Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
Interested in more discussions like this? Go to the Neuropathy Support Group.
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Thank you for sharing!
Love the metaphorical spin! Like you, some of my symptoms flared after the shots, they’ve reduced some. Although the numbness in my extremities continues to spread. My neurologist recognized my symptoms as a Sjogren’s flare. I’m glad you’re doctors recognized yours as a flare. I’m unfortunately reluctant to get a booster because
of this.
How soon after your vaccinations did your symptoms worsen?
Between 5 and 7 days- don't remember after the first shot, as I didn't put 1+1 together then. Now watching like a hawk though.
My neuropathy gog worse after the second Moderna vaccination. Much worse.
I’m so sorry to hear that. I haven’t been vaccinated yet because I am afraid of any neurological side effects. I have so many health conditions.
Have you talked to your doctor?
My symptoms are finally all flared down. Ironically, just as they are urging us all to get boosters.
I told my husband maybe I will be able to tell when it is booster time by my neuropathy. 🙂
I also feel like taking a hard pass on getting a booster. I simply do not know what to do. I wrote the Immune Deficiency Foundation to tell them that the flare had passed and while I was at it I sent them the links someone posted above. They sent me two more in return, so we are not alone, my friend. We are not alone.
All that said, the risk of the virus - or horrors, long COVID - are very real. It really is a dilemma.
Good luck to you.
Hello @kbirchem and welcome to Mayo Clinic Connect. Thanks for being vulnerable and sharing your thoughts and concerns. So many other members can relate, especially if they are at a place in their life where they are also facing multiple health conditions.
I wonder if you've taken a listen to podcasts from Dr. Poland. They have truly been an evolution of all things COVID and vaccines as the world quickly learns about each new development. Dr. Poland has a really great way of sharing what can be complex information on this topic in a way that is easy to digest. As you explore what makes sense for you and weigh the pros and cons, I thought this information may be helpful. Go to the link below and use the search box on the upper right using "Dr. Poland": https://connect.mayoclinic.org/newsfeed/
If you knew you wouldn't have adverse side effects, would you wish to be vaccinated?
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How does .Mayo clinic treat peripheral neuropathy . The Fsrgo VA just wants to throw
More meds at me .