Colleen Young, Connect Director | @colleenyoung | Jan 9, 2022
Welcome, @mrfrustrateduk. Can you tell me a bit more about what is going on? Do you have Parkinson's? What is contributing to your being frustrated sexually?
Per Cleveland Clinic:
About 10% of cases are genetic, meaning you inherit them from one or both parents. However, the remaining 90% or so are idiopathic, which means they happen for reasons that are still unknown.
Frankly food,exercise and stress management especially with trusting great friends does wonders to our overall health. It seems to have worked mostly for 80 yrs on me, even without a few friends whom I seek every hour. Ciao.
Per Cleveland Clinic:
About 10% of cases are genetic, meaning you inherit them from one or both parents. However, the remaining 90% or so are idiopathic, which means they happen for reasons that are still unknown.
Frankly food,exercise and stress management especially with trusting great friends does wonders to our overall health. It seems to have worked mostly for 80 yrs on me, even without a few friends whom I seek every hour. Ciao.
In my situation/environment...which may not similar to some others....I have kept many PD symptoms at bay. I've learned to enjoy long walks, stretching exercise twice daily and my small exercise bike. I make my own granola and cling to Mediterranean foods. I insist on active life....yard and house chores. If there is inconvenience and pain in such self discipline...I prefer IT to the pain and inconvenience of PD.
NO, not all is perfect. I am 85. Doctors issue meds, but do not have time to give experienced advice. There is poor PD advice on YouTube. BUT there are also good recognized YouTube clinics with supportive helps. Watch and listen and discipline. Avoid feeding on DEPRESSIVE TV news, movies, and story lines where you watch "people hurting people".
NO, not all is perfect...there is some suffering from PD hovering in my life and distorting my brain function.
In my situation/environment...which may not similar to some others....I have kept many PD symptoms at bay. I've learned to enjoy long walks, stretching exercise twice daily and my small exercise bike. I make my own granola and cling to Mediterranean foods. I insist on active life....yard and house chores. If there is inconvenience and pain in such self discipline...I prefer IT to the pain and inconvenience of PD.
NO, not all is perfect. I am 85. Doctors issue meds, but do not have time to give experienced advice. There is poor PD advice on YouTube. BUT there are also good recognized YouTube clinics with supportive helps. Watch and listen and discipline. Avoid feeding on DEPRESSIVE TV news, movies, and story lines where you watch "people hurting people".
NO, not all is perfect...there is some suffering from PD hovering in my life and distorting my brain function.
Hello @ronwolf and welcome to the PD support group on Mayo Connect. I really appreciate your uplifting message. There is a lot that we can do limit the disability that can come with a PD diagnosis. Your example of exercise, a healthy eating plan and remaining positive are all important factors in dealing with any chronic illness, especially PD.
If you are looking for some good educational videos that deal with Parkinson's I suggest The Davis Phinney Foundation website. They produce great, informative videos on a regular basis. Here is a link to their website,
--The Davis Phinney Foundation: https://davisphinneyfoundation.org/
Under the resource tab, you will find videos and other research information.
I look forward to getting to know you and as you are new to this forum, would you be comfortable sharing more about your diagnosis? For example, how long ago was the diagnosis made, what symptoms led to the diagnosis, etc.
Yes, I have use the Davis videos...I agree they are the most helpful. I am a 75% visual learner. Manuals, verbal lists and extravert doctors do not fit well with me. I am a Professional photographer which explains it all. I use my visual skills as I walk...sometimes with my camera....or umbrella in Oregon.
When exercising in the house, I use Calm...background piano music as provide free by Kaiser P. I think/listen in pictures...rather than anxiety thoughts. NO not perfect...I promise!
Glad to share only when asked ...I attempt to practice transparency rather than denial. Denial: as lying to myself about what everyone else can see.
Yes, I have use the Davis videos...I agree they are the most helpful. I am a 75% visual learner. Manuals, verbal lists and extravert doctors do not fit well with me. I am a Professional photographer which explains it all. I use my visual skills as I walk...sometimes with my camera....or umbrella in Oregon.
When exercising in the house, I use Calm...background piano music as provide free by Kaiser P. I think/listen in pictures...rather than anxiety thoughts. NO not perfect...I promise!
