MGUS diet: Any tips on food to enjoy or prevent progression?

I was diagnosed with ITP, CAD (Cold Agglutinin Disease) and MGUS after a pre-surgery CBC in 2018 for a torn rotator cuff found platelets too low to proceed. Hematologist ordered a bone marrow biopsy resulting in my diagnosis. Was told there was no treatment for the CAD and MGUS. I have been treated with prednisone, IVIG, Promacta and now Nplate for the ITP. Platelets were 10 at the start and are now in mid 80's. I wasn't too concerned with the CAD and MGUS since I'm still going through weekly infusions of Nplate this past year. After reading the comments on this post I'm wondering if I should be concerned about the potential chance of MGUS changing to cancer. It seems like my body is trying to attack my blood in a number of different ways.

Oh gosh, @hi2l. I'm sorry that the comments here have made you more fearful than necessary. On average, about 1% of people with MGUS go on to develop multiple myeloma each year. That can change over time, but it shouldn't be cause for additional concern. Your health care team is obviously monitoring you closely. Awareness need not equal worry. I like to call this active surveillance and getting on with life.

Thank you for your words of encouragement. I'm not really fearful about the MGUS or CAD. It's just the realization that I have health issues that have no answer. In a way that's a blessing since the treatment for ITP, which requires weekly blood tests and infusion at the regional Cancer and Hematology Center are bad enough, more treatments would take even greater time from the daily activities that I enjoy. I am thankful that none of the three conditions have any symptoms that I actually notice. I read on social media support groups where many people suffer from fatigue, headaches, joint pain, depression and more.

Here is latest info that I could find re diet and MGUS, SMM progression. Recent and VERY GOOD and informative. It is on YouTube under heading of Studying The Relationship between Myeloma Progression and Diet

@stevonmfl, I noticed that you wanted to add a URL to a video. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam and it looks like it would be helpful for members in this discussion about MGUS and diet.. Please allow me to post it for you.

Studying The Relationship between Myeloma Progression and Diet
Recorded on January 25th, 2022 as part of the MGUS/Smoldering Myeloma Patients Chapter in the Myeloma Crowd Community by HealthTree Program with Dr. Urvi Shah.

Yes, please post it

Steven

Can only say that my PCP informed that after 2 Moderna Innoculations + 2 M boosters, I do not have covid immunity.
Possibly this is due to IgM kappa MGUS dx 7 years ago. Now suggested to take extremely new med: Evusheld. Anyone have any experience with it? Thank you! @rae

@raye Welcome to Mayo Clinic Connect.

I also have IgM Kappa that morphed into active multiple myeloma, and am under treatment for that, since August 2021. I had two vaccinations of Pfizer, plus 2 boosters [last was just last Fri 5/6/22!] I also had the Evusheld vaccination on 2/17/22, on the advice of my oncologist.

There is a discussion in the autoimmune group about Evusheld https://connect.mayoclinic.org/discussion/evusheld-2/ plus another discussion in the transplant group. I do not plan on being tested for Covid immunity, as it seems I have done all I can ;))
Ginger

Dear Ginger,
Thanks for your kind reply.
I will look up the website.

Life is an ongoing process and I wish we could rely on the currently available vaccines, including your latest, to put a big stop sign up to covid variants. We can not. I wear a 3M N95 Aura mask, from Home Depot, then try to avoid being around unmasked others.
A friend caught covid after having dinner in a restaurant. I still go to restaurants, but only to order takeout foods to eat at home. I’m sorry you got MM. Hope the treatments will be gentle and that it will not interfere with your life. Wishing you well, Ginger. By the way, I like Ginger tea and it’s an antiinflammitory! Yay!

Hi Susan,
Sorry I don’t have any information either. I would like to know if anything will stop the progression of MGUS too.

Hugs
Linda