Syncope, low B12, chronic fatigue

Posted by MandyVet-Tech @mandyvettech, Apr 19, 2013

OK, I am 25 years old and gave birth in 2008 to my daughter. My first symptom occurred at work while standing. I felt very hot and started to see small black dots and in seconds I was unconscious laying on the floor. I fainted for the first time in my life. I felt very shaky and weak after the syncope. Shortly after that I started fainting regularly every month then every week. I went to my primary care physician and she ran some tests that said my vitamin b 12 levels were very low. My C- reactive protein was slightly high and my monocytes were elevated. She started me on B 12 injections monthly. But they were still too low. I have maintained my levels with biweekly injections. During this time I went to a neurologist, cardiologist. I also developed ADD. Severe confusion and inability to concentrate and coordinate things. Extremely frustrating! Especially in my line of work as a vet tech. I was put on adderall which helps me with focusing but when meds wear off i struggle. I am not overweight and I am not a vegetarian. . Over the past 4 years I have had a lot of strange new symptoms syncope, collapse, elevated D-dimer (had pluerisy ), multiple large lumps in my breasts ( fibroadenomas) that cause excruciating pain for months at a time, chronic fatigue, muscle and back pain, cloudy strong odor with urine( u/a results all normal), blood in stool for 3 years, joint pain( knees, wrists and ankles) , vision changes (blurred vision ), low sex drive, headaches( mostly sharp pain on left side of my head), dizziness, hypotension, sudden loss of appetite hours after adderal has worn off, bloating, constipation, severe mood swings (severe anger and agitation) , chronic feeling to always crack my wrists and ankles( feel stiff),nausea without vomiting, chewing inside of my cheeks??? I get sick quite often too. I NEED HELP and no doctor can seem to help me. They seem to think I am young and these problems will pass but it’s been 4 years now and I feel like I can’t go anymore. I just want a doctor who is going to go the extra mile and not just assume. But can’t seem to find those old school doctors anywhere any more.. SOMEONE PLEASE HELP ME!

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Get tested for celiac disease, which can be triggered by pregnancy. That would explain all your symptoms including the low B12

Liked by maggiemae

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@hannah31

Get tested for celiac disease, which can be triggered by pregnancy. That would explain all your symptoms including the low B12

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Thank u I looked up this disease as well. My dr seemed to think it was an endocrine disorder but all tests came back normal … Yet again another dead end..

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You need to get tested for MTHFR, of you haven’t already. Ask your health care practitioner to order a genetic test to see if you are heterozygous or homozygous for the MTHFR C677t mutation, or if you are homozygous for the MTHFR A1298C mutation. If you are, you may be having severe methylation issues. My son had many of the same symptoms you describe (with the exception of the cracking joints and lumps in breasts) and he has been able to improve dramatically after discovering he was homozygous for one of these mutations, and then getting treatment. Good luck!

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@anderwoman

You need to get tested for MTHFR, of you haven’t already. Ask your health care practitioner to order a genetic test to see if you are heterozygous or homozygous for the MTHFR C677t mutation, or if you are homozygous for the MTHFR A1298C mutation. If you are, you may be having severe methylation issues. My son had many of the same symptoms you describe (with the exception of the cracking joints and lumps in breasts) and he has been able to improve dramatically after discovering he was homozygous for one of these mutations, and then getting treatment. Good luck!

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I was diagnosed in 2008 with Parkinsons. I was referred to a Doctor who ran the MTHFR test to rule it out. I had MTHFR, it took a year of treatment to stop shaking. I am Happy, working, and I can use silverware again! I do not have Parkinsons. Praise God and the Doctors who run this test.

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Along with MTHFR I Have B12 anemia. Check on B12 anemia.

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Do you use Rubber Latex at work? I was, developed a severe allergy. There are patch allergy tests and food panel blood test. I get angry when exposed to a allergen.

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You should get a Head MRI and be checked for a Chiari Malformation. You should also get checked for Vasovagal Syncope, POTS and EDS.

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@mec4

You should get a Head MRI and be checked for a Chiari Malformation. You should also get checked for Vasovagal Syncope, POTS and EDS.

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I had vasovagal syncope caused by anxiety from being sensitive to caffeine. Of course, as indicated by all the entries, there are alot of possible causes. I wish I could help more but we are not doctors so we cannot diagnose. Lots of suggestions for you to research. Keep on trying to pin down a cause and please do update us on your progress in doing this.

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@mec4

You should get a Head MRI and be checked for a Chiari Malformation. You should also get checked for Vasovagal Syncope, POTS and EDS.

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Hi, @mec4 – I wanted to add my welcome to that of @johnhans. Thanks for your suggestions for @Nepeta_Cataria and others here in this discussion on Syncope, LOW B12, chronic fatigue.

Have you or a loved one experienced chiari malformation, Vasovagal Syncope, POTS or EDS? Do you have any questions you are looking to get answered today?

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@lisalucier

Hi, @mec4 – I wanted to add my welcome to that of @johnhans. Thanks for your suggestions for @Nepeta_Cataria and others here in this discussion on Syncope, LOW B12, chronic fatigue.

Have you or a loved one experienced chiari malformation, Vasovagal Syncope, POTS or EDS? Do you have any questions you are looking to get answered today?

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I have been diagnosed with Chiari Malformation and just recently had the Decompression Surgery. My doctors are currently looking into possible EDS and POTS. They tested me for vasovagal syncope but it was ruled out. My vague nerve was being compressed by the Chiari Malformation which was causing the passing out I was experiencing. I have lots of questions but have yet to come across anyone who has had a similar experience to me. Since with Chiari every case can be so different.

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@mec4

I have been diagnosed with Chiari Malformation and just recently had the Decompression Surgery. My doctors are currently looking into possible EDS and POTS. They tested me for vasovagal syncope but it was ruled out. My vague nerve was being compressed by the Chiari Malformation which was causing the passing out I was experiencing. I have lots of questions but have yet to come across anyone who has had a similar experience to me. Since with Chiari every case can be so different.

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Hi, @mec4 – I'd also like to recommend this discussion that's been going for a few years to present day on chiari malformation – on type 1, in particular -https://connect.mayoclinic.org/discussion/chiari-malformation-type-1-20782d/. It might be interesting to read about others' experiences, and I'm sure they would be interested in hearing about yours, if you wish to share there.

Liked by mec4

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@lisalucier

Hi, @mec4 – I'd also like to recommend this discussion that's been going for a few years to present day on chiari malformation – on type 1, in particular -https://connect.mayoclinic.org/discussion/chiari-malformation-type-1-20782d/. It might be interesting to read about others' experiences, and I'm sure they would be interested in hearing about yours, if you wish to share there.

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Thanks! I will check that out!!

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