Fibromyalgia Scoliosis Arthritis

Oh and I forgot to add how completely irritating it is to be told " you don't look sick!"
I want to respond with " well you don't look stupid!" but out of respect, I don't

yes. the comment STILL blows me away at this point in time...one thing comming from a clueles person, quite another comming from a provider. i was told that for over 3 years..demanded referrals and was treated as if i was just another 50 something middleaged woman....and you know how they complain... i told her i don't fit the fibro tag she stuck me with...to many old injuries...symptoms didn't match...well the skinny is i have multiple auto immune disorders...soup to nuts..
you have a busy life with small children. it's good to keep moving as much as possible. but when they have down time so should you...a wee bit of pampering has theraputic effects. A nice hot bath, heat pads...even for just a few mins can be just enough to make the next hour bearable. have they screened you for other auto immune disorders? often they come in clusters it seems..
i reply to those "thoughtful" comments with " it's difficult for people to begin to understand how this illness can be so painful when you can't see it from the outside. sometimes as weird as it sounds it would be easier for people like me if there was some easy identifiable "mark" to give others a clue....but we don't because it is on the inside. i marvel at times how rude and insensitive seemingly intellegent people are breath takingly ignorant, cruel or both. That usually shuts them up or opens the conversation up for further discussion........
take a little time for yourself....enlist family or friends and do for yourself, ..just you...when you can. it is good not just for your body but your soul also. hope you have lighter days ahead.

this is my first time on this web.....I, too have hurt for years! About 30 years. And no doctor has ever helped me, except one. She would give me cortisone shots and prednisone to take, with pain meds. Now, I don't have her anymore and my new doctor refused to give me any pain meds. So, finally I went into Houston to the Medical Center (3 days ago) and was finally diagnosed with Fibromyalgia. He gave me Ultram 100mg to help with the pain. I have taken it ....and the pain is still with me, although I feel like ... maybe.... I feel a little bit better. If I don't get better in a week, I am going to ask him to up the dosage to 150mg or 200mg of the Ultram.
He also advised me to "Exercise" like in a gym.....to never give up. I have to keep on trying to exercise, because I am losing my muscle tones and really looking bad.
Do you exercise any on a regular basis? You are so much younger than me.....but I understand your pain. Maybe a chiropractor can help, too. There is One Thing that I use that really helps pain. I get it off the internet. It is called FUSE. It is an ointment you rub on the hurting areas. I can promise you.....it really helps!! Hope it will help you, too!!

Thank you!!
I have tried ultram as well..no results...I'm willing to try almost anything to stop the pain! I will definately try it and get back with you 🙂

How long have you had fibromyalgia? How severe is your case? If I ask a question please feel free to tell me you don't want to answer the question. I first went to Mayo Dec. 29,2010 and met with Dr. Wang the rheumatologist and had blood work done. I had seen a rheumatologist in South Carolina where I live and saw him for a year and a half he did not do the normal blood work that should be done when someone is complaining of joint pain. I went back to Mayo(Jacksonville) in February on the 9 and 10. I saw Dr. Wang on the 10th which happened to be my 40th birthday when he gave me my results which are: Fibromyalgia/ Central Sensitization Syndrome, Baker's Cyst(already knew about this), Depression, low iron, low calcium, osteoarthritis, chronic fatigue syndrome with chronic diffuse myofascial pain which signs started showing about 4 1/2 yrs ago and would ask every doctor I ever saw even my ob-gyn if they could think of why I was having this pain, just in my elbows and knees. Finally after wasting all that money seeing a rheumatologist and him telling me there was nothing else he could do for me I went to my family physician and told him if he did not send me somewhere that could tell me why I was having so much pain then the next time he saw me I would have nothing below my elbows and nothing below my knees and he said the only thing I know to do is to send you to the Mayo clinic in Jacksonville. By this time I am already on a Duragesic (Fentanyl) 50 mcg patch. I wish I would have gone years earlier because Dr. Wang said my pain would not be as bad as it is and I would still be able to work. I am a certified pharmacy technician, but I had gotten my Emergency Medical Technician license as a Basic, and right after I got my wonderful birthday diagnosis I had just finished taking an EMT-I 85 class which is a step up from a basic. I still have one test to take but since my diagnosis I have not been able to focus enough. I have taken it one time and I get two more chances but I have to get a handle on everything else that is going on in my life right now before I go test again because I don't want to fail again I don't think I could handle the disappointment.. That is basically my story would love to hear yours as long as you feel comfortable talking about it. Dr. Wang suggested that I see a counselor which I am but I think talking to someone that is possibly dealing with the same thing I am will be a bonus. Can't wait to hear back from you.
Danielle Mixon

I was diagnosed with fibro June 29, 2011
I have had chronic pain for 14plus years...I'm losing grip in my hands.
I have not been diagnosed with ra but I think that's what Im dealing with.
I have seen soo many doctors that I can hardly keep them all straight.
I was scheduled for a MRI but had to cancel appointment due to the fact my insurance will not cover all of it...it will cost me 650$ out of pocket...which due to all the co pays I had with all my appointments... I cannot afford to do this at this time.
I have pretty much given up on finding treatment...it seems all the doctors I've seen have not helped me..they have been very discouraging and make me feel like I'm crazy! One pain clinic told me to see a shrink and that there wasn't anything g physically wrong with me...haha..they didn't run any tests just a physical by touch...Wth?!?! It's soooo frustrating as this has really made my life very difficult!!!
Would love to keep in touch
Feel free to email me directly mrs_tiffany_roberts@yahoo.com
Hope to hear from you soon 🙂

