1. < Transplants

Just approved: Evusheld for the pre-exposure prevention of COVID-19

Posted by lizzy102 @lizzy102, Dec 10, 2021

Does anyone have any more information on this just-approved by the FDA treatment for immunocompromised people? From what I am reading, it seems very exciting. Boy, what I wouldn’t give for a bit of protection from the scourge virus!

Interested in more discussions like this? Go to the Transplants Support Group.

athenalee | @athenalee | Jan 19, 2022
In reply to @banksnc49 "I live in Grand Rapids MI. I have not gotten vaccinated because so many people have..." + (show)
@banksnc49

I live in Grand Rapids MI. I have not gotten vaccinated because so many people have gotten neuropathy or had theirs worsen. I have neuropathy and don’t want to chance it getting worse. Plus I have natural immunity from a bad case of Covid in Nov 2020. I usually have my antibodies checked every couple of months and I’m still positive. I’m speaking with the pharmacist at my transplant center this afternoon. I’m very unsure about getting it. I’ll post what she has to say.

Jump to this post

I have an appointment with my neurologist soon and was going to ask him about Evusheld. He recognized my neuropathy increase after the vaccines as an autoimmune reaction.

I received monoclonal antibodies today for Covid. My left foot became very itchy and developed hives a couple hours after the infusion. And, now both feet are having an increase in tingling and I’m also experiencing numbness on the right side of my face, which is new.

REPLY
2 replies
lizzy102 | @lizzy102 | Jan 19, 2022
In reply to @athenalee "I received approval. They’re doing them at Lahey, but suggested I try in S. Vermont first...." + (show)
@athenalee

I received approval. They’re doing them at Lahey, but suggested I try in S. Vermont first. They said if I need a letter from them, they’d provide it. Now I just have to get my PCP to follow through.

Jump to this post

Fabulous athenalee! Congratulations! Wow that’s great news. So far out here in Oregon and Washington, I am getting the run around. Decided to reach out to my Senator to see what she can facilitate. Please let us know how things progress.

REPLY
2 replies
lizzy102 | @lizzy102 | Jan 19, 2022
In reply to @athenalee "I have an appointment with my neurologist soon and was going to ask him about Evusheld...." + (show)
@athenalee

I have an appointment with my neurologist soon and was going to ask him about Evusheld. He recognized my neuropathy increase after the vaccines as an autoimmune reaction.

I received monoclonal antibodies today for Covid. My left foot became very itchy and developed hives a couple hours after the infusion. And, now both feet are having an increase in tingling and I’m also experiencing numbness on the right side of my face, which is new.

Jump to this post

Yipes. We’ll just let the Universe know it’s time for that stuff to go away! Thanks for the update.

REPLY
athenalee | @athenalee | Jan 19, 2022
In reply to @lizzy102 "Fabulous athenalee! Congratulations! Wow that’s great news. So far out here in Oregon and Washington, I..." + (show)
@lizzy102

Fabulous athenalee! Congratulations! Wow that’s great news. So far out here in Oregon and Washington, I am getting the run around. Decided to reach out to my Senator to see what she can facilitate. Please let us know how things progress.

Jump to this post

You might try reaching out to your state health department. I downloaded the form and info on the VT Health Dept Covid Website, under physician alerts. Filled out the form as much as I could for my PCP. Unfortunately, since I have Covid it’s on hold.

REPLY
1 reply
estrada53 | @estrada53 | Jan 19, 2022

Today at our Mayo Phoenix hesrt tx Support Group Meeting online the moderator provided info from the pharmacist regarding Evushield. There is apparently a potential interaction with this and our anti- rejection meds.

REPLY
1 reply
athenalee | @athenalee | Jan 19, 2022
In reply to @estrada53 "Today at our Mayo Phoenix hesrt tx Support Group Meeting online the moderator provided info from..." + (show)
@estrada53

Today at our Mayo Phoenix hesrt tx Support Group Meeting online the moderator provided info from the pharmacist regarding Evushield. There is apparently a potential interaction with this and our anti- rejection meds.

Jump to this post

Really…that’s not good. Please keep us up to date. Thank you!

REPLY
athenalee | @athenalee | Jan 19, 2022
In reply to @lizzy102 "Fabulous athenalee! Congratulations! Wow that’s great news. So far out here in Oregon and Washington, I..." + (show)
@lizzy102

Fabulous athenalee! Congratulations! Wow that’s great news. So far out here in Oregon and Washington, I am getting the run around. Decided to reach out to my Senator to see what she can facilitate. Please let us know how things progress.

Jump to this post

If you scroll down on this website, under healthcare providers is a letter authorizing Evusheld under FDA guidance - https://www.oregon.gov/oha/covid19/Pages/Healthcare-Partners.aspx

There’s a link on the Washington Health Department providers website too, but the link is broken.

REPLY
3 replies
estrada53 | @estrada53 | Jan 19, 2022
In reply to @athenalee "If you scroll down on this website, under healthcare providers is a letter authorizing Evusheld under..." + (show)
@athenalee

If you scroll down on this website, under healthcare providers is a letter authorizing Evusheld under FDA guidance - https://www.oregon.gov/oha/covid19/Pages/Healthcare-Partners.aspx

There’s a link on the Washington Health Department providers website too, but the link is broken.

Jump to this post

It is approved - yes. At this point apparently Mayo is playing it safe with heart recipients.

REPLY
1 reply
estrada53 | @estrada53 | Jan 19, 2022
In reply to @athenalee "If you scroll down on this website, under healthcare providers is a letter authorizing Evusheld under..." + (show)
@athenalee

If you scroll down on this website, under healthcare providers is a letter authorizing Evusheld under FDA guidance - https://www.oregon.gov/oha/covid19/Pages/Healthcare-Partners.aspx

There’s a link on the Washington Health Department providers website too, but the link is broken.

Jump to this post

Thanks for this link. I'm not sure of the specific reason for the hesiitancy at Mayo, but I'm sure we'll find out soon.

REPLY
1 reply
Nancy Banks | @banksnc49 | Jan 19, 2022
In reply to @athenalee "I have an appointment with my neurologist soon and was going to ask him about Evusheld...." + (show)
@athenalee

I have an appointment with my neurologist soon and was going to ask him about Evusheld. He recognized my neuropathy increase after the vaccines as an autoimmune reaction.

I received monoclonal antibodies today for Covid. My left foot became very itchy and developed hives a couple hours after the infusion. And, now both feet are having an increase in tingling and I’m also experiencing numbness on the right side of my face, which is new.

Jump to this post

I’m so sorry to hear that. Have you had your antibodies checked after Covid? My pharmacist told me it’s the people who haven’t had Covid that have a harder time keep their antibodies after being vaccinated. She also said the Evusheld will be given every 6 mos.

REPLY
View MoreView Less
Please sign in or register to post a reply.