I finally had the 4D-CT scan. It was negative for PTH adenomas. However, they did not even mention seeing normal PTH glands, so I wonder how good the scan was. They say it is “very accurate”. However, though this scan has a high Specificity, meaning it identifies the gland for what it really is, it has a much lower Sensitivity - 44%. So, it shows the adenomas only 44% of the time. So, I am still wondering if there is or are adenomas there. (I am a nurse practitioner). My symptoms are debilitating … 3-4 hours of daily morning nausea, frequent urination, constipation, loss of hair so that I am buying a wig because so embarrassing, history of kidney stone this year. I worry that I will get kidney damage with another stone. I do not have elevated serum or ionized calcium or elevated PTH. Though my 24 hour urine calciums are always high, this does not seem to matter to them. I have an appointment with a Mayo endocrinologist in 3 weeks. I hope that will turn up something. I may try to get a Dexa scan to check for osteoporosis or osteopenia. My last was summer 2020 & was completely normal. However, it may not still be normal.

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