Elevated parathyroid hormone (PTH): How is it treated?

It's the Norman Parathyroid center in Tampa Florida! My wife had her surgery there at Tampa General Hospital and it was a great time for both of us.

The date on your post is April so my response may be irrelevant. I had the surgery several years ago. It was outpatient, over quickly with very little discomfort. In my case the surgeon took all of my parathyroids. Every negative symptom related to parathyroidism vanished in less than 48 hours. It is suggested to search for a doctor who has done that specific surgery a number of times. Several years down the road and my calcium level, bone density, etc. are a bit off. In my case the surgery had to happen. My symptoms were impacting my daily life far too much.
There is a medical facility in Florida that specializes in parathyroid removal. I will find the name and post it here.

That is called Norman Parathyroid Center in Tampa

If you PTH and blood calcium are normal I would see a Nephrologist.

I finally had the 4D-CT scan. It was negative for PTH adenomas. However, they did not even mention seeing normal PTH glands, so I wonder how good the scan was. They say it is “very accurate”. However, though this scan has a high Specificity, meaning it identifies the gland for what it really is, it has a much lower Sensitivity - 44%. So, it shows the adenomas only 44% of the time. So, I am still wondering if there is or are adenomas there. (I am a nurse practitioner). My symptoms are debilitating … 3-4 hours of daily morning nausea, frequent urination, constipation, loss of hair so that I am buying a wig because so embarrassing, history of kidney stone this year. I worry that I will get kidney damage with another stone. I do not have elevated serum or ionized calcium or elevated PTH. Though my 24 hour urine calciums are always high, this does not seem to matter to them. I have an appointment with a Mayo endocrinologist in 3 weeks. I hope that will turn up something. I may try to get a Dexa scan to check for osteoporosis or osteopenia. My last was summer 2020 & was completely normal. However, it may not still be normal.

I have had high PTH and normal Calcium with many, many symptoms and have also been extremely frustrated. I have a referral to Mayo in Rochester and am trying to sort out how to get there and have more testing done. I initially had a PTH level drawn to investigate my symptoms of headache, fatigue, palpitations, etc. and My Calcium was 9.6 with a PTH of 85. My next draw was super odd with a Calcium of 8.8 (not corrrected for Albumin) and a PTH of 109. Then it was all checked again and I had a Vitamin D level of 23. After supplementation it was 29 with a Caclium of 9.5 and a PTH of 76, and then Vitamin D 40, with Calcium 9.4, PTH 76. The Endocrinologist that I have been seeing says that my PTH is now "normal" and that I had secondary HPT, but shouldn't the PTH be much, much lower? My PTH has been tested 5 times and never below 75, but my calcium has never been higher than 9.6. Hoping I can get to Mayo for eval., but I am scared to spend the time and money only to be turned away again! Thanks to everyone for sharing your experiences. It would be nice to hear from more "normal" calcemic patients!

I have the same - there is something they have been seeing called normocalcemic primary hyperparathyroidism - there is a article on the NIH site about it. I am just starting the process of meeting with an endocrinologist - I don't have elevated Vitamin D or calcium blood levels but I also have hypertension that seems to jump all over the place (and I run an hour a day) - I am wondering if my hypertension is related to my elevated PTH levels.

Hello @plstroud and welcome to Mayo Clinic Connect. This information about normocalcemic primary hyperparathyroidism is quite interesting. Do you also have high PTH levels, but normal calcium levels?

As I had not heard of this before I went to the NIH website and found this article. Here is the link, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3564219/.
A number of members on Connect have also spoken about high PTH levels with normal calcium readings. This should be interesting to many of them. I'm wondering if you have any other hyperparathryoidsm symptoms such as bone loss, kidney stones, etc.?

You mentioned having an upcoming appointment with an endocrinologist. Is that appointment coming up soon?

The doctor is still experimenting using D2 and now D3 to see if this makes a difference. The D is now up to 27 and we are hoping for at least 30, the absolute minimum. My calcium is still a little high. I wonder if fatigue is associated with PTH.