Blood clot in heart

Posted by bevh @bevh, Aug 19, 2021

I was previously diagnosed with a blood clot in my heart and put on blood thinners for a while. I was taken off blood thinners and assumed the clot was gone because my Doc gave the ok to have my defibrillator implanted. I have had subsequent echoes and it was no longer mentioned. I had an echo yesterday and was told By a different Dr. the blood clot was still there and would probably be there the rest of my life. Was anyone here told this and if there is added danger with this condition

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i have been on clopidogerel and aspirin almost since 2014...doctors told me that i should be taking them for the rest of my life...i have two stents too...blood needs tobe thinned and i suppose one has to move onto warfarin and heparin eventually...echos are usually done by technicians and angiographies usually have doctors present...

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@predictable

Hi, Jim (@thankful). I'm weighing in with a positive answer to your question about a clot developing in my heart. I'm on Coumadin for several years after a diagnosis of A-fib, and four years ago, a small clot developed in my heart (the atrium, upper chamber) and took a trip into my brain where it got caught and caused a "small stroke." The incident happened after my blood coagulation dropped unexpectedly, rose again when my medical team convinced me to skip my daily Coumadin dose for two days. No trouble since then. I remain asymptomatic in A-fib and regularly (faithfully) take my anticoagulant and have my blood checked in the lab every other month. I expect to be on Warfarin (10 mg daily) indefinitely to prevent a recurrence of my stroke. There are treatments for A-fib that could get me off the drug, but my status is so steadily reliable without much inconvenience that I don't feel the need for surgery to give me a permanent fix, as it has for three of my friends. As long as I remember my Coumadin and my lab tests, I'm good to go. Martin

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@predictable- Martin, so good to hear from you and thank you for sharing your experience with Coumadin.
Just for my clarity sake did you say that your blood coagulation dropped because your medical team asked you to skip your daily dose for two days and that is when you had a TIA?
I'm currently not experiencing any A-Fib and I will know this Thursday if my INR falls in the range we've been trying to find for over a month.
Glad to here you are satisfied with your team and what you are taking and a "steadily reliable" state is Wonderful!!
I will stay in touch with you as I jump through a few more hoops!
I always appreciate you candid and sage advise or simply sharing your life with all of us!
Thanks Much! Jim @thankful

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@thankful

@predictable- Martin, so good to hear from you and thank you for sharing your experience with Coumadin.
Just for my clarity sake did you say that your blood coagulation dropped because your medical team asked you to skip your daily dose for two days and that is when you had a TIA?
I'm currently not experiencing any A-Fib and I will know this Thursday if my INR falls in the range we've been trying to find for over a month.
Glad to here you are satisfied with your team and what you are taking and a "steadily reliable" state is Wonderful!!
I will stay in touch with you as I jump through a few more hoops!
I always appreciate you candid and sage advise or simply sharing your life with all of us!
Thanks Much! Jim @thankful

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Hi, Jim (@thankful). To answer your question, you understood my story correctly (except that I suffered a small stroke, not a transient ischemic attack (TIA) which would involve a shortage of blood, not a blood clot as I suffered). The clot formed when we interrupted my anticoagulation medication for two days because my INR had risen to over 5 for unexplained reasons. Ordinarily, my INR holds in the 2.1-2.6 range. Let us know how your INR is checking out and whether we can share more experiences that may be helpful. Martin

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I have a blood clot in my heart too. I am waiting for my second Ablation to get out of Afib. I remain in Afib,on meds,am exhausted,short of breath,and want my life back.I am surprised your clot did not dissolve. I am worried now. Any thoughts? Thanks, Afibjan

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I have a a LAA blood clot discovered when aTEE was done before I was to have my 2nd ablation! I was told that I was not taking XARELTO with my dinner meal food and this was most likely the cause. Now I take 81mg asprin and my dinner time Xarelto. I have had a difficult year remaining in AFIB much of the time. I am very fatigued,short of breath with it. Now I am waiting for a cardioversion to attempt to get me in normal rhythm and add an anti rhythmic. To hold me until april! My hospital is booked out that far. I am very discouraged. Any advive?

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Does anyone know what Anteroseptal infarct is now present means?

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I was diagnosed as having a blood clot and/or vegetation and the end of my ventricular pacemaker lead. I just finished 10 weeks of IV antibiotics and have been told the next step is to remove the entire unit and have a temporary pacemaker on the outside of my neck for six weeks then put permanent back in. I have congenital heart disease and the anatomy of my heart is far from normal. It was a challenge to get the leads in the first time and they are nervous about doing it again. They even mentioned leaving the unit in. Does that happen often? Especially since they are not 100% sure if it’s a clot or an infection.

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@thankful

@thankful asks if anyone has had a clot developein their heart?
Were you put on Warfarin or some other blood thinner and how did it go?
Initially my cardiologist said the clot should dissapate in 3-4 months and I may not need to be on Warfarin any longer, but my next appt. was with my PA associated with my cardiologist who said I may need to be on Warfarin the rest of my life.
Any feedback of your experiences would be greatly appreciated! Jim @thankful

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Hi! I was diagnosed with a heart blood clot. I was put on Warfarin and was on it for 5 months. MRI showed that clot had dissolved. I do not take warfarin any longer, but have to take aspirin to keep blood clot from reforming. I have Dilated Cardiomyopathy that progressed to Congestive Heat Failure with a reduced ejection fraction. That will never change, and will get worse over time. I will be taking some form of blood thinners the rest of my life. There are several Anticoagulants and Warfarin is one. Ask your doctor to switch you to one that doesn’t need constant monitoring and major food restrictions. I couldn’t deal with the food restrictions. I love greens. Hope this helps! 🙂

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@susangaylor - Thank you Susan for your insights! I get another ECHO on the 30th of this month. We will see what if anything is there.
My question is other than the fact that I developed a clot 8 years after my HA and stent placement in my 100% blocked LAD. With no other signs or symptoms does one say that because a clot did develope that I will always be prone to another clot and therefore should go on Warfarin or Xarelto for the rest of my life? My local Cardiologist says yes and I have an appt. with my AZ Cardiologist on 12/12. I will have the results of this upcoming ECHO and that will inform all of us as to my situation.
Last January after having an ECHO in AZ and finding nothing my Cardiologist told me it is always far better to have a heart MRI. I did a month & a half later and there was no sign of a clot. He considers that to be the gold standard! I guess we will see how this plays out.
Jim @thankful

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@thankful

@susangaylor - Thank you Susan for your insights! I get another ECHO on the 30th of this month. We will see what if anything is there.
My question is other than the fact that I developed a clot 8 years after my HA and stent placement in my 100% blocked LAD. With no other signs or symptoms does one say that because a clot did develope that I will always be prone to another clot and therefore should go on Warfarin or Xarelto for the rest of my life? My local Cardiologist says yes and I have an appt. with my AZ Cardiologist on 12/12. I will have the results of this upcoming ECHO and that will inform all of us as to my situation.
Last January after having an ECHO in AZ and finding nothing my Cardiologist told me it is always far better to have a heart MRI. I did a month & a half later and there was no sign of a clot. He considers that to be the gold standard! I guess we will see how this plays out.
Jim @thankful

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Hello! I am so happy to hear your clot is gone. They are deadly. You should ask your Cardiologist about taking low dose aspirin daily if you do not have stomach issues. Far less expensive. If your Cardiologist says you need anticoagulation medication, I would definitely listen. Better to be safe than sorry for sure. Hope you had a very nice Thanksgiving!
Susan 🙂

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