Don't Want To Be a Complainer
As i was growing up, I heard my mom complain daily about pain and discomfort in various parts of her body. As a result, decided when I was younger that I would never be a complainer! I suppose I formed a judgment that my mom had a low threshold for pain and was just a complainer. I felt like people did not want to hear that, and it drove them away. I am now convinced that I was very wrong. For about the past 20 years of my life, I have had lower back pain which has become progressively worse over time. Over the more recent few years, I have chronic neck, shoulder, and upper arm pain which is severe at times and bad other times. MRI shows two separate syrnix lesions (one in cervical and one in thorasic area). Suspect cause for those is trauma due to a horse fall incident several years ago. No surgery is indicated due to risks and uncertain benefits. Also, degenerative disease mostly in the neck, but some in the lumbar area. Most recently, had RF ablation procedures done on the lower back. Worked good for about a month, but pain is back (mostly with standing and walking). Pain in neck and shoulders is terrilbe at times. Have tried Tramadol (which local docs DO NOT want me to take), and it does not really work for me anyway. Cannot take NSAID meds due to kidney issues. Hydrocodone works, but getting it is nearly impossible any more. [If you wondered, I have no history of drug abuse, addiction, or alcholism] I am SO AFRAID of becoming a chrinic complainer like I grew up with. In fact, I feel that the few friends I do talk to about it (probably 2 at most) have formed judgments and do not want to hear it. I even feel like the docs think I am a complainer -- perhaps to get meds -- which is simply and firmly not true. What do people do? Live with it and hurt? I am not retired yet -- have a couple or three more years -- but it is so hard to keep up this pace. Already frustrated and darkenss widening here. Thoughts?
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You are right. None of us can truly experience the pain of someone else. Rather, we must attempt to understand the difficulty, and listen carefully to their words. In fact, we must ask them directly, "What is it that I can do to help you?" Maybe the only thing is being a friend. And so be it. We cannot allow ourselves to leave someone lonely just because they voice their pain. Our strength must help to address their lack of it. God bless us every one.
I’ve suffered with CRPS and Neuropathy for over 22 years. Every morning when I wake up, my wife asks me how I’m feeling. I usually feel terrible, in pain and tired from another sleepless night. I don’t want to tell her the truth about my pain. It gets old hearing “I feel like crap” every day. But I don’t want to lie to her either. So I just say I’m okay or I’m still honey. I don’t know what I should tell her because there’s rarely a good day. Any suggestions.
Be Honest Your Loved ones are going through this with you Tell them Some Days are good and some are bad empathize but don't Sympathize.
@msg I can very much understand this dilemma. While I believe honestly is the best policy, I also think there could be another consideration at play here. Having to acknowledge and speak of your pain each morning could set you on a path of having that be a focus of your day rather than a topic that would be more encouraging and hopeful.
You will notice I did move your post into an existing conversation with members sharing your same sentiment, i.e. not wanting to complain about the pain. Members such as @dianrib @ursweetpam @jfsherley @lioness @parus may be able to share their thoughts as well.
As for how to approach this with your wife, one thing to consider is to have a basic understanding, by way of a blanket conversation perhaps, to share that you don't want to feel disingenuous by not being honest about the state of how you are feeling each morning but also don't want that admission to be one of the first affirmations of your day each day.
In all honesty, "how are you feeling" or "how did you sleep" is a pretty common way to start morning conversation after saying "good morning". Maybe the pair of you can come up with another thing you say to one another to move the conversation away from discussing your pain? Maybe you agree to ask one another "what is one thing you are looking forward to doing today?" to create a sense of hope and joy to start the day instead!
Do you think your wife would be receptive and do you think that would help your concern?
Thank you for the great advice. You are truly understanding and insightful to all of us who live with pain daily.
@msg I so appreciated your post and Amanda's @amandajro response. I understand your dilemma as living in chronic pain can feel lonely, especially when we want to protect our loved ones from our reality.
In pain rehab I learned that a neutral approach is a good one. Meaning the person in chronic pain as well as family member (or friend) should remain neutral by not focusing on pain. Completely ignoring it however can be counter productive for all parties.
Setting aside a timed discussion of 5 -10 minutes per day or a weekly check in might be helpful to discuss how you and she have been feeling. The goal is to get caught up with honesty about pain but not let it dictate your lives.
I do not go to work due to disability, but every morning my husband asks, "what are doing today?", as he heads off to work....business as usual regardless of chronic pain.
These are just great ideas, @amandajro, for anyone dealing with chronic illness! Thanks for your post.
I thought members of this discussion may be interested in an upcoming webinar sponsored by the Foundation for Peripheral Neuropathy.
FPN Webinar: How to Talk to Anybody When You Have a Disability or Chronic Illness
Wed, Dec 8, 2021 2:00 PM - 3:00 PM CST
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An EmBRACE It Workshop by Estela Lugo & Lainie Ishiba
Have you ever felt misunderstood because of your disability?
Has miscommunication ever interfered in your relationships?
We all know that communication is an essential part of our relationships and well being. Expressing ourselves and asking for what we need in general can be difficult for many people, but for those of us with disabilities, expressing our unique wants and needs, in a way that feels good for everyone, can be extra challenging.
In this interactive workshop, participants will learn techniques and tools for healthy and productive communication in everyday situations. Participants will leave this workshop with practical tools they can use to confidently talk about their condition and ask for help when they need it.
We hope you can join us live as this special workshop is being offered at no cost to FPN attendees and will not be recorded for future viewing.
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Register for the webinar: https://register.gotowebinar.com/register/4559936822934676493
Thought I’d share this article…
Fatigue is an oppressive cocoon. It has made me seek joy wherever I can
I have not ‘overcome’ anything, but I am happy and hopeful. Chronic illness is sometimes described as a form of grief, but I prefer to think of it as beginning the next stage
https://www.theguardian.com/lifeandstyle/2021/dec/29/fatigue-is-an-oppressive-cocoon-it-has-made-me-seek-joy-wherever-i-can