Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Sounds good! I did have a lung resection at the beginning of January 2021 and there is a tiny spot in another part of my lung that was noticed in May 2021. It's growing so slowly that we decided to sit and wait. This will be the first time I don't have to come back for six months. This time I feel confident enough to be willing to wait that long between appointments. My idea is to live every day to the fullest, get things done while I have the energy to do them so if this darn cancer comes back, I won't be fretting about all the things I really needed to get done, but wasted my time instead. At least one thing about cancer is that we truly know not to take each day for granted, we say the things to people that are important to communicate, and to not sweat the small stuff. For those reminders I'm grateful. Plus I get to hang out on my porch swing with all you interesting people. It's nice not to sit alone.

I'm so happy that things worked out for you!!!

Thank You,
My Transplant has worked out great. The cancer has mets. to my Lungs and Spinal cord. So I am dealing with this for now. Blessed to be Here.

@jerrydrennan,

It is good to have you on Connect.

Do you know what treatments will follow for the METs to the lungs and spinal cord?

Hello @tball3748 and welcome to Mayo Clinic Connect. I appreciate you sharing your journey with cholangiocarcinomas. We have other members who have mentioned Dr. Smoot at Mayo and they all seem quite pleased with his work.

From what you posted it sounds like it will be another month before you have an MRI scan to see if the tumor has shrunk. Is my understanding correct?

Have you tolerated the nightly chemo well? Any side effects?

I have been on Gem/ Carb. for the past year. I had Vascular invasion . Tumors have shrunk to nodules on spinal cord. the nodules in the lungs have gone but the tumors have had very little shrinkage but they are shrinking slowly.

Hello @mngardenaddict

It was good to read your post and see what a good attitude you have developed as a result of these serious health issues.

I appreciate your mentioning that you no longer take a day for granted and that you communicate things to people that are important.

You mention that this is slow-growing cancer. Do you know the name of it?

I love word pictures and the one I really like is that you are glad that you "get to hang out" on your porch swing with all of the interesting people on Connect. You are right when you say, "It's nice not to sit alone."

I'm glad that there is a shrinking of the tumors, @jerrydrennan. Do you currently have pain with the nodules on the spinal cord?

The nodules/tumors was found by accident. I was in a auto accident 1 year after my transplant. the accident broke my neck . C6 and C7 shattered. I had brackets and screws put in to hold my head on. the MRI and CT scan after the emg. surgery showed the lesions on my spinal cord and noticed tumors in my lungs. So to anwer the Question you had. Yes I am in a lot of discomfort. I am working with palliative care. Pain Management was not able to help. I have some relief from Meds but i am limited due to the transplant.