1. < Brain & Nervous System

Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

avash | @avash | Feb 1, 2022
In reply to @terlato "Yes and mine is caused by a rare neurological disorder called Hereditary Nerve Pressure Palsy, it..." + (show)
@terlato

Yes and mine is caused by a rare neurological disorder called Hereditary Nerve Pressure Palsy, it also falls under Charcot-Marie Tooth (CMT). I get electrical flowing feelings every now and then mostly in the left side of my chest and near my groin on the right side. Once I thought is was my cell phone on silence, just vibration. It is a very weird sensation. Now I'm getting internal vibrations through my entire body. My body does not shake I just feel it inside. I hope this will help. I would definitely recommend seeing a Neurologist and suggest Genetic Testing. This is how my condition was found, otherwise I would still be going crazy looking for answers. Good Luck and I hope you find the answers.

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@terlato Thank u. Most of us have this issue after we got covid though. Been to the neurologist he doesn't know why covid caused this effect on so many of us.

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avash | @avash | Feb 1, 2022
In reply to @rwinney "@avash I remember how much it sucked when I had to leave my job. It was..." + (show)
@rwinney

@avash I remember how much it sucked when I had to leave my job. It was very difficult adjusting to loss of routine. Keep the faith that you will get back to work. Are you presently on temporary disability?

If you find getting back on track this year proves challenging, here is a link for Mayo Clinic Pain Rehabilitation Center (PRC). PRC helps with nerve disorders, IBS, anxiety, depression, among many other things.
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
Also, here is a discussion titled SMART Goals and Chronic Pain that you may find helpful while you are working towards getting back on track.
https://connect.mayoclinic.org/discussion/smart-goals-and-chronic-pain-how-smart-are-you/
I'm rooting for you! Please reach out with any questions you may have.

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@rwinney no dear I'm here in South Africa but I joined this group to find some help. Thank u so much for your advice

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Pat | @patheflin | Feb 1, 2022

I too have had these vibrations/tremors for 2 years through my entire face since a heart ablation. 20-plus specialists. Hopkins/Mayo and conclusion FND. Very frustrating with no answers. Nothing they’ve suggested as eased the condition. I feel your pain! Some day, some how, and hope there is a cure.

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1 reply
hair127 | @hair127 | Feb 2, 2022

I started getting internal vibrations after I went off a Heart Pill..Coreg. My heart Doc put me on a Heart monitor for 2 weeks to see if the vibration is my heart speeding up. Which one day it went to 177 beats a minute! I also have anxiety, but THIS is NOT anxiety!

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joyousb | @joyousb | Feb 2, 2022
In reply to @avash "Yes I have this vibration in my head stomach chest all inside my body. Have u..." + (show)
@avash

Yes I have this vibration in my head stomach chest all inside my body. Have u gotten and meds to help

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I’m so glad that I found this group. My vibrations feel strong & electrical and frightening when they are in my head. I also have just a very steady vibration in my abdomen and chest. But my symptoms are very sporadic- maybe feeling them for a few nights in a row - then nothing for the next month. Once, after experiencing head vibrations, I had a brief period of blurry vision. I was told by a neurologist that it could be small mini-strokes or perhaps late onset (I was in my mid 50’s then) multiple sclerosis. I haven’t been to a neurologist in the last 10 yrs. I have heart stints and moderate carotid artery blockage. I wonder is it’s all connected.

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2 replies
avash | @avash | Feb 3, 2022
In reply to @joyousb "I’m so glad that I found this group. My vibrations feel strong & electrical and frightening..." + (show)
@joyousb

I’m so glad that I found this group. My vibrations feel strong & electrical and frightening when they are in my head. I also have just a very steady vibration in my abdomen and chest. But my symptoms are very sporadic- maybe feeling them for a few nights in a row - then nothing for the next month. Once, after experiencing head vibrations, I had a brief period of blurry vision. I was told by a neurologist that it could be small mini-strokes or perhaps late onset (I was in my mid 50’s then) multiple sclerosis. I haven’t been to a neurologist in the last 10 yrs. I have heart stints and moderate carotid artery blockage. I wonder is it’s all connected.

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@joyousb for how many yrs u have this? Its not MS so many of us have this after covid. Just something strange also and u have it without covid. Now there's a doubt it's neuropathy since u have it and seen ur neurologist. Did they do any nerve tests for u? Biopsy also?

