Anyone with Meniere's Disease been prescribed Betahistine?

Hi coopermoon! Bicross aides have a device in each ear. Because I am deaf in my right ear the device there acts as s transmitter to send sound, voice etc to a receiver in my left ear. The left ear device also acts as a hearing aid because I have a moderate to profound loss there too.
They work well. If you have any other questions I'm happy to help if I can.

I have two sets of battery hearing aides from Miracle Ear but nobody mentioned your type to me. I bought battery ones because I need to hear and not wait for eight hours to have them charge. Anyway, now the specialist board certified doc here
In Phoenix has yet another audiologist who says I am recommended for at least one cochlear implant, if not two. Scary

Hi @coppermoon. Are you seeing the ENT and audiologist at Mayo Phoenix? I've been there as well. A cochlear implant can add so much to your hearing ability. I was ineligible for this procedure because my hearing loss began so long ago and I am deaf in one ear. I wish I could have received an implant! Also, I am a heart transplant recipient and my heart docs were not willing to okay the procedure for me. My bicros aids are from Phonak and were quite expensive. The ones I have now are my fourth pair. Really, any procedure can be scary and create anxiety. My advice is to listen to all the options they provide. If you have other questions, let me know. You can message me as well or we could talk on the phone. Stay well.

No I am seeing Dr Syms in Phoenix. But I wish there were a group of implant patients to discuss this with! Scary for sure, I have had great care for other issues from the Swedish system in King County. They have records on computer, accessed from anywhere in the world. Meanwhile, docs here do not even give me a piece of paper when I see them at sole practitioner offices. It is like a system 10 years behind the times. So my confidence level goes down.

Mayo does not seem to take Medicare, and I have other insurance but always get a vague answer if I ask. However it was this advice group that mentioned antibiotics in shots through the eardrum when I had sudden hearing less in June. But that did not help. So here I am, in Sun City Grand, hoping for the best!

Boy, can I ever understand your dismay with "Meanwhile, docs here do not even give me a piece of paper when I see them at sole practitioner offices. It is like a system 10 years behind the times. So my confidence level goes down." That's exactly what if feels like traveling between Minnesota and far South Texas. And some of their treatment and surgical techniques are like that too. I find it frightening how wide the disparity is in medical care depending on where you live.
Sue

Good morning @coppermoon! I found a cochlear implant support group online that might provide the information and confidence you are looking for. First, here is the Mayo Clinic info on cochlear implants.
https://www.mayoclinic.org/tests-procedures/cochlear-implants/care-at-mayo-clinic/pcc-20385023
Here is the support group online on Facebook.
https://www.facebook.com/CochlearImplantSupportGroup/
Take care. Ellen

FWIW, nearly 40 years ago I was told that my right ear, the one affected my Meniere's at that time, was not aidable, due to recruitment. Bicross aids were mentioned as a POSSIBLE solution--not a sure one. Of course, aids have improved greatly during the past four decades, so that makes sense. My trigger is abnormally low hormone levels; it took four years to learn what the safe combination of hormones is. Once I started mega doses, crises ceased and I was able to begin VRT to combat balance issues. I slowly cut back on the hormones as I was in my 40s at the time. For the past 30 years, I've been taking relatively small doses of hormones, but enough to keep the Meniere's monster at bay.

Four years ago, my good left ear had age-related deafness to the point that I went to Costco, had tests, got an aid for that ear. which did help hearing...until two years ago, when I went bilateral. (I think I had cut back too far on the hormones, but that's just what I think, not what anyone knows for certain.) Most of the time, I couldn't tolerate wearing the aid in my good left ear, due to recruitment--loud/sharp sounds were very painful. As a result, I was close to totally deaf. For a year, I tried to find a local doc willing to prescribe large doses of the correct combo of hormones. When I finally did, within two weeks of mega doses of hormones, hearing returned to the level it had been in my left ear and the recruitment was far, far less so that I could tolerate the aid. I'm still taking large doses of hormones, although less than half what I took for a brief period of a few weeks.

A couple of months ago, duh, it dawned on me that perhaps, if the recruitment in my good left ear was far less, perhaps there was less recruitment in my long useless right ear so that I could try wearing an aid in it. Went back to Costco, asked for a hearing test. The test confirmed that recruitment in my right ear is far, far less, so not quite a month ago I bought a pair of new aids (which cost slightly less than the single aid I'd bought four years ago!). Wow! I still have issues understanding speech, but I can hear things I haven't heard for decades! What a thrill! No longer need to check the gauges to confirm that I've turned my car on, or walk the length of the kitchen to feel if the dryer has finished. Better yet, tinnitis is now pretty insignificant, and I haven't had a single aural hallucination (where you hear things that clearly aren't present). The big machine in the space under my bedroom disappeared, no longer runs every night! If I hear the coast guard helicopter, I know where it is in the sky...for the first time. I'm still getting used to how noisy the world is! The next step is to find a speech pathologist, which the Costco tech says is like doing PT for understanding. All extremely good!

Meniere's is so difficult to diagnose correctly, plus there's no sure-fire treatment for hearing loss. (VRT definitely IS the treatment for balance, and I went back to the vestibular clinic for a refresher course in balance exercises, as 35 years ago VRT was in its infancy. Nothing really new, just a reinforcement of the things I need to do to continue to use proprioception instead of vision to balance. Because I've done some VRT every day for decades, I didn't have terrible new balance issues, although I learned that I have some age-related nerve damage in my lower legs that means I needed to add some new routines to my daily life, the big one being to walk at least half of the quarter-mile distance to our mailbox on a gravel road with eyes closed. Fortunately, no one lives along that stretch to watch me veer off to one side at times! While doing that, I think about what my feet are telling me and have learned to "feel" where there's more loose gravel, i.e., the edge of the road. Life is good again!

Love this story.

Thank you so much!