Glad to share only when asked ...I attempt to practice transparency rather than denial. Denial: as lying to myself about what everyone else can see.
Hello @ronwolf and welcome to the PD support group on Mayo Connect. I really appreciate your uplifting message. There is a lot that we can do limit the disability that can come with a PD diagnosis. Your example of exercise, a healthy eating plan and remaining positive are all important factors in dealing with any chronic illness, especially PD.
If you are looking for some good educational videos that deal with Parkinson's I suggest The Davis Phinney Foundation website. They produce great, informative videos on a regular basis. Here is a link to their website,
--The Davis Phinney Foundation: https://davisphinneyfoundation.org/
Under the resource tab, you will find videos and other research information.
I look forward to getting to know you and as you are new to this forum, would you be comfortable sharing more about your diagnosis? For example, how long ago was the diagnosis made, what symptoms led to the diagnosis, etc.
Welcome, @mrfrustrateduk. Can you tell me a bit more about what is going on? Do you have Parkinson's? What is contributing to your being frustrated sexually?
Per Cleveland Clinic:
About 10% of cases are genetic, meaning you inherit them from one or both parents. However, the remaining 90% or so are idiopathic, which means they happen for reasons that are still unknown.
And here's something that I believe much: healthy food and hard exertion. so here's John Hopkin's suggestion on it. https://www.hopkinsmedicine.org/health/conditions-and-diseases/parkinsons-disease/fighting-parkinson-disease-with-exercise-and-diet
Frankly food,exercise and stress management especially with trusting great friends does wonders to our overall health. It seems to have worked mostly for 80 yrs on me, even without a few friends whom I seek every hour. Ciao.
In my situation/environment...which may not similar to some others....I have kept many PD symptoms at bay. I've learned to enjoy long walks, stretching exercise twice daily and my small exercise bike. I make my own granola and cling to Mediterranean foods. I insist on active life....yard and house chores. If there is inconvenience and pain in such self discipline...I prefer IT to the pain and inconvenience of PD.
NO, not all is perfect. I am 85. Doctors issue meds, but do not have time to give experienced advice. There is poor PD advice on YouTube. BUT there are also good recognized YouTube clinics with supportive helps. Watch and listen and discipline. Avoid feeding on DEPRESSIVE TV news, movies, and story lines where you watch "people hurting people".
NO, not all is perfect...there is some suffering from PD hovering in my life and distorting my brain function.
Hello @ronwolf and welcome to the PD support group on Mayo Connect. I really appreciate your uplifting message. There is a lot that we can do limit the disability that can come with a PD diagnosis. Your example of exercise, a healthy eating plan and remaining positive are all important factors in dealing with any chronic illness, especially PD.
If you are looking for some good educational videos that deal with Parkinson's I suggest The Davis Phinney Foundation website. They produce great, informative videos on a regular basis. Here is a link to their website,
--The Davis Phinney Foundation:
https://davisphinneyfoundation.org/
Under the resource tab, you will find videos and other research information.
I look forward to getting to know you and as you are new to this forum, would you be comfortable sharing more about your diagnosis? For example, how long ago was the diagnosis made, what symptoms led to the diagnosis, etc.
Yes, I have use the Davis videos...I agree they are the most helpful. I am a 75% visual learner. Manuals, verbal lists and extravert doctors do not fit well with me. I am a Professional photographer which explains it all. I use my visual skills as I walk...sometimes with my camera....or umbrella in Oregon.
When exercising in the house, I use Calm...background piano music as provide free by Kaiser P. I think/listen in pictures...rather than anxiety thoughts. NO not perfect...I promise!
Glad to share only when asked ...I attempt to practice transparency rather than denial. Denial: as lying to myself about what everyone else can see.
I appreciate all the information you provided and I'm glad that you found The Davis Phinney Foundation website.
There are some helpful exercise videos provided by the Michigan Parkinson's Foundation. Here is a link to those
https://m.youtube.com/results?sp=mAEA&search_query=michigan+parkinson%27s+foundation
What is the most difficult PD symptom that you are currently dealing with @ronwolf?
Please explain for others who prefer to sit than exercise;
stretching exercise, daily walking, biking, house and yard work often provides an extra dose of
depramine comfort???