1. < Prostate Cancer
Moderator

Living with Prostate Cancer: Meet others & introduce yourself

Posted by Colleen Young, Connect Director @colleenyoung, Mar 19, 2019

Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

Follow the group. Browse the topics or start a new one.

Let's start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Nov 2, 2021
In reply to @gregorylynn "I am 65 years old. I was diagnosed with prostate cancer about 5 years ago and..." + (show)
@gregorylynn

I am 65 years old. I was diagnosed with prostate cancer about 5 years ago and chose to have seed implants (don't remember the technical terminology). I was very satisfied with the outcome. My father had the same treatment when it was a relatively new treatment. He died at the age of 93 of other causes after 23 years. So, I was shocked when earlier in 2021 I developed shoulder pain that would not go away. Recently I was diagnosed with advanced bone cancer in the shoulder. It is prostate cancer. I have yet to hear about recommended treatments, but I have to say that my world has definitely been shaken. I would like to hear from anyone who is dealing with metastatic bone cancer. Best wishes to all who have reason to be here.

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Gregory, I bet you world have been turned upside down with this punch in the gut of metastatic cancer. You're not alone. @norske46 @safari1949 @stoney1967 @ken82 and @waynen also have stage 4 prostate cancer. You might be interested in joining this discussion that @juangui started and use the auto-translation tool
- Yo Necesita apoyo de personas con metástasis de cáncer de próstata https://connect.mayoclinic.org/discussion/juangui/

I'll be interested to hear when you are presented with your treatment options. When will you know?

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1 reply
gregorylynn | @gregorylynn | Nov 3, 2021
In reply to @colleenyoung "Gregory, I bet you world have been turned upside down with this punch in the gut..." + (show)
@colleenyoung

Gregory, I bet you world have been turned upside down with this punch in the gut of metastatic cancer. You're not alone. @norske46 @safari1949 @stoney1967 @ken82 and @waynen also have stage 4 prostate cancer. You might be interested in joining this discussion that @juangui started and use the auto-translation tool
- Yo Necesita apoyo de personas con metástasis de cáncer de próstata https://connect.mayoclinic.org/discussion/juangui/

I'll be interested to hear when you are presented with your treatment options. When will you know?

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I return to Mayo Nov. 15th for more tests and consultations. I hope I will at least have a sense of direction afterwards.

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1 reply
gregorylynn | @gregorylynn | Nov 3, 2021

Colleen, where do you find the translation tool? Thank you.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Nov 3, 2021
In reply to @gregorylynn "Colleen, where do you find the translation tool? Thank you." + (show)
@gregorylynn

Colleen, where do you find the translation tool? Thank you.

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View Translation will appear automatically below any Spanish comment. Read more about how it works here:
- Automatic translation Spanish and English https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/nueva-funcin-traduccin-automtica-entre-espaol-e-ingls-new-feature-automatic-translation-between-spanish-and-english/

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jhowle | @jhowle | Nov 4, 2021
In reply to @gregorylynn "I return to Mayo Nov. 15th for more tests and consultations. I hope I will at..." + (show)
@gregorylynn

I return to Mayo Nov. 15th for more tests and consultations. I hope I will at least have a sense of direction afterwards.

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I completely understand. I’ve been reading everything I can since I was diagnosed a few weeks ago. I think I’m on information overload now. I seem to go back and forth between the feeling of “this can’t be” and “I have to be realistic”. I hope you find that sense of direction you’re looking for after your follow up tests and consultations. I’m hoping for the same. Take care.

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2 replies
gregorylynn | @gregorylynn | Nov 4, 2021
In reply to @jhowle "I completely understand. I’ve been reading everything I can since I was diagnosed a few weeks..." + (show)
@jhowle

I completely understand. I’ve been reading everything I can since I was diagnosed a few weeks ago. I think I’m on information overload now. I seem to go back and forth between the feeling of “this can’t be” and “I have to be realistic”. I hope you find that sense of direction you’re looking for after your follow up tests and consultations. I’m hoping for the same. Take care.

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I appreciate your comments. I don't know about you, but the more I read the more ominous it appears. And I agree with your feelings. The first time around with prostate cancer, I did not feel bad. So I thought the same, this can't be. I guess that is what makes cancer so scary, because there may well be a day that it will be much more difficult. Please stay in touch and thank you. Hope you also find a measure of peace and comfort.

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jhowle | @jhowle | Nov 4, 2021
In reply to @waynen "Hi jhowle, your PSA is the same as mine was 3 years ago. Completed Proton Beam..." + (show)
@waynen

Hi jhowle, your PSA is the same as mine was 3 years ago. Completed Proton Beam radiation and 18 months of Antigen Deprivation Therapy (ADT). If they don't bring up ADT as part of your treatment, ask them about it. My radiation oncologist highly recommended it because of the high risk nature of the cancer. By the way, cancer free for nearly 3 years with PSA negligible. There's a light at the end of the tunnel.

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Thanks for the encouraging words. I think it will be better when some decisions can be made. I’m glad it’s going well for you. Take care.

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jhowle | @jhowle | Nov 4, 2021
In reply to @drggkelley "I wish you all the best and am praying for you and everyone here. I have..." + (show)
@drggkelley

I wish you all the best and am praying for you and everyone here. I have not yet had my biopsy. Discovered a lesion, grade 5 from imaging. Doc says it indicates aggressive. Won't know until biopsy. I am in the same boat. I have found learning as much as possible helps me and this site also is comforting. The good news is that there is a very high probability of recovery. What is your age and family history? How often did you do a PSA? What if any symptoms did you have?

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I also wish the best for you. My biopsy did confirm the cancer so will be back at Mayo next week for more testing, consultation and follow up. I’m 65, only history of metastatic prostate cancer was an uncle on mothers side (as far as I know). Did PSA every year at annual physical. Didn’t really recognize symptoms until diagnosed (just wrote them off to aging process). I hope everything goes well for you at your follow up with your doctors.

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waynen | @waynen | Nov 5, 2021
In reply to @jhowle "Thanks for the encouraging words. I think it will be better when some decisions can be..." + (show)
@jhowle

Thanks for the encouraging words. I think it will be better when some decisions can be made. I’m glad it’s going well for you. Take care.

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You're right. Once you have a plan for treating it, the better you'll feel. I went through the same thing.

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chuck53 | @chuck53 | Nov 7, 2021

Hi,
I was diagnosed with prostate cancer in June 2021 at the Mayo clinic in Jacksonville,Florida. After a bunch of tests, blood, urine, CT scan, MRI'S and Doctor visits, my surgeon told me he doesn't feel like I am not a candidate for surgery. I was diagnosed with NET cancer in November 2019 at Mayo, and they are afraid that surgery might adversely impact that cancer. I opted for gold seed and spaceOAR implants and finished my last SBRT radiation treatment two days ago on Friday the 5th. I am dealing with the side effects on a daily basis.
Chuck

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