group where members are talking about c difficile and fecal microbiota transplant (FMT). Members like @sandyabbey @pines @nettecook @concernedmtnmom and @wendyw can share their experiences with FMT.

In this expert blog "C. Difficile Care at Mayo Clinic" https://connect.mayoclinic.org/blog/gastroenterology-and-gi-surgery/newsfeed-post/c-difficile-care-at-mayo-clinic/ Dr. Pardi, gastroenterologist, says patients with two or more recurrences, are considered high risk and, treatment may include:
- Prolonged courses of antibiotics
- A fecal microbiota transplant that restores healthy intestinal bacteria by placing another healthy person's (donor) stool in your colon, using a scope or tube. Research has shown fecal microbiota transplant for C. diff has a success rate higher than 90 percent.
- An intravenous infusion of an antibody called bezlotoxumab may be helpful in certain situations.

Is your doctor suggesting FMT for you?

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Yesterday he said no, he doesn't even know who does it ,I'm in Tampa, Fl, tomorrow I start another antibiotic, I forget the name ,it starts Clin,I don't have it here with me, 10 pills, $5M, expensive, hello insurance, and I'll still be on vancomycin for another week, just got off it after 6 months vicious cycle

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@chatticathi

Yesterday he said no, he doesn't even know who does it ,I'm in Tampa, Fl, tomorrow I start another antibiotic, I forget the name ,it starts Clin,I don't have it here with me, 10 pills, $5M, expensive, hello insurance, and I'll still be on vancomycin for another week, just got off it after 6 months vicious cycle

Jump to this post

I think you might be referring to the antibiotic Clindamycin. According to Mayo Clinic "Antibiotic therapy for recurrent infections may involve one or more courses of a medication. The drugs are usually different from the type of antibiotic used previously. The effectiveness of antibiotic therapy declines with each subsequent recurrence." Read more here: https://www.mayoclinic.org/diseases-conditions/c-difficile/diagnosis-treatment/drc-20351697

It sounds like that is what your doctor is doing, prescribing a different type of antibiotic than the one you had before.

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Digestive healthcare of ga does fecal transplants. They are in fayetteville,ga. Just south off atlanta
Will change your life. Dr woods did mine in 2018.

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@kaylasills

Digestive healthcare of ga does fecal transplants. They are in fayetteville,ga. Just south off atlanta
Will change your life. Dr woods did mine in 2018.

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Can you share more info? I fear I may have leaky gut syndrome and have been tested for most other usual conditions (neg) What was your diagnosis and how soon did you start to see good results.? Thank you.

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@chatticathi

Yesterday he said no, he doesn't even know who does it ,I'm in Tampa, Fl, tomorrow I start another antibiotic, I forget the name ,it starts Clin,I don't have it here with me, 10 pills, $5M, expensive, hello insurance, and I'll still be on vancomycin for another week, just got off it after 6 months vicious cycle

Jump to this post

Has anyone told you that antibiotics can lead to destroying good gut bacteria? I have chronic diarrhea and resist antibiotics for this reason.

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@carolinesearch

Has anyone told you that antibiotics can lead to destroying good gut bacteria? I have chronic diarrhea and resist antibiotics for this reason.

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I've been on vancomycin oral for 7 months,no diarrhea, and that orange powder I mix with water nightly to promote normal poop, that's it, oh, and bentyl

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That's good for you. I can't tolerate vancomycin, but the orange stuff is my daily thing, too.

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@chatticathi I came down with cdiff in September, 2018. Spent 8 days in the hospital and lost 14 lbs. I was put on vancomycin every time and after the 3rd bout with cdiff, I had the fmt in March, 2019. It was the best decision ever! I still can't gain back the weight I lost, but so far, so good. I took clindamycin for a tooth abcess and was told that is what gave me cdiff. Several people on here also said clindamycin gave them cdiff. If you look up clindamycin and cdiff, they are directly related. If I were you, I would find another doctor to get the fmt. If you have any questions, feel free to ask me.

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Glad to hear your. In a better place, vancomycin oral is working for me and I have to get off sometime, it's been 8 months daily and I drink a powder to keep bowel formed and that works and here I am!

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