1. < Neuropathy

COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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pacer3702 | @pacer3702 | Dec 19, 2021
In reply to @shona "Oh that’s interested. I am in NZ and I have had PN for the past seven..." + (show)
@shona

Oh that’s interested. I am in NZ and I have had PN for the past seven years after the second Pfizer I have had flare ups and my pain is much worse. Around 3 to 4 weeks after it though. I did report it. Not keen at all to have the booster. Where can I find this information please ?

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The Facebook group is called Neuro V Long-Haulers.

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mike26 | @mike26 | Dec 19, 2021

yes, i got neuropathy after getting to shots moderna vaccine,and not sure i should get booster vaccine or not?

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mawmaw3 | @mawmaw3 | Dec 20, 2021
In reply to @bella1970 "I never have experienced neuropathy in my life after first Pfizer I have had numbness tingling..." + (show)
@bella1970

I never have experienced neuropathy in my life after first Pfizer I have had numbness tingling Paraesthesia tinnitus vertigo and lately high blood pressure and blurred vision second Pfizer is on hold does this get worse before it gets better?

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My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that either started or worsened after the vaccine. She said their symptoms seem to worsen over several months, then plateau. Once again she said she hoped it would improve or go away, but vaccines haven’t been out long enough to see.

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3 replies
aerc25 | @aerc25 | Dec 21, 2021
In reply to @mawmaw3 "My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that..." + (show)
@mawmaw3

My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that either started or worsened after the vaccine. She said their symptoms seem to worsen over several months, then plateau. Once again she said she hoped it would improve or go away, but vaccines haven’t been out long enough to see.

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Can you share the name of your doctor and where they are please? Thank you!

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1 reply
mawmaw3 | @mawmaw3 | Dec 21, 2021
In reply to @aerc25 "Can you share the name of your doctor and where they are please? Thank you!" + (show)
@aerc25

Can you share the name of your doctor and where they are please? Thank you!

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She’s in Falls Church, VA. Has wonderful nurse practitioners and physicians’ assistants.

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keinalem | @keinalem | Dec 21, 2021

I’m 80 and have neuropathy from chemo. I’ve had two Pfizer vaccines, the flu vaccine and the Pfizer booster with no side effects except a very slight sore arm.

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keinalem | @keinalem | Dec 21, 2021

I read your further questions after I posted my reply stating that I’ve had no I’ll effects from the Pfizer vaccines including then booster and want to add that I received the booster two months ago at Houston Methodist Hospital in the Texas Medical Center. My oncologist Dr Erik Bernicker recommended and strongly urged that I get any and all Covid vaccines.

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raebaby | @raebaby | Dec 22, 2021

I have foot neuropathy from chemo. I had both Moderna vaccines, the booster and a flu shot. I experienced no reactions to any of them. My feet are also improving. I'm 80 years old and still getting chemo.

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twobrooklyn | @twobrooklyn | Dec 22, 2021
In reply to @mawmaw3 "My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that..." + (show)
@mawmaw3

My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that either started or worsened after the vaccine. She said their symptoms seem to worsen over several months, then plateau. Once again she said she hoped it would improve or go away, but vaccines haven’t been out long enough to see.

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The problem is PN is not curable regardless of the reason.

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1 reply
pacer3702 | @pacer3702 | Dec 22, 2021

The vaccine-related flares may be specific to immune-mediated PN.

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