Severe eye pain and visual disturbances no one can diagnose

Posted by aaronh819 @aaronh819, Sep 25, 2018

I have been to so many specialists had mri ct which all came back good thank the Lord. Week before last I was admitted into the university of Louisville and they still could not find out what is causing me these terrible problems. They believed me 100 % just did not have any answers. They done another mri which showed volume loss and I Pray with every ounce in me that doesn’t mean anything bad. my worst problems are severe debilitating eye pain and visual disturbances that are never ending. The worst vision problems are seeing objects repeatedly everything I look at, it doesn’t have to be anything bright anymore, severe light sensitivity, flashes of light, always see light with my eyes closed, seeing moving white dots of light all the time, shadows and spots that aren’t there silhouettes of almost everything I look at bad floaters which I don’t hardly notice compared to the other bad things and so so much more. I have been to multiple eye specialists who all say my eyes structurally check out fine. This has progessively gotten so much worse it’s almost unbearable. Also my eyes have became red almost all the time. The pain has made it impossible to live life normally I’ve dealt with this for over a year with it increasingly getting worse. I am honestly worried about my life this has progressively gotten so much worse it has stopped life as I knew it and can’t find help. Have also been having one sided headaches for years now and seeing my heartbeat in my vision along with plugged ears all the time. I’m only 32 all I ever want is please God in Jesus name to have everything restored back to normal I desperately need a miracle. Anyone that can help in anyway please do. I know we aren’t suppose to post personal info but I don’t mind I am beyond desperate.

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dibr | @dibr | Nov 4, 2018

@aaronh819 Hi, I understand where you are coming from with pain and headaches on one side. I too am experiencing this with no answers. I'm from Canada and we have a show called W5 which interviewed a Dr. from New England on October 20, 2018 Dr. Pedram Hamrah who is with Tufts Medical Centre https://www.tuftsmedicalcenter.org/patient-care-services/Departments-and-Services/Ophthalmology

The show (W5) was about Lasik Surgery but I look at this as issues when laser is used. This doctor has equipment that can see problems that ophthalmologists can't see because the standard equipment is unable to.

Here's the article and link to the show. It's very good and I think it might be worth it to call his office to get more information.
https://www.ctvnews.ca/w5/w5-investigates-a-rare-but-painful-side-effect-of-laser-eye-surgery-1.4141117
Hope this helps.

babyholder | @babyholder | Jan 11, 2022

I am so sorry for what you’re going through and pray you are feeling better these days. Recently, I had bilateral iridotomies done and my eyes have never been the same. It in my left eye, my vision is very blotchy and spotty. I also have two white lines in both eyes when I am in bright settings.
I’m praying for a miraculous healing too.

katsimj | @katsimj | 11 hours ago

I empathize with your symptoms. I have been having similar symptoms that kinda took a while for anyone to take seriously honestly. I can't tell if its because I present my pain differently or if it's another external view of me but after 5 months of progressively severe on and off right eye pain, that accompanied right sided headaches that felt like something was squeezing and throbbing and on the verge of erupting, with the pain radiating to the whole side of my right face/head, sensitivity to lights when pain symptoms were on, peripheral or nearly out of view black floaters, and at times (at it's peak/worst) upper posterior thigh pain. I was able to get an appointment with my Opthamologist, who took OCT images, he looked worried at first. I found out today that the first 2 sets of OCT images showed artifacts in both images. Today I took three OCT images (they were trying to rule out technical issues) and the artifacts persist. This is contrary to the images I took 2 years ago. The provider POV of my optic nerves for July's and today's appt showed worsening (but still mild, I asked for a scale and he said on the scale that starts with an F-- I cant spell it -- it was a 1) blurred margins from my 2024 images and the provider notes slight but viewable vein obstruction. He noted my dry eye symptoms are separate from these findings and so is my Ulcerative Colitis autoimmune disease (He is the first provider out of the many I asked for help to do all these testings but I have a hard time ruling out my autoimmune disease is not somehow influenced or influences these changes). I dont know. I empathize with you. I have a MRV of my brain and a lumbar spine puncture scheduled as well as another test I cant remember, but I honestly believe that I will not get any answers or it will be a very long time before I get answers. The pain is unbearable at times. The ER doctor I went to back in March refused to treat me. The pain was so bad I couldnt speak. At times the pain is bad that I cannot sleep and that can deter quality of life quite a bit. I am not new to chronic pain but that doesnt mean at times I think not being alive is better than being in pain and being dismissed or being told you dont present as someone who's in pain. I hope you have found some relief by now. It would give me a bit of hope.