1. < Autoimmune Diseases

Lupus and blood disorder (elevated WBC/monocytes & lymph’s)?

Posted by stephchurch @stephchurch, Oct 29, 2021

Can lupus make it seem like you could possibly have a blood disorder? I was referred to Hematology/ oncology for unexplained bruising and high WBC counts. I received no answers, no Bone marrow biopsies. It’s hard not feeling like they are missing something .

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KeepingHeadUp | @elizabeth513 | Oct 31, 2021
In reply to @stephchurch "Hi there, I recently had a CBC come back with elevated neutrophils, monocytes, lymphocytes and WBC..." + (show)
@stephchurch

Hi there, I recently had a CBC come back with elevated neutrophils, monocytes, lymphocytes and WBC count. I have been experiencing unexplained bruising, gum bleeding and GI issues. I do have Lupus and MCTD. I currently take Benlysta infusions.

I tested positive for Antiphosphilipid and Von Willebrands. My Dr. decided to re draw the Von Willebrands and it was right on the line of abnormal and normal range.

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Hi @stephchurch, I was diagnosed with APS as well. Just wondering what your experience with it is? I am constantly concerned about blood clots and often experience shortness of breath and severe aches in my back,neck, knees. I’m only 21 and am borderline for developing lupus in the future.

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2 replies
Mentor
Becky, Volunteer Mentor | @becsbuddy | Nov 1, 2021
In reply to @elizabeth513 "Hi @stephchurch, I was diagnosed with APS as well. Just wondering what your experience with it..." + (show)
@elizabeth513

Hi @stephchurch, I was diagnosed with APS as well. Just wondering what your experience with it is? I am constantly concerned about blood clots and often experience shortness of breath and severe aches in my back,neck, knees. I’m only 21 and am borderline for developing lupus in the future.

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@elizabeth513 Concern about blood clots is a lot for a 21 yr old. Has your doctor given you any guidance on preventing them?

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1 reply
stephchurch | @stephchurch | Nov 4, 2021
In reply to @elizabeth513 "Hi @stephchurch, I was diagnosed with APS as well. Just wondering what your experience with it..." + (show)
@elizabeth513

Hi @stephchurch, I was diagnosed with APS as well. Just wondering what your experience with it is? I am constantly concerned about blood clots and often experience shortness of breath and severe aches in my back,neck, knees. I’m only 21 and am borderline for developing lupus in the future.

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Hi Elizabeth, I haven’t had any issues with blot clots but we follow precautions. I work in healthcare and wear compression socks when I’m on my feet all day. I had a hysterectomy last October, I cannot have any hormone replacement therapy and they do have me on DVT precautions when flying long distance. I just remember, keep moving. Keep your legs going and if you feel pain and swelling and and they are hot don’t ignore it.

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KeepingHeadUp | @elizabeth513 | Nov 4, 2021
In reply to @becsbuddy "@elizabeth513 Concern about blood clots is a lot for a 21 yr old. Has your doctor..." + (show)
@becsbuddy

@elizabeth513 Concern about blood clots is a lot for a 21 yr old. Has your doctor given you any guidance on preventing them?

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@becsbuddy not really other than taking a baby aspirin daily which I do.

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1 reply
Mentor
Becky, Volunteer Mentor | @becsbuddy | Nov 5, 2021
In reply to @elizabeth513 "@becsbuddy not really other than taking a baby aspirin daily which I do." + (show)
@elizabeth513

@becsbuddy not really other than taking a baby aspirin daily which I do.

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@elizabeth513 There are so many simple exercises you can do at home. And they take no time!
https://www.webmd.com/dvt/what-know-dvt-exercise
Let e know how these work for you

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