Transplant anti-rejection medications. What's your advice?

Posted by jolinda @jolinda, Apr 23, 2020

Weight gain? Hair loss? Headaches? Never missed a beat? What has your experience with transplant medications been? Have you developed a methods to deal with a side-effect? Have your meds changed at all over time? What advice do you have for others in our community that may make their experience better?

Interested in more discussions like this? Go to the Transplants Support Group.

athenalee | @athenalee | Dec 17, 2021

In reply to @nimalw "Hi . 25 yrs with your 1st Transplant. That's amazing. Any advice on deit ?" + (show)

Good morning @nimalw,

I’d like to invite you to our Transplant Culinary Arts Webinar Series -
https://connect.mayoclinic.org/discussion/transplant-culinary-arts-zoom-sessions/?pg=1#comment-635131
We discuss diet, health concerns, and cooking. Our next event is January 6. The announcement is posted in the discussion.

Also, here’s a blog I wrote that you might find informative on tips for transplant diet and nutrition - https://connect.mayoclinic.org/blog/transplant/newsfeed-post/whats-on-my-plate-a-transplant-recipient-perspective/

There are other blogs and discussions on nutrition and diet for transplant recipients. You can do a search and you’ll find a list.

Athena

nimalw | @nimalw | Dec 17, 2021

In reply to @athenalee "Good morning @nimalw, I’d like to invite you to our Transplant Culinary Arts Webinar Series -..." + (show)

Thank you very much Athena

nimalw | @nimalw | Dec 21, 2021

In reply to @tjdog "A creatinine of 1.0 is excellent! Mine goes up and down between 1.4 and 1.7. My..." + (show)

Hi any advice on getting better nights sleep for those on prednisone?? Does cellcept and tacrolimus also effect sleep ?? I find I sleep well a few nights following no sleep some nights really annoying. I have been told its the Prednisone that causes sleeplessness
Any suggestions most welcome for those battling the same problem and have over come it ? I take the Prednisone in the morning at 9.30am .

tjdog | @tjdog | Dec 21, 2021

In reply to @nimalw "Hi any advice on getting better nights sleep for those on prednisone?? Does cellcept and tacrolimus..." + (show)

I have sleeping issues that are unrelated to any meds, so I can’t offer you any advice on this. Sorry.

nimalw | @nimalw | Dec 21, 2021

Hi any advice on better sleep after Transplant? Has anyone experienced lack of sleep ?

nimalw | @nimalw | Dec 21, 2021

Hi Anyone received the Booster dose for covid after ? Any side effects on the Transplant organ ?

estrada53 | @estrada53 | Dec 21, 2021

In reply to @nimalw "Hi Anyone received the Booster dose for covid after ? Any side effects on the Transplant..." + (show)

Hi @nimalw. I had a third vaccine which is a little different from the booster. It was the full strength Moderna. My transplant team aggressively encouraged us to get the 3rd shot. I received mine in September. No side effects except a slight headache and a sore arm for 2 days. Good luck! I believe it's worth getting. Let us know.