Has anyone had monoclonal antibody treatment for COVID infection?
Has anyone here had this treatment and did you have any side effects from it. There seem to be a lot of side effects.
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I had it done Sept,2021 at Sanford Hospital in Tracy, MN.
Let me start off by letting you know that I I'm 60 years old and have Autism Spectrum Disorder. it is a struggle to put down what I am trying to say without it turning into a novel. So my daughter always tells me, "give me the Reader's Digest Version mom" which is almost always impossible for my brain to accomplish.
I had the antibody treatment about 5 days after my covid symptoms appeared,.(4 days after Thanksgiving) I had a choice of either through IV or injections in my stomach. Since the injections were a little bit quicker, that is the route I took. There was 2 people that gave the injections to me simultaneously. There was 4 injections. Two on the lower right front and two on the lower left front of the abdomen. There was definitely no improvement in my symptoms, I actually seem to get worse and the covid lasted longer than I figured it would. After the 14 days quarantine it turned into Long haul symptoms. Which are severe fatigue and tired all the time. Still no taste or smell, shortness of breath, brain fog and dizziness. I just had some blood test done last week and it showed that I had elevated Carbon Dioxide levels. I go to the doctor on the 13th of January for her to go over my blood work. Has anybody had this? I don't know if this is considered a symptom from the antibody treatment or from the covid 19 itself. I have also been having low oxygen off and on. Also whole body weakness. Also green when blowing my nose. I hope that was appropriate to say. I'm not trying to gross anybody out.
Hi Philippia, I love that you and your daughter have a code of "just the Reader's Digest version". I want to invite you to the Autism group here: https://connect.mayoclinic.org/group/autism/
Were you diagnosed as a child or an adult?
Back on topic of long-haul COVID.
I'm sorry to hear that the monoclonal antibody injections didn't help you. I wonder if you had had COVID for a longer incubation time before symptoms appeared. Would you mind sharing what you learned at your appointment last week? Were they able to explain the elevated carbon dioxide levels? Have pulmonary rehab or breathing exercises been recommended?
I was diagnosed with Autism Spectrum Disorder as an adult, two and a half years ago. I was actually exposed to covid the day before Thanksgiving. I hadn't been anywhere prior to that for probably 2 weeks. Then my daughter picked me up and took me to their house to have Thanksgiving with them. My son-in-law got home on Tuesday evening before Thanksgiving from a week of being out of town for work. He had active covid at that time but none of us knew that. I started getting symptoms on that Friday, and then my daughter and 6-year-old granddaughter started getting symptoms on Saturday. We all did the home self tests on Sunday and everybody was positive. I was the only one that got the monocolonial antibody treatment because I was at high risk. My daughter's symptoms lasted about 6 days, and my granddaughter had very mild symptoms that lasted about 24 hours. Also my daughter had a kidney removed at the Mayo Clinic
in Arizona in April of last year.
I saw my doctor's PA on the 13th. She said all of my vitals were good at the time and the carbon dioxide levels were just a little bit out of range so she said that they can check again in about 6 weeks to see if the levels have changed. But I push the issue because I was told that sometimes with some people their levels can only be just a little bit out of range but should be something to be looked into further. Everybody's bodies are different and it is not a one size fits all type of thing. But she said since my vitals are good my oxygen was 97 that there is nothing to be concerned about. I told her well my oxygen levels just happened to be good at that point in time, but it is not 24 hours a day that my oxygen goes low so I told pressed the issue with my oxygen with her also, because that is intermittent and it just happened to be okay while I was in the office at that time. So she decided because I was being so adamant, that she would put the pulse oximeter on my finger and then walked with me for about 20-30 feet and my oxygen went down to 92 just in that short walk. So then she said they may have to put me on oxygen, but she wanted to talk to my doctor first. So I have not heard back from her yet. Oh, and she did not mention anything about pulmonary therapy or whatever you called that Lol.😊 I even get short of breath just singing a little bit in the congregation at church. But I am just too exhausted to even go back to church yet.
Contact ur PCP to find out protocol in ur area. google location of monoclonal antibody infusion in ur area. I did this for my daughter as she progressed with COVID. By the time she was admitted to her local hospital they weren’t available due to govt hold. Grrrr
I was adamant about my sats lowering at rest, that as the tech was inputting stuff in computer I desat to 88%. I recently had an inpatient sleep study as I was sure I needed 02 at night but instead after 2 hrs they put on CPAP. Now I’m waiting 2 weeks for results and restart CPAP again (my first machine was recalled…. Still waiting for that replacement).
The fdas eua says u have 10 says from start of symptoms to get the treatment but infusion centers shorten that on their own making it imposdible to test and get the referral in so I was denied
I had infusion before 10 days which is the key. Need to have underlying health issue. No taste from Covid or smell has been 4 months
Sorry 10 days not 20
I had the infusion and I did not feeling better. I had Covid-19 for 2 months. Believe me I got it from the hospital after a procedure in the cath lab. I stay in unless I have a DR appointment. I wear 2 mask. I can’t believe people don’t believe in Covid-19.