Syncope, low B12, chronic fatigue
OK, I am 25 years old and gave birth in 2008 to my daughter. My first symptom occurred at work while standing. I felt very hot and started to see small black dots and in seconds I was unconscious laying on the floor. I fainted for the first time in my life. I felt very shaky and weak after the syncope. Shortly after that I started fainting regularly every month then every week. I went to my primary care physician and she ran some tests that said my vitamin b 12 levels were very low. My C- reactive protein was slightly high and my monocytes were elevated. She started me on B 12 injections monthly. But they were still too low. I have maintained my levels with biweekly injections. During this time I went to a neurologist, cardiologist. I also developed ADD. Severe confusion and inability to concentrate and coordinate things. Extremely frustrating! Especially in my line of work as a vet tech. I was put on adderall which helps me with focusing but when meds wear off i struggle. I am not overweight and I am not a vegetarian. . Over the past 4 years I have had a lot of strange new symptoms syncope, collapse, elevated D-dimer (had pluerisy ), multiple large lumps in my breasts ( fibroadenomas) that cause excruciating pain for months at a time, chronic fatigue, muscle and back pain, cloudy strong odor with urine( u/a results all normal), blood in stool for 3 years, joint pain( knees, wrists and ankles) , vision changes (blurred vision ), low sex drive, headaches( mostly sharp pain on left side of my head), dizziness, hypotension, sudden loss of appetite hours after adderal has worn off, bloating, constipation, severe mood swings (severe anger and agitation) , chronic feeling to always crack my wrists and ankles( feel stiff),nausea without vomiting, chewing inside of my cheeks??? I get sick quite often too. I NEED HELP and no doctor can seem to help me. They seem to think I am young and these problems will pass but it's been 4 years now and I feel like I can't go anymore. I just want a doctor who is going to go the extra mile and not just assume. But can't seem to find those old school doctors anywhere any more.. SOMEONE PLEASE HELP ME!
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I have been diagnosed with Chiari Malformation and just recently had the Decompression Surgery. My doctors are currently looking into possible EDS and POTS. They tested me for vasovagal syncope but it was ruled out. My vague nerve was being compressed by the Chiari Malformation which was causing the passing out I was experiencing. I have lots of questions but have yet to come across anyone who has had a similar experience to me. Since with Chiari every case can be so different.
Hi, @mec4 - I'd also like to recommend this discussion that's been going for a few years to present day on chiari malformation - on type 1, in particular -https://connect.mayoclinic.org/discussion/chiari-malformation-type-1-20782d/. It might be interesting to read about others' experiences, and I'm sure they would be interested in hearing about yours, if you wish to share there.
Thanks! I will check that out!!
I have SO MANY of the same things you are describing and in just the last year and a half “whatever this is” has now moved into every single organ in my body!
I am terrified!
Please let me know if there is ANYTHING you have learned!
Or ANYTHING you think may be helping you- medical OR personal choice
Hi Chglobig, can you share more about the symptoms you're experiencing? Have you been given a diagnosis?