Hello, I'am presently in horrible pain, I cannot grip and hands got red and swollen
doctor thought it was an infection it came on one hand and then swelling would go down and go to the other hand. The doctor put me on antibiodicts and it goes away
then comes back. He took blood work for gout and test came back no gout. I now have horrible pain in my muscles and its hard for me to walk or try to pull myself out of bed or do anything that involves my muscles. I have always been a healthy person up until now. I don't know why this is happening to me. It even went into my
jaw. I was thinking it was my teeth and have an appointment with my dentist on
monday. My memory is not like it used to be and I'am getting so tired of this. I wake up in the middle of the night with pain. It has affected my whole life. Does any of this sound like what you have been experiencing? I'am also going to have blood work done on Monday to check for RA.

It sounds alot like what I'm going through...most of my pain is in my back though.
I was told be a dr that 30% of people with ra end up being diagnosed clinically not through bloodwork bc I guess it's not always apparent 🙁

are you currently seeing a doctor at Mayo? Right now I am trying to get on disability to try to help financially. To tell you the truth when I was diagnosed I told my husband just to go ahead and put me in the ground.

Hi, Tiffany,

Please what ever you do, DO NOT GIVE UP! Please read my post through to the end and if you want, please contact me directly but there is hope! There has to be. The one thing I am sure of is having support is very important. You have support through the community and now through me. :)

I am new to this community and am in the same boat as many of the stories I am reading. Pain started 2 years ago, after lifting a 40 lb bag of wood pellets. Like you and many others I spent thousands over the last 2 years on co-pays, Insurance deductibles payments, internet purchases promising pain relief (none worked), and every med the doctor said would work but to no avail (my closet is a mini pharmacy of unusable meds).

After doing a great deal of research, I finally went to a neurologist who sent me for a spinal tap and in-depth blood work. The blood work ruled out: MS and Lymes Disease, which left Fibromyalgia. I am going back to the neurologist tomorrow so I started doing more research on fibro and found the Mayo Clinic, who has a great deal of info (http://www.mayoclinic.com/health/fibromyalgia/DS00079/DSECTION=lifestyle-and-home-remedies), which has helped a bit - not with the pain but with understanding what is happening to me and reminding me that the mind is definitely a valuable tool for us! The 1 thing I have learned over the last 2 years is the mind cannot focus on 2 things at the same time. For example: pain and happiness. The link above provides some valuable info on reducing the level of pain and the sadness the pain causes: reduce stress, get enough sleep, exercise regularly, pace yourself, and maintain a healthy lifestyle. You have the link so you can read the details but basically the info is: give yourself a break! Don't stress about finding a cure as none exists. Instead find ways to deal with the condition and do not let depression sink in too deeply or the pain wins! Don't let the pain win! If you start to get down in the dumps, find something to make you smile! (Today, for the first time in probably 24-30 years, I watched the Smurfs! It made me laugh, which reduced the pain for a little while.) Find something positive and concentrate on it. I found the following quote the other day and it is VERY true: "Nobody can hurt me without my permission" Gandi

Unfortunately, the conditions we have do not have cures but we have to find a way to stop thinking about how horrible we feel and think about how lucky we are the condition is not worse! Please don't get me wrong, I am in pain all day and night, take 9 pills in the AM and again at night with 7 pills every 4 hours and the pain is still there, which is why the research to find other ways to assist in relieving the pain because the meds do not work. I only sleep 1-2 hours at a shot and my life is mainly spent in my living room because it hurts to drive or ride in a vehicle. However, when I started thinking about suicide, I realized I cannot alow the pain to reduce me to tears and suicide! Life is too precious and I cannot allow the pain to win!

My life's passions are my men (hubby, Vin, and son, Vinny), gardening and flowers, and helping others. NE Pennsylvania is not conducive for gardening at the end of November so I bought myself a beautiful purple Cyclamen the other day as a reminder that eventhough I am in pain, life still has a great deal of beautiful things to offer! Over the last couple of days, I spent a large amount of time with my loved ones to remind myself that happiness and support surround me. I have started reminding myself to think positively instead of negatively. For instance, instead of: "OMG, I hurt so bad right now!" I have started to say, "OK, I hurt, but it could be worse!" After reading the info on the Mayo Clinic site, I started some very simple breathing exercises, which increases the level of oxygen in the blood which gets the blood moving and does reduces the the pain! Tomorrow, I am going to search for my Yoga for beginners DVD as studies have shown that yoga is good for increasing blood flow, reducing pain, and strengthening the core muscles.

If we change our ways of thinking to see what we can do to help ourselves: not try to lift the 40 lb bag of pellets because of the after pain or retrain our thoughts to be more positive instead of negative, we can reduce at least some of the pain.

If you want to talk, please do not hesitate to reach out - cell also has text: 570807-2463.

I'll check back as I know that even though today I am in a positive mood, tomorrow may be different!

Just a bit more backround: I will be 40 on February 18th, happily married, have 1 son, work full time, and go to school full time (University of Phoenix Online) with a 3.87 GPA.