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jvandiver72 | @jvandiver72 | Feb 3, 2022
In reply to @novajeff "Curious if any of you have explored the potential of Benign Fasciculation Syndrome. Found out more..." + (show)
@novajeff

Curious if any of you have explored the potential of Benign Fasciculation Syndrome. Found out more about that yesterday and it really checks almost every box for me. My one neuro didn’t know about this, and my other neuro disagreed, saying I don’t have fasciculations. I personally disagree with his comment. I feel my muscles twitching and firing all over, often.

Fasciculations (primary symptom)
Blepharospasms (eye spasms)
Generalized fatigue
Muscle pain (Or soreness)
Anxiety (which can also be a cause)
Exercise intolerance (Less Stamina)
Globus sensation
Paraesthesias
Muscle cramping or spasms
Other symptoms include:

Dyspnea
Hyperreflexia
Muscle stiffness
Tremors
Itching
Myoclonic jerks

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I was diagnosed with BFS. That diagnosis came after i saw ENT for squealing tinnitus. Finally, I got the scariest symptom of all-the internal vibrations. I feel like my nervous system has gone crazy. No one has any answers (MRI of brain, several neurological tests, bloodwork, etc. all checked out.) Have your symptoms gotten better?

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1 reply
novajeff | @novajeff | Feb 3, 2022
In reply to @jvandiver72 "I was diagnosed with BFS. That diagnosis came after i saw ENT for squealing tinnitus. Finally,..." + (show)
@jvandiver72

I was diagnosed with BFS. That diagnosis came after i saw ENT for squealing tinnitus. Finally, I got the scariest symptom of all-the internal vibrations. I feel like my nervous system has gone crazy. No one has any answers (MRI of brain, several neurological tests, bloodwork, etc. all checked out.) Have your symptoms gotten better?

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Interesting, your ENT diagnosed the BFS?

Just so as not to repeat the same things, if you read through this thread I’ve posted periodically, and recently, with my updates. Nothing bad or downhill. Not trying to be rude at all but rather than rehash again, it is posted within here.

Best of luck on healing and improving.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 3, 2022
In reply to @patheflin "I too have had these vibrations/tremors for 2 years through my entire face since a heart..." + (show)
@patheflin

I too have had these vibrations/tremors for 2 years through my entire face since a heart ablation. 20-plus specialists. Hopkins/Mayo and conclusion FND. Very frustrating with no answers. Nothing they’ve suggested as eased the condition. I feel your pain! Some day, some how, and hope there is a cure.

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@patheflin Hello Pat. You sure have given it your all with visiting 20-plus specialists. Two years is quite a while. I understand how frustrating it is running yourself ragged in search of answers only to find the answers are not what was hoped for, and that there is no cure. I have had internal vibrations, spasms, electrifying nerve pains and much more over the years that there is no cure for. If not for nothing, you are not alone my friend, neither are the other members who have been posting about vibrations/tremors.

Functional Neurological Disorder (FND), along with other disorders and syndromes, like fibromyalgia, neuropathy, migraine, CRPS, nonepileptic spells, chronic fatigue, POTS, post-COVID, etc... are treated at Mayo Clinic's Pain Rehabilitation Center. Here is some info:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
This is where I finally went to get a grip and find help with managing my conditions. It really was a life saver for me. Would you ever think about going to a program like this?

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 3, 2022
In reply to @joyousb "I’m so glad that I found this group. My vibrations feel strong & electrical and frightening..." + (show)
@joyousb

I’m so glad that I found this group. My vibrations feel strong & electrical and frightening when they are in my head. I also have just a very steady vibration in my abdomen and chest. But my symptoms are very sporadic- maybe feeling them for a few nights in a row - then nothing for the next month. Once, after experiencing head vibrations, I had a brief period of blurry vision. I was told by a neurologist that it could be small mini-strokes or perhaps late onset (I was in my mid 50’s then) multiple sclerosis. I haven’t been to a neurologist in the last 10 yrs. I have heart stints and moderate carotid artery blockage. I wonder is it’s all connected.

Jump to this post

@joyousb I'm so sorry you feel such strong electrical vibrations in your head. What an awful feeling that is. I too was frightened when I used to feel symptoms in my face and head. There are nerve medications that can possibly help you with your symptoms. Have you ever been on a nerve medication?

Even though your symptoms are sporadic, I recommend seeing a neurologist as soon as you are able, especially given your past. Have you reached out for an appointment yet?

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