Don't Want To Be a Complainer

Posted by Bax @tbaxter33, Jun 26, 2018

As i was growing up, I heard my mom complain daily about pain and discomfort in various parts of her body. As a result, decided when I was younger that I would never be a complainer! I suppose I formed a judgment that my mom had a low threshold for pain and was just a complainer. I felt like people did not want to hear that, and it drove them away. I am now convinced that I was very wrong. For about the past 20 years of my life, I have had lower back pain which has become progressively worse over time. Over the more recent few years, I have chronic neck, shoulder, and upper arm pain which is severe at times and bad other times. MRI shows two separate syrnix lesions (one in cervical and one in thorasic area). Suspect cause for those is trauma due to a horse fall incident several years ago. No surgery is indicated due to risks and uncertain benefits. Also, degenerative disease mostly in the neck, but some in the lumbar area. Most recently, had RF ablation procedures done on the lower back. Worked good for about a month, but pain is back (mostly with standing and walking). Pain in neck and shoulders is terrilbe at times. Have tried Tramadol (which local docs DO NOT want me to take), and it does not really work for me anyway. Cannot take NSAID meds due to kidney issues. Hydrocodone works, but getting it is nearly impossible any more. [If you wondered, I have no history of drug abuse, addiction, or alcholism] I am SO AFRAID of becoming a chrinic complainer like I grew up with. In fact, I feel that the few friends I do talk to about it (probably 2 at most) have formed judgments and do not want to hear it. I even feel like the docs think I am a complainer -- perhaps to get meds -- which is simply and firmly not true. What do people do? Live with it and hurt? I am not retired yet -- have a couple or three more years -- but it is so hard to keep up this pace. Already frustrated and darkenss widening here. Thoughts?

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@ursweetpam

Hi my username is Ursweetpam. I can relate so much to what you are saying totally! My mother suffered for the last decade or so of her life with severe rheumatoid arthritis and back pain issues. She worked hard most of her life and even after she started having problems but it seemed that when we spoke, it was almost always about the pain. I used to get so upset sometimes because it became an all the time thing towards the end of her life. I just didn't have the experience yet to know what it mist have been like for her every day to wake up and feel that way for years. I used to believe she was a " complainer" Honestly, I don't think that she was. No other person can really judge how another feels. Even for the same kind of pain, it can be different. That us what makes us unique. We need to be more understanding when someone is hurting. I found out the hard way that she was probably suffering a great deal. I had a mucrodiscectomy/ laminectomy is 2015. I woke up to excruciating ,crushing pain in my back, left hip and my entire left leg. The surgeon said my back surgery was a fail because I had bone death to my vertibrate caused by undiagnosed severe osteoporosis and I have arachnoiditis that glued my nerve roots together and caused them to misfire. I never knew pain like that even existed! The surgeon also cut into my dura 3 times so I had to lay flat on my back for 24 hours and required 4 large blood patches. I couldn't walk far at all for 2 years because it turned out that my left hip and left pelvis was off center and out of the socket from the surgery to my back. I found i was always in pain and i talked about it a lot. My kids don't understand. They say that it's all I talk about and now I understand just what my mother was going through. I think that the pain Drs see so many people everyday and we all say we are in pain. They have become used to hearing it....so much so that they have lost empathy to our plight. I worry too if they think I am always complaining and if they think I am just seeking drugs (my pcp flagged me for that until she got the MRI tests back) You have to keep reminding yourself that you are just as impostant as everyone else. You know it's real and how bad it is for you...not everyone else. Maybe you do have a low tolerance for pain. So what! No one else lives inside you and you can't show anyone how you feel so let them judge and think what they want. Be honest and never stop looking for something that works for you. Until they are where you are, they can't possibly know what it's like. Hope this helps.

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You are right. None of us can truly experience the pain of someone else. Rather, we must attempt to understand the difficulty, and listen carefully to their words. In fact, we must ask them directly, "What is it that I can do to help you?" Maybe the only thing is being a friend. And so be it. We cannot allow ourselves to leave someone lonely just because they voice their pain. Our strength must help to address their lack of it. God bless us every one.

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I’ve suffered with CRPS and Neuropathy for over 22 years. Every morning when I wake up, my wife asks me how I’m feeling. I usually feel terrible, in pain and tired from another sleepless night. I don’t want to tell her the truth about my pain. It gets old hearing “I feel like crap” every day. But I don’t want to lie to her either. So I just say I’m okay or I’m still honey. I don’t know what I should tell her because there’s rarely a good day. Any suggestions.

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@msg

I’ve suffered with CRPS and Neuropathy for over 22 years. Every morning when I wake up, my wife asks me how I’m feeling. I usually feel terrible, in pain and tired from another sleepless night. I don’t want to tell her the truth about my pain. It gets old hearing “I feel like crap” every day. But I don’t want to lie to her either. So I just say I’m okay or I’m still honey. I don’t know what I should tell her because there’s rarely a good day. Any suggestions.

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Be Honest Your Loved ones are going through this with you Tell them Some Days are good and some are bad empathize but don't Sympathize.

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@msg

I’ve suffered with CRPS and Neuropathy for over 22 years. Every morning when I wake up, my wife asks me how I’m feeling. I usually feel terrible, in pain and tired from another sleepless night. I don’t want to tell her the truth about my pain. It gets old hearing “I feel like crap” every day. But I don’t want to lie to her either. So I just say I’m okay or I’m still honey. I don’t know what I should tell her because there’s rarely a good day. Any suggestions.

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@msg I can very much understand this dilemma. While I believe honestly is the best policy, I also think there could be another consideration at play here. Having to acknowledge and speak of your pain each morning could set you on a path of having that be a focus of your day rather than a topic that would be more encouraging and hopeful.

You will notice I did move your post into an existing conversation with members sharing your same sentiment, i.e. not wanting to complain about the pain. Members such as @dianrib @ursweetpam @jfsherley @lioness @parus may be able to share their thoughts as well.

As for how to approach this with your wife, one thing to consider is to have a basic understanding, by way of a blanket conversation perhaps, to share that you don't want to feel disingenuous by not being honest about the state of how you are feeling each morning but also don't want that admission to be one of the first affirmations of your day each day.

In all honesty, "how are you feeling" or "how did you sleep" is a pretty common way to start morning conversation after saying "good morning". Maybe the pair of you can come up with another thing you say to one another to move the conversation away from discussing your pain? Maybe you agree to ask one another "what is one thing you are looking forward to doing today?" to create a sense of hope and joy to start the day instead!

Do you think your wife would be receptive and do you think that would help your concern?

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@amandajro

@msg I can very much understand this dilemma. While I believe honestly is the best policy, I also think there could be another consideration at play here. Having to acknowledge and speak of your pain each morning could set you on a path of having that be a focus of your day rather than a topic that would be more encouraging and hopeful.

You will notice I did move your post into an existing conversation with members sharing your same sentiment, i.e. not wanting to complain about the pain. Members such as @dianrib @ursweetpam @jfsherley @lioness @parus may be able to share their thoughts as well.

As for how to approach this with your wife, one thing to consider is to have a basic understanding, by way of a blanket conversation perhaps, to share that you don't want to feel disingenuous by not being honest about the state of how you are feeling each morning but also don't want that admission to be one of the first affirmations of your day each day.

In all honesty, "how are you feeling" or "how did you sleep" is a pretty common way to start morning conversation after saying "good morning". Maybe the pair of you can come up with another thing you say to one another to move the conversation away from discussing your pain? Maybe you agree to ask one another "what is one thing you are looking forward to doing today?" to create a sense of hope and joy to start the day instead!

Do you think your wife would be receptive and do you think that would help your concern?

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Thank you for the great advice. You are truly understanding and insightful to all of us who live with pain daily.

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@msg

Thank you for the great advice. You are truly understanding and insightful to all of us who live with pain daily.

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@msg I so appreciated your post and Amanda's @amandajro response. I understand your dilemma as living in chronic pain can feel lonely, especially when we want to protect our loved ones from our reality.

In pain rehab I learned that a neutral approach is a good one. Meaning the person in chronic pain as well as family member (or friend) should remain neutral by not focusing on pain. Completely ignoring it however can be counter productive for all parties.

Setting aside a timed discussion of 5 -10 minutes per day or a weekly check in might be helpful to discuss how you and she have been feeling. The goal is to get caught up with honesty about pain but not let it dictate your lives.

I do not go to work due to disability, but every morning my husband asks, "what are doing today?", as he heads off to work....business as usual regardless of chronic pain.

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@amandajro

@msg I can very much understand this dilemma. While I believe honestly is the best policy, I also think there could be another consideration at play here. Having to acknowledge and speak of your pain each morning could set you on a path of having that be a focus of your day rather than a topic that would be more encouraging and hopeful.

You will notice I did move your post into an existing conversation with members sharing your same sentiment, i.e. not wanting to complain about the pain. Members such as @dianrib @ursweetpam @jfsherley @lioness @parus may be able to share their thoughts as well.

As for how to approach this with your wife, one thing to consider is to have a basic understanding, by way of a blanket conversation perhaps, to share that you don't want to feel disingenuous by not being honest about the state of how you are feeling each morning but also don't want that admission to be one of the first affirmations of your day each day.

In all honesty, "how are you feeling" or "how did you sleep" is a pretty common way to start morning conversation after saying "good morning". Maybe the pair of you can come up with another thing you say to one another to move the conversation away from discussing your pain? Maybe you agree to ask one another "what is one thing you are looking forward to doing today?" to create a sense of hope and joy to start the day instead!

Do you think your wife would be receptive and do you think that would help your concern?

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These are just great ideas, @amandajro, for anyone dealing with chronic illness! Thanks for your post.

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I thought members of this discussion may be interested in an upcoming webinar sponsored by the Foundation for Peripheral Neuropathy.

FPN Webinar: How to Talk to Anybody When You Have a Disability or Chronic Illness
Wed, Dec 8, 2021 2:00 PM - 3:00 PM CST
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An EmBRACE It Workshop by Estela Lugo & Lainie Ishiba

Have you ever felt misunderstood because of your disability?

Has miscommunication ever interfered in your relationships?

We all know that communication is an essential part of our relationships and well being. Expressing ourselves and asking for what we need in general can be difficult for many people, but for those of us with disabilities, expressing our unique wants and needs, in a way that feels good for everyone, can be extra challenging.

In this interactive workshop, participants will learn techniques and tools for healthy and productive communication in everyday situations. Participants will leave this workshop with practical tools they can use to confidently talk about their condition and ask for help when they need it.

We hope you can join us live as this special workshop is being offered at no cost to FPN attendees and will not be recorded for future viewing.
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Register for the webinar: https://register.gotowebinar.com/register/4559936822934676493

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Thought I’d share this article…

Fatigue is an oppressive cocoon. It has made me seek joy wherever I can
I have not ‘overcome’ anything, but I am happy and hopeful. Chronic illness is sometimes described as a form of grief, but I prefer to think of it as beginning the next stage
https://www.theguardian.com/lifeandstyle/2021/dec/29/fatigue-is-an-oppressive-cocoon-it-has-made-me-seek-joy-wherever-i-can

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