After I had a nonfasting blood test yesterday my doctor tells me that I have elevated PTH. Is anyone else dealing with PTH and if so would appreciate learning about their experience and how it was treated or is untreatable. Thank you for sharing.
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Hello @plstroud and welcome to Mayo Clinic Connect. This information about normocalcemic primary hyperparathyroidism is quite interesting. Do you also have high PTH levels, but normal calcium levels?
As I had not heard of this before I went to the NIH website and found this article. Here is the link, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3564219/.
A number of members on Connect have also spoken about high PTH levels with normal calcium readings. This should be interesting to many of them. I'm wondering if you have any other hyperparathryoidsm symptoms such as bone loss, kidney stones, etc.?
You mentioned having an upcoming appointment with an endocrinologist. Is that appointment coming up soon?
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My calcium levels and Vitamin D are both smack dab in the middle of normal ranges. My PTH level this last time was 76 but has been higher – 88 – in the past. I had seen an endocrinologist several years ago but he passed the high level off as unimportant since my calcium was in the normal range. I have had kidney stones many years ago but nothing I can confirm lately. We are supposed to perform a bone density test as my NP has said she wants to see if I have suffered any bone loss. My Vitamin D was deficient in the past and I had been taking 2000 iu but upped it to 4000 iu daily during Covid after the initial reports that some doctors said appeared to point to less Covid severity risk for those with good Vitamin D levels. I am now curious to see if I indeed have a tumor. I think I will try a different endocrinologist this time. I just got the latest lab test results within the last week so I'm still digesting all of this to plan my next move. Any help from this forum is appreciated.
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