Severe eye pain and visual disturbances no one can diagnose

Posted by aaronh819 @aaronh819, Sep 25, 2018

I have been to so many specialists had mri ct which all came back good thank the Lord. Week before last I was admitted into the university of Louisville and they still could not find out what is causing me these terrible problems. They believed me 100 % just did not have any answers. They done another mri which showed volume loss and I Pray with every ounce in me that doesn’t mean anything bad. my worst problems are severe debilitating eye pain and visual disturbances that are never ending. The worst vision problems are seeing objects repeatedly everything I look at, it doesn’t have to be anything bright anymore, severe light sensitivity, flashes of light, always see light with my eyes closed, seeing moving white dots of light all the time, shadows and spots that aren’t there silhouettes of almost everything I look at bad floaters which I don’t hardly notice compared to the other bad things and so so much more. I have been to multiple eye specialists who all say my eyes structurally check out fine. This has progessively gotten so much worse it’s almost unbearable. Also my eyes have became red almost all the time. The pain has made it impossible to live life normally I’ve dealt with this for over a year with it increasingly getting worse. I am honestly worried about my life this has progressively gotten so much worse it has stopped life as I knew it and can’t find help. Have also been having one sided headaches for years now and seeing my heartbeat in my vision along with plugged ears all the time. I’m only 32 all I ever want is please God in Jesus name to have everything restored back to normal I desperately need a miracle. Anyone that can help in anyway please do. I know we aren’t suppose to post personal info but I don’t mind I am beyond desperate.

@anniemaggie, I am happy for you that you have relief from this. I pray that it continues for you.

@rosemarya

@dibr, Welcome to Mayo Connect, and Welcome to this discussion.
Did your pain and visual problems come on suddenly? And have you found any ways to live with this until you get connected with a good opthamologist for another appointment?

Jump to this post

@rosemarya I did not have headaches or eye pain prior to iridotomy, only until immediately after the first laser zap of the iridotomy. From that point forward, they have never gone away.

@rosemarya

@dibr, Welcome to Mayo Connect, and Welcome to this discussion.
Did your pain and visual problems come on suddenly? And have you found any ways to live with this until you get connected with a good opthamologist for another appointment?

Jump to this post

No, the pain triggered immediately after the first laser zap and continues on to this day, including headaches. Pain and headaches are all on the right side as this is the eye that is having the issues. I have not found any ways to live with this.

@dibr

No, the pain triggered immediately after the first laser zap and continues on to this day, including headaches. Pain and headaches are all on the right side as this is the eye that is having the issues. I have not found any ways to live with this.

Jump to this post

I found this discussion where might find some information. Eye Conditions YAG Laser Iridotomy Complications
https://connect.mayoclinic.org/discussion/yag-laser-iridotomy-complications/?pg=1#chv4-comment-stream-header

@dibr

No, the pain triggered immediately after the first laser zap and continues on to this day, including headaches. Pain and headaches are all on the right side as this is the eye that is having the issues. I have not found any ways to live with this.

Jump to this post

I would recommend staying off computer, cell phone, tv anything that might stimulate your eye. Also, I would reduce caffeine. The most important thing for your eyes is sleep so pay attention for a week to insure your getting sufficient eye rest. Plus wear sunglasses when in the sun. After a week or two, if pain is still intolerable, you’ll have to get it checked by an ophthalmologist or an eye institute. I’m sorry you’re having to go through such suffering.

@aaronh819 Hi, I understand where you are coming from with pain and headaches on one side. I too am experiencing this with no answers. I'm from Canada and we have a show called W5 which interviewed a Dr. from New England on October 20, 2018 Dr. Pedram Hamrah who is with Tufts Medical Centre https://www.tuftsmedicalcenter.org/patient-care-services/Departments-and-Services/Ophthalmology

The show (W5) was about Lasik Surgery but I look at this as issues when laser is used. This doctor has equipment that can see problems that ophthalmologists can't see because the standard equipment is unable to.

Here's the article and link to the show. It's very good and I think it might be worth it to call his office to get more information.

https://www.ctvnews.ca/w5/w5-investigates-a-rare-but-painful-side-effect-of-laser-eye-surgery-1.4141117?fbclid=IwAR1lVjilnHMUZh1z5UDjJXGaFozUiTV0IgEM8gu8H8A6k0nsoyARe_pqABs

Hope this helps.

Please login or register to post a reply.