Anyone here dealing with peripheral neuropathy?

Hi @bcool123
My feet are also very cold. I discovered if I use a foot warmer at night, it changes how I start and end my day with huge relief that lasts all dasy if I am inside. I wear Merino wool socks as well. There are also foot warmers you can buy to put in your shoes. Best wishes!

I follow connect daily and I’m not sure where to put this question so I’ll leave it to the monitors. I have had Neuropathy for about a year and I’m on gabapentin. My symptom is not pain or burning but instead ice cold feet. I just read about a patch called Capsaicin and wonder if anyone has used it with any relief? Appreciate any feedback, Bcool in Colorado

Try kratom. It’s all natural and not addictive. Helps the pain, gives you energy and makes me be more social plus cured my depression. I have taken it for tens years.

John and Fala. Thank you for your response to my question. I will see my doc in a week or two and ask about the Capsaicin although I doubt he will prescribe it as it sounds as if it is still being investigated. I use the neoprene socks and wool shoe inserts suggested by John earlier. I also use the hot Hand toe warmers. In the evening I use my go to Rockdove slippers and Cozy Winter large foot of the bed heating pad which I absolutely love. Fala, what kind of foot warmer are you talking about? I appreciate your responses really appreciate Connect for all of the suggestions and discussions it provides. Hope you have happy healthy holidays, Bcool

Im glad it helps relieves your pain, I hate to know when someone goes through so much pain. An for the rest of you that is suffering. Ive live with pain most of my life, but not from the same illness, and I dont believe in the degree you suffer.I hope you want be afended if I tell you I will pray for you and the others who are suffering.I admire your stregth. Hang in there!

Hi - I've had peripheral neuropathy in my feet and now legs for a little over 10 years. I'm probably more fortunate than most since mine is mostly numbness and tingling and no sharp pains. My doctors had me on gabapentin for awhile but it did nothing for me and when I discussed it with a new doctor team I was told gabapentin is only for pain and not numbness. I had to have an ECS and MRI before I could meet with a neurologist. The tests confirmed I have nerve damage but we still don't know the root cause. I have an appointment for May 2nd with the neurologist and I'm hoping to find out what type of neuropathy I have which may help when talking with other people with the same type of neuropathy who have found what works for them. Two excellent sources of information are the MN Neuropathy Association (http://www.neuropathy-mn.org/) and the Foundation for Peripheral Neuropathy (https://www.foundationforpn.org/).

Hello John, since 2015 I've been dealing with polymyalgia, giant cell arteritis, rheumatoid and osteo arthritis. That was bad enough, but now I have neuropathy. After being diagnosed a few weeks ago I joined this group and began reading a lot of posts. After working up enough courage I posted a comment of my own and you were the first to respond (for which I am very grateful since I know nothing about this condition and am very afraid) I've since found a team of neurologists who treat people with neuropathy and was feeling a little more hopeful. But from what I was reading I thought they would start me on Gabapentin since that appears to be the gold standard of treatment. However, I was sent for a lot of bloodwork, and began a series of nerve blocks. I haven't read anything on this website that speaks to this sort of treatment. Now I'm wondering if this is another blind alley since it took my going to five different specialists before anyone mentioned neuropathy. I guess my question to you is: - Is there any kind of regular treatment for this disease? Does it ever go into remission? Or is this a lifetime of pain, discomfort, anxiety and never knowing what comes next. From what I'm reading it appears as though after the original diagnosis you spend the rest of your life suffering to one degree or another and you never get back to a "Real Life."

Hello John, since 2015 I've been dealing with polymyalgia, giant cell arteritis, rheumatoid and osteo arthritis. That was bad enough, but now I have neuropathy. After being diagnosed a few weeks ago I joined this group and began reading a lot of posts. After working up enough courage I posted a comment of my own and you were the first to respond (for which I am very grateful since I know nothing about this condition and am very afraid) I've since found a team of neurologists who treat people with neuropathy and was feeling a little more hopeful. But from what I was reading I thought they would start me on Gabapentin since that appears to be the gold standard of treatment. However, I was sent for a lot of bloodwork, and began a series of nerve blocks. I haven't read anything on this website that speaks to this sort of treatment. Now I'm wondering if this is another blind alley since it took my going to five different specialists before anyone mentioned neuropathy. I guess my question to you is: - Is there any kind of regular treatment for this disease? Does it ever go into remission? Or is this a lifetime of pain, discomfort, anxiety and never knowing what comes next. From what I'm reading it appears as though after the original diagnosis you spend the rest of your life suffering to one degree or another and you never get back to a "Real Life."