COVID vaccines and neuropathy

Thank you for the link. It seems to validate my small fiber neuropathy as a result of the Pfizer vaccine. Is anyone getting advice from their neurologists/physicians about getting a booster? My neurologists say don't get it because I'll have a worse reaction. But I don't want to die of COVID. What advice are others getting from their doctors? Please relay. Thank you.

I read this entire article. From their comments above, I believe many of the posters did not.
The article does a service by researching other papers which report various neurological adverse reactions to all available vaccines. By a huge margin, the most common reaction was headache, many of which are described as simply tension headaches. The next most common reactions were GBS and VST, lower than headache by a factor of ten. The other reactions listed ranged from a handful to 1 or 2. A large cohort of those reporting adverse reactions were in nursing facilities and/or suffering from serious pre-existing conditions. Of note, since this is a forum about peripheral neuropathy, there were no reported cases of PN, so technically, this article does not apply to us.
The authors note that their paper may not include all neurological adverse reactions, This is likely because those unreported reactions were not serious ones.
The article does not prove or disprove that a vaccinated individual may develop PN, or whether vaccination can make a pre-existing case of PN worse, as some posters above have reported.
I too am a sufferer of PN. I have all 3 shots, with only a slightly sore arm to report. I understand the terrible frustration of not having an answer to the cause of the disease, nor an adequate treatment.
Unfortunately, the article being discussed does not provide us with this information.
Furthermore, from the zeal expressed by some posters when discovering this article ("at last", etc.) I sense that some of the posters take it as some form of enlightenment or knowledge which has been previously unavailable or hidden, perhaps as a conspiracy. This is simply not true.
All medications, including vaccines, have side effects, sometimes fatal ones. The covid vaccines are remarkably safe, although they too have side effects. In deciding whether or not to take them, we as patients should do a cost/benefit analysis. Do the benefits of taking the vaccine outweigh the costs? Since Covid can be a horrible disease, causing millions of deaths and serious longterm effects in those that survive, this is as close to a no-brainer as it gets. Moreover, the decision to not get the vaccine can imperil the health of contacts (like your child or grandma), and impede the development of herd immunity, which can negatively affect me and all the rest of us.
I am astounded and ashamed that so many in our country refuse to accept this. They look for needles ( pun intended) in haystacks to find reasons not to take a lifesaving medicine. Medical decisions should not be based on politics, unscientific rumors, or what one hears on talk radio, or well meaning forums such as this one.

Well, having posted the link, I did read the full article and, while I agree it doesn’t focus entirely on PN, it does list some examples, including SFN, plus PN is certainly a neurological disorder.

I resent the implication that I’m an antivaxer making up the affect that I had from the vaccines. As a liver transplant patient, with three autoimmune diseases, I am a strong advocate for the vaccines. I got both shots, even though I had a reaction to the first. I believe you would find most people on this discussion have similar views.

I do a lot of medical research about my illnesses and take 25 pills a day just to survive. I don’t question the miracle of the vaccines, being brought back to life three times, the skills of my transplant surgeons, and all the other wonders of science.

All I want for myself and others who have developed PN or had their PN increase from the vaccines, is to get some recognition and help.

It was gone entirely before the vaccinations. I should note that they flared my symptoms but not all my symptoms. If you don't mind a metaphor. If my symptoms were like a band, it is like the shots flared up the band - but some of the band members sat quietly. But the shots brought a couple of new members along - ones I had never heard play before. They played dully compared to the old band. Then, some of them stopped entirely. Only the new band members are still playing, and even one of them is quiet now.
I am sorry, I am a creative, and this is how my mind works.
Imagine the horror my doctors must view my descriptions of my symptoms with. Sometimes, I just get stared at. 🙂

@dhamill I plan to get a flu shot tomorrow. I’ll report back in a few days. I’ve been hesitant this year. Haven’t missed a flu shot in 30 years but after Pfizer induced neuropathy I am a different person. The flu reports are already bad. I’m not sure if it’s media hype or what, but I’m going to take the plunge. Fingers crossed.

I hope you are doing well after your flu shot. Still not sure if I will get mine or not. Take care and stay well.

@dhamil, I got my flu shot Saturday and so far, no effects on the neuropathy at all. (Oh darn it didn’t just magically disappear 🤣). I’m still waffling on a Covid booster. Some days I think never again, other days I’m more worried about getting Covid. 😣

@dhamil, I got my flu shot Saturday and so far, no effects on the neuropathy at all. (Oh darn it didn’t just magically disappear 🤣). I’m still waffling on a Covid booster. Some days I think never again, other days I’m more worried about getting Covid. 😣