Pituitary tumor symptoms: joint, muscle and body aches

Posted by khauert @khauert, Jan 12, 2020

Hi. I am new to this. And not sure I'm in the right category. I was diagnosed with a pituitary tumor in November. However, I have been experiencing terrible joint, muscle and body aches for a year now. No doctor knows why and nobody can confirm its from the tumor. I'm frustrated and becoming very hopeless and depressed. Can anyone with a pituitary tumor relate to body pain?

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@ananda33

I was diagnosed with pituitary adenoma and successfully had a large tumor surgically removed almost 15 years ago. For years before my surgery, and years after my surgery, I also suffered from joint and muscle pain. It got so bad I could hardly bend over to tie my own shoes. I was suffering and in constant pain. As a young athletic person, I just couldn't understand where this pain was coming from. I then discovered cold water therapy (ice baths) and infrared saunas! (Also referred to as fire and ice therapy) I found that the combination of doing 20 minutes in my infrared Sauna and then plunging into an ice bath (40 to 55 degrees depending on what you can handle for 5 to 10 minutes) turned out to be an absolute miracle! After so many medications, physical therapy, special diets...I tried it all and spent a ton of money on my quest to find pain relief ( I even got myself addicted to pain killers and ended up in drug rehab) After all those nightmares and searching I still can't believe that something so basic and so simple as cold water therapy has literally changed my life! I can truthfully say that over 80% of my pain is gone! If you want more info you can youtube the iceman also known as Wim Hof. Wim Hof explains the benefits of ice in a much more detailed way, but get this, the rush of adrenalin from the cold also regulates hormones and is said to trigger the same opioid receptors in our brains to act as a natural pain killer! It also enhanced my overall mood and I feel much happier after an ice bath! It is such a miracle! I never have ever posted a reply on a message board like this before, but after reading your post I just had to spread the good news! Take the plunge it will change your life!

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Hello @ananda33 and welcome to Mayo Clinic Connect. Thank you for joining the conversation and sharing your journey to find what is working for you. How did you come across this as a form of therapy?

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@amandajro

Hello @ananda33 and welcome to Mayo Clinic Connect. Thank you for joining the conversation and sharing your journey to find what is working for you. How did you come across this as a form of therapy?

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Hi Amanda, I came across this form of therapy while working with professional surfer and athlete Laird Hamilton. His athletic training program is called the XPT Performance training. Coldwater therapy and infrared saunas are a big part of the program.

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My Pituitary tumor was pushing upward on the pituitary gland (according to the surgeon) my hips, knees and lower back were incredibly painful, zero energy, dizzy but vision was good, Soreness, dizzyness and fatigue ended immediately with surgery on 11/16/21.
Fluid oozing has stopped nose healing, sinus headache that Advil takes care of, Happy Camper!

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@captain1950

My Pituitary tumor was pushing upward on the pituitary gland (according to the surgeon) my hips, knees and lower back were incredibly painful, zero energy, dizzy but vision was good, Soreness, dizzyness and fatigue ended immediately with surgery on 11/16/21.
Fluid oozing has stopped nose healing, sinus headache that Advil takes care of, Happy Camper!

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Welcome, Captain. I'm sure others like @skhollandmt @astaingegerdm @kapple @cheryl1 will join me in welcoming you.

Wow, surgery is recently fresh for you and sounds like it was successful and provided immediate relief. How is your recovery from surgery going?

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@colleenyoung

Welcome, Captain. I'm sure others like @skhollandmt @astaingegerdm @kapple @cheryl1 will join me in welcoming you.

Wow, surgery is recently fresh for you and sounds like it was successful and provided immediate relief. How is your recovery from surgery going?

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I'm on the mend, I take an afternoon nap. Nose is healing, blood and fluid leakages stopped at about five days. My mind has to remind me not to lift or strain, off to see ear nose throat Doctor tomorrow, will drive myself. I was lucky no vision loss, dizziness and joint soreness gone, energy is slowly returning to this 71 year old.
The technical innovations, like "Stealth MRI" really reduce the risk and help get ALL of the Tumor, I would do it again, with way less concern about the "what ifs", based on this experience.

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@captain1950

I'm on the mend, I take an afternoon nap. Nose is healing, blood and fluid leakages stopped at about five days. My mind has to remind me not to lift or strain, off to see ear nose throat Doctor tomorrow, will drive myself. I was lucky no vision loss, dizziness and joint soreness gone, energy is slowly returning to this 71 year old.
The technical innovations, like "Stealth MRI" really reduce the risk and help get ALL of the Tumor, I would do it again, with way less concern about the "what ifs", based on this experience.

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Thank You Colleen!

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@captain1950

I'm on the mend, I take an afternoon nap. Nose is healing, blood and fluid leakages stopped at about five days. My mind has to remind me not to lift or strain, off to see ear nose throat Doctor tomorrow, will drive myself. I was lucky no vision loss, dizziness and joint soreness gone, energy is slowly returning to this 71 year old.
The technical innovations, like "Stealth MRI" really reduce the risk and help get ALL of the Tumor, I would do it again, with way less concern about the "what ifs", based on this experience.

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What is the stealth MRI? Are you referring to Tesla 3?

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@cheryl1

What is the stealth MRI? Are you referring to Tesla 3?

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The Stealth MRI creates a 3d image of your skull and tumor so they can avoid Carotid arteries and optic nerves, the
Surgeon used 3d googles to assist.

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@captain1950 - it sounds like your recovery is going well- very difficult surgery. My daughter had a cortisol producing pituitary adenoma removed 11 years ago. May I ask what type of pituitary tumor you had?

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@astaingegerdm

@captain1950 - it sounds like your recovery is going well- very difficult surgery. My daughter had a cortisol producing pituitary adenoma removed 11 years ago. May I ask what type of pituitary tumor you had?

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they said it was nonproducing, but since its removal my body feels much better and my energy is slowly returning, after a prolonged absence. The surgeon said it was crushing my pituitary upward